The NoahBrave Foundation

The NoahBrave Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The NoahBrave Foundation, Franklin, TN.

Our mission at NoahBRAVE is to provide personalized support, raise awareness, and fund research for kids and their families battling a terminal brain cancer diagnosis.

To all our Michigan family and friends and The NoahBrave Foundation supporters, our NoahBRAVE 5K is happening THIS Sunda...
09/16/2024

To all our Michigan family and friends and The NoahBrave Foundation supporters, our NoahBRAVE 5K is happening THIS Sunday, September 22, at Macomb Corners Park @ 10 am. We'd LOVE to see you there to help us fulfill the mission at The NoahBrave Foundation to support families, raise awareness, and fund research for a cure of terminal brain cancer, namely DIPG/DMG, the cancer that Noah bravely battled for 16-months.

You can register here: https://p2p.onecause.com/noahbrave5k/event/noahs-michigan-warriors-noahbrave-5k

The NoahBrave FoundationNoahBRAVE 5K Race Weekend is HERE!Races Happening This Weekend: Franklin, TN: Saturday, Septembe...
09/13/2024

The NoahBrave FoundationNoahBRAVE 5K Race Weekend is HERE!

Races Happening This Weekend:

Franklin, TN: Saturday, September 14th @ 2 pm
**This event is RAIN or SHINE **

Douglasville, GA: Saturday, September 14th @ 9 am

Cleveland, TN: Saturday, September 14th @ 10 am

Help us Support Families, Raise Awareness, and Fund Research for a Cure during September, Childhood Cancer Awareness Month and Noah's Diagnosis Month.

Learn more about our mission: https://m.youtube.com/watch?v=Ll7-NtJRuwg

Register for the The NoahBrave Foundation NoahBRAVE 5K:
https://p2p.onecause.com/noahbrave5k

Nathan describes NoahBRAVE Foundation

The NoahBRAVE Foundation announces, “A Nashville Night for NoahBRAVE,” a fundraising event benefiting families of childr...
08/30/2024

The NoahBRAVE Foundation announces, “A Nashville Night for NoahBRAVE,” a fundraising event benefiting families of children with terminal brain cancer. The fundraiser will take place on September 9 from 6-9 p.m. at The Pancake Pantry in Hillsboro Village, located at 1796 21st Avenue South in Nashville.

The event, which will be held during Childhood Cancer Awareness month, will feature a performance by ACM New Male Artist of the Year and Billboard’s Rookie of the Year Nate Smith and appearances by other local celebrity guests including Nashville Soccer Club’s Taylor Washington and New York Times best-selling novelist Karen Kingsbury.

Purchase tickets here: https://p2p.onecause.com/nashvillenightfornoahbrave

The NoahBrave Foundation
Pancake Pantry
Karen Kingsbury
Nate Smith
Nashville Soccer Club

07/25/2024

The “Missing” Room

There is a house where I live, and its name is Grief. There are many rooms in this house, one of the largest is the “missing” room. In this room holds all the unspoken hopes, dreams, and expectations of life that I once gripped tightly to, that I once felt entitled to. It holds milestones, birthdays, and holidays. It holds vacations, dinners around the table, and your place in our family photos. It holds smiles and hugs and making new memories. It holds your voice, your laughter, your presence. It holds the mundane and the extraordinary. It holds your place in my heart. It holds time, the clock stuck at the exact moment you left me. It holds my life before losing you.

I sit curled up against a bare wall in the stale, vacant, “missing” room with the only dim light coming from a small, foggy, four-paned window. My body is in a tightly formed ball on the hard, wooden floor, my knees pulled in close to my chest, my arms wrapped like a hug around them, my head down, resting on my knees. I hear a gentle, but audible knock on the door. My head lifts as an involuntary reaction to the noise and I cautiously respond to the Person on the other side of the closed door with an unassured “come in”.

He slowly enters the “missing” room and starts walking towards me, one intentional step at a time. My tears don’t stop just because He came in, in fact, they seem to fall harder as He comes closer. He makes His way across the room, comes to a stop in front of me, and starts to kneel. Disappointment starts to fill my heart as I look up at Him, look past Him, and realize He’s alone. My cries become stronger, and my wails louder, as I berate Him with questions and fits of rage. He reaches out to console me and I become rigid; He could have stopped the unimaginable, unbearable pain this room holds, but for reasons I’ll never know or understand, He chose not to.

I was mad that He was there, especially alone, but I also didn’t want Him to leave. I clenched my jaw as He reached out and embraced me. That’s when I noticed He was crying, too.

Slowly, my anger softened. I began to unpeel my arms from the grasp they had around my knees and started to reach for Him. The more I released my anger, the more I noticed His strength holding me and His tears joining mine. Together, we wept.

The “missing” room was silent except for the whimpers that accompanied our tears. Our bodies were still except for the way they shuddered with every exhale. He didn’t rush me, because He knew that no amount of time would heal a wound so deep. He didn’t try to fix me, because He knew this type of pain was unfixable. He didn’t fill the empty space and uncomfortable awkwardness with meaningless words that fail to take away the hurt or make sense of the loss. He simply held me, allowing my broken and weary soul to find the rest it so desperately needed.

As our tears slowed, the sniffles quieted and our bodies calmed, the storm of grief having passed through. He gently leaned back, just enough to turn and situate Himself next to me. His back was now plastered against the wall next to mine, His legs, one bent into his chest, one straight ahead of Him, solidly supported Him upon the ground. He draped one arm around the back of my shoulders, the other across my chest, and clasped His hands on the far side of my body. I nestled my head into the crook of His neck and leaned into His embrace. I felt my body relax as I allowed Him to pull me close to His chest.

I’m not sure how long I stayed there, but when the pain eased enough for me to face my brutal reality once again, I pulled my head upright, watched Him slowly stand to His feet, and walk towards the door. He looked back at me with a look that held compassion, empathy, and understanding. He didn’t like that I had to have this “missing” room in my house, He hated it as much as I did. But He was grateful that I invited Him in to share such a sacred, intimate space together.

He gently closed the door, my eyes fixed on Him, until the sound of the lock clicking into the frame echoed throughout the room, snapping my gaze back to the emptiness around me. It was then that I realized even though I wasn’t free from pain, tears, questions, or anger while He was in the room, there was something comforting, perhaps healing, about having Him there in the “missing” with me.

05/01/2024
Our sweet Adalyn went home to be with Jesus on Sunday evening.She had a beautiful and peaceful day resting at home early...
03/23/2024

Our sweet Adalyn went home to be with Jesus on Sunday evening.

She had a beautiful and peaceful day resting at home early Sunday morning and through the entire day, while family and friends talked with her, prayed over her, sang to her, and read her favorite stories.

Adalyn’s final gift to us was the peacefulness of her spirit as she patiently waited to hear from so many that she loved, made sure mommy and daddy got to eat dinner, and listened to one of her favorite bedtime stories with her sisters, which they selected for her.

Just moments after everyone had gone home, and her sisters had gone to bed, Stephanie and I knelt down by her bedside with our friend Jade and told Adalyn how much we loved her, and in that moment Adalyn entered into the presence of our Lord, where she was made new again. She was not uncomfortable or restless and did not have any pain. She finished the race that was marked out before her, and she did it with the faith, strength, wisdom, grace, and beauty of a princess.

Adalyn believed herself to be a princess, because she had confidence in her inheritance as the daughter of the one true King. And now she gets to hold her rightful place in his Kingdom, where she belongs for eternity.
Grief will come, but in these days our overwhelming emotions have been peace, gratefulness, and love. We have been so well cared for by so many. We have felt the love of Christ in a new way. And we can rest confidently, because we know our great and mighty God has us, and Adalyn, in His hand.

There will be a live stream of the service available here:
https://boxcast.tv/view/adalyn-mcguire--celebration-of-life-tq1zrdllucfewnelljbj

Per request of the family, Donations can be made in Adalyn’s honor to the NoahBRAVE Foundation.
www.NoahBRAVE.org/donate

3 years. Noah, we love you, we miss you, and we hope to honor you in everything we do.
01/14/2024

3 years.
Noah, we love you, we miss you, and we hope to honor you in everything we do.

Today is the day! Our goal is to sell out. We are close, but still have some tickets to sell. Tonight is about honoring ...
01/13/2024

Today is the day! Our goal is to sell out. We are close, but still have some tickets to sell. Tonight is about honoring Noah, supporting families, and reminding ourselves that laughter is healing. If you haven’t purchased tickets yet, please do. All proceeds go to help families affected by this horrible disease, and families who are currently in the battle. Please share.

Tomorrow is your chance to support a GREAT cause… and see these guys perform! Get your tickets for a night of fun…all in...
01/12/2024

Tomorrow is your chance to support a GREAT cause… and see these guys perform! Get your tickets for a night of fun…all in honor of Noah!

Come to the Yes, And Improv show for a chance to win THESE awesome custom NoahBRAVE shoes!
01/11/2024

Come to the Yes, And Improv show for a chance to win THESE awesome custom NoahBRAVE shoes!

Only a few days left to purchase tickets! Come join us as we honor Noah, and help support other kids who are currently b...
01/10/2024

Only a few days left to purchase tickets! Come join us as we honor Noah, and help support other kids who are currently battling.

The day is fast approaching…get your tickets!!
01/09/2024

The day is fast approaching…get your tickets!!

The time is fast approaching for this years show! Get your tickets!
01/04/2024

The time is fast approaching for this years show! Get your tickets!

Still looking for a last minute Christmas gift?? How about a night of fun for the whole family!! Go to our website to pu...
12/15/2023

Still looking for a last minute Christmas gift?? How about a night of fun for the whole family!! Go to our website to purchase tickets!

This is Noah with Nashville Soccer player Taylor Washington in February 2020 at the Nashville airport. The Nashville soc...
12/08/2023

This is Noah with Nashville Soccer player Taylor Washington in February 2020 at the Nashville airport. The Nashville soccer team was getting off their plane the same time we were coming home from Michigan.

we would want to invite you to join us for our annual Improv show in honor of Noah. January 13th! We so appreciate you taking the time to take a quick pic with Noah, and would love for you to join us. Let us know if you can make it💚

“Thankful Thursdays”, which is the day of the week when Noah went to Heaven, have become my writing days.  The day of th...
12/07/2023

“Thankful Thursdays”, which is the day of the week when Noah went to Heaven, have become my writing days. The day of the week that I set aside to intentionally dive back into Noah’s journey and openly welcome the emotions and memoires that I often fight off to keep me functioning as a “normal” human. My routine, dropping Elijah off at his one-day-a-week homeschool tutorial, then crossing the street to the old southern manor house turned coffee shop for the day, was different today because of Christmas Break, so I stayed close to home and headed downtown Franklin to write.
It was only moments after I got my computer set up, coffee ordered, and started reading where I left off last time that the tears started flowing. It’s not uncommon for these writing days to bring tears, after all, I am reliving the most traumatic and devastating time of my life (thus far), but today felt uniquely painful.
The rawness in which the tears fell, the guttural pain I felt all over my body, I couldn’t focus past the pain and see clearly through the tears to write anything. I just silently wept, letting the tears fall as I used the sleeves of my NoahBRAVE sweatshirt to catch them.
I started looking back over Noah’s journey in a book that a dear friend put together for me comprised of all my Facebook posts from Noah’s 16-month battle from diagnosis to his Heavenly Healing.
4-years-ago, December 7, 2019, was our 2nd day in Maui on Noah’s Make*A*Wish trip to Hawaii. We spent the day boogie boarding, the night at a Luau; Noah bought me a pink hibiscus flower that he placed in my hair (and I still keep in my drawer), and Noah was gifted a wooden surfboard engraved with his name and the Hawaiian word, “IMUA”, which means “to keep moving forward in a positive direction”. While we enjoyed every aspect of his trip, thankful that his 30 rounds of radiation were over and he was feeling well enough to ride waves and go on excursions, there was always the tension of knowing what we were facing behind the cheery façade. As soon as the trip was over and we landed back in Nashville, we were turning around to head to Michigan to start Noah on the ONC201 clinical trial and were already 3-months into his 6-12 month death sentence.
3-years-ago, December 7, 2020, Noah and I were in the day Hospital at Duke University for his 3rd immunotherapy treatment as a part of the 2nd clinical trial we enrolled him in. His first two treatments caused severe fever and heart rate spikes that required hospitalization, due to Cytokine Release Syndrome, the body’s immune response to fighting off the disease we knowingly injected into his body, in hopes that it would also fight the tumor growing in his brain. We were hopeful that meant his body was working overdrive to kill the tumor and extend his time with us, even heal him. I look back at pictures now and see his sweet eyes, affected by 40 rounds of radiation, chemotherapy, and two clinical trials. He was already living past his allotted time the doctors had given him, but we wanted to have more time with him. We didn’t want to have to say goodbye.
Today, December 7, 2023, I sit weeping at a table in a coffee shop in Downtown Franklin. Unable to write the next chapter of Noah’s story, but instead sitting in silent reflection. My heart grieves over Noah’s absence. My body feels the trauma of his last few weeks on earth and what it’s done to our family. My soul longs to feel whole again. My faith begs to blindly trust in God’s sovereignty.
Two kids have passed in the last week, another several in progression, and new kids are being diagnosed daily. The only Hope I have is in the faith of what God has already done, and the fulfillment of His promises that one day will come.

Come see this wild crew and support a wonderful cause!! January 13th!! Get your tickets!! Thank you to our sponsors Embe...
12/07/2023

Come see this wild crew and support a wonderful cause!! January 13th!! Get your tickets!!

Thank you to our sponsors Embers Outdoor Kitchen Living and Springtree Media Group!

NoahBRAVE is being represented on the sidelines of the  game tonight. Keep an eye out for some swaggy shoes.
12/01/2023

NoahBRAVE is being represented on the sidelines of the game tonight. Keep an eye out for some swaggy shoes.

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