I was blessed to become a Mother to my first child October of 2006 within days the doctor explained that both my son's hips were dislocated and needed to be corrected we were then referred to the Orthopedic dept. at Valley Children's. He tried a funny looking frog sling to try and "guide" his hips back into place. It didn't work, So our surgeon at the time decided Surgery was needed. My son underwent 2 Closed hip reductions and 1 open hip reductions by his 2nd Birthday and was in a half body cast. The Operation worked but only to find out he had Scoliosis pretty bad and needed correcting ASAP. Our surgeon left the practice out of state and we were BLESSED with the our Surgeon to this day. Since then Anthony has Undergone 12 back operations to help correct the curve in his spine. He originally started with a 70+ degree curve and now is sustained at 30+ degree which is a significant improvement. My Son had a lot delays mentally and physically but has blossomed with the wonderful programs he is in. I gave birth 2 years after the birth of my Son to my beautiful Baby girl Cheyenne. Each of my pregnancies worst than the last, Chy was a repeat C-Section because with my son they had found tumors on my ovaries that needed to be removed. Chy came a few weeks early because I had a condition called Preclampsyia where my blood pressure was dangerously high and the only cure is to deliver the baby. When Chy was born they had to put in a breathing tube immediately because she wasn't breathing. I can't even begin to explain the feeling of not being able to hear her cry, the emotions where overwhelming. She was transferred within hours of her birth to Valley Children's NICU so she could have a fighting chance at life. The doctors told me she wasn't going to make it because she was so sick. They told me she had a paralyzed diaphragm, Smoothing of her brain, she had an infection in her blood and several other issues. I stayed by her side everyday for over 2 months when she was finally stable enough to go home on low flow oxygen. It was the happiest day we had accomplished our first battle together. Slowly but surely she started functioning. She has had several obstacles along the way. In 2012 She started seeing the orthopedic surgeon And we got news of another huge obstacle She was diagnosed with Severe Scoliosis her curve was 90+ by then we started putting the pieces together and seeing genetic Specialist who Diagnosed them with a rare genetic syndrome called Antley Bixler Syndrome. Turns out that I and their Biological Father Carry the recessive gene for Antley Bixler Syndrome. When alone is harmless but together we passed it on to Cheyenne and Anthony without even knowing it. Our surgeon tried Casting Chy to try and push back back surgery for Chy to allow her Enough time to gain strength. But her curve got to severe and was pushing on her lungs causing a Carbon Dioxide build up which would eventually suffocate her. We started Prepping her for her surgery and found out she stops breathing 11 times an hour when she sleeps so of course we got it taken are of and she was given a CPAP machine. We also found out she has a hole in heart but that shouldn't cause her any issues. October 2013 she had her first Spinal operation and that was the longest day of my life. They had some complications which required a blood transfusion and some temporary residual damage was done in one leg but just recently she has gotten it back. Her recovery has been lengthy, painful and hard for her she spent a few days in the ICU because of her SpO2 kept dropping but after a little over a week she was finally able to go home. Everyday my babies struggle with things, pain, physical limitations and just being different. But NEVER once have they complained or asked Why me? They are the STRONGEST human beings I have ever met and I thank God everyday for giving me the gift of being their Mommy! Through all the Up's and Down's I wouldn't trade it for the world.They are also the best Big Brother & Sister to their baby Sister Cienna who is Almost 2. Thank you for taking the time to Support my Children.
