Willaโ€™s Journey

Willaโ€™s Journey This is a page to stay updated on Willaโ€™s journey. ๐ŸŽ—๏ธ๐Ÿฉท

Over the past week or so, Willa hasnโ€™t been feeling like herself. A few random symptoms led us to the Childrenโ€™s ER on T...
03/15/2026

Over the past week or so, Willa hasnโ€™t been feeling like herself. A few random symptoms led us to the Childrenโ€™s ER on Tuesday night, where she tested positive for Rhino-Enterovirus. We were hopeful that her symptoms were simply from the virus, but unfortunately that wasnโ€™t the case.

Further testing showed that Willa has a growth in her spine.

Her medical team is recommending surgical removal, and treatment will be decided after they learn more about exactly what it is. While we donโ€™t have many answers yet, her neurosurgeon is hopeful that this surgery will be very different โ€” and much less dramatic โ€” than the one she went through before.

Looking back, Willaโ€™s scan from December showed a few โ€œspots.โ€ At the time, the team couldnโ€™t tell if they were simply blood vessels passing through or something else. Those are the same spots that raised concern on this latest scan.

For now, we are home and soaking up time together while we wait for surgery, which will likely be later this month or in early April.

Willa had her routine MRI today. While she was under they removed her ear tubes she had placed a year ago for chronic ea...
12/31/2025

Willa had her routine MRI today. While she was under they removed her ear tubes she had placed a year ago for chronic ear infections. One of them left a hole in her ear drum but weโ€™re hopeful it will close on its own. ๐Ÿคž๐ŸผHer ears looked good & she didnโ€™t need new tubes placed. She was such a strong girl today- didnโ€™t even cry when she got her IV! We had an appointment after with her oncologist which went well. Weโ€™re waiting for a final reading from the radiologist on the MRI but the oncologist thought everything looked normal! ๐Ÿ™๐Ÿป Willa is such a strong, sweet girl and I am so lucky to call her mine!! โ™ฅ๏ธWe decided to start a little tradition of Willa holding Briar before her scans and my heart is exploding!!! ๐Ÿฅน๐Ÿ˜

As we drive home from a long exhausting day, Ty & I are discussing things weโ€™re thankful for. Of course the normal thing...
11/28/2025

As we drive home from a long exhausting day, Ty & I are discussing things weโ€™re thankful for. Of course the normal things - family, friends, our home but our list was longer this year. We are extremely thankful to be able to attend all of our familyโ€™s dinners today with a healthy little girl and boy. We missed the last big holiday due to being in the hospital. We are also thankful for all of you and the prayers youโ€™ve sent/continue to send our way. โ™ฅ๏ธ

As tiring as it is to run from place to place- I am so grateful we GET to. Never take these long, exhausting holidays for granted. You never know where youโ€™ll be the next time.

Happy Thanksgiving, friends! ๐Ÿฆƒ๐Ÿฝ

Sharp Brothers Outdoor still has their paddle board raffle going on. ๐ŸŒŠ $20 for a chance to win TWO paddle boards!Money r...
10/01/2025

Sharp Brothers Outdoor still has their paddle board raffle going on. ๐ŸŒŠ

$20 for a chance to win TWO paddle boards!

Money raised will be spent taking youth and first timers hunting. The Sharp Brotherโ€™s have also graciously decided to donate a portion to Willa. Spots can purchased with cash or through Venmo.

๐Ÿ–ค๐Ÿงกโ€”๐™ท๐š’๐š•๐š•๐šœ๐š‹๐š˜๐š›๐š˜, ๐™ธ๐™ปโ€”๐Ÿงก๐Ÿ–ค๐™ฐ ๐šœ๐š–๐šŠ๐š•๐š• ๐š๐š˜๐š ๐š— ๐š ๐š’๐š๐š‘ ๐š๐š‘๐šŽ ๐š–๐š˜๐šœ๐š ๐šœ๐šž๐š™๐š™๐š˜๐š›๐š๐š’๐šŸ๐šŽ ๐šŒ๐š˜๐š–๐š–๐šž๐š—๐š’๐š๐šข.In June, Reid Cerutti messaged Ty & I asking if he co...
09/29/2025

๐Ÿ–ค๐Ÿงกโ€”๐™ท๐š’๐š•๐š•๐šœ๐š‹๐š˜๐š›๐š˜, ๐™ธ๐™ปโ€”๐Ÿงก๐Ÿ–ค

๐™ฐ ๐šœ๐š–๐šŠ๐š•๐š• ๐š๐š˜๐š ๐š— ๐š ๐š’๐š๐š‘ ๐š๐š‘๐šŽ ๐š–๐š˜๐šœ๐š ๐šœ๐šž๐š™๐š™๐š˜๐š›๐š๐š’๐šŸ๐šŽ ๐šŒ๐š˜๐š–๐š–๐šž๐š—๐š’๐š๐šข.

In June, Reid Cerutti messaged Ty & I asking if he could put together a baseball benefit for Willa. With excitement, we accepted. Since then, we have been counting down the days!!

Although this may have been โ€œjust another baseball tournamentโ€ to some, it was the most unforgettable, heartwarming baseball tournament to us.
Reid poured his heart & soul into every little detail of this tournament/benefit. The teams, the coaches, the umps, the fans, the volunteers, the medals, the rings, the raffles, the silent auction- everything was perfect.

Reid was the man behind everything but there is also an endless list of people to thank. Thank you to everyone who came, helped and made it all possible.

Love Macey, Ty & Willa ๐Ÿ’›๐ŸŽ—๏ธโšพ๏ธ

Thank you for all the prayers! Willaโ€™s MRI looked the same as before- showing no regrowth! ๐Ÿ‘๐ŸผWe will do it all again in ...
09/27/2025

Thank you for all the prayers! Willaโ€™s MRI looked the same as before- showing no regrowth! ๐Ÿ‘๐Ÿผ

We will do it all again in December, hoping for shrinkage at that time!! ๐Ÿคž๐Ÿผ๐Ÿ’›๐ŸŽ—๏ธ

Willaโ€™s Homerun benefit - tournament is this weekend!! Come out to the sports complex in Hillsboro for some fun and base...
09/24/2025

Willaโ€™s Homerun benefit - tournament is this weekend!! Come out to the sports complex in Hillsboro for some fun and baseball! โšพ๏ธ๐Ÿ’›๐ŸŽ—๏ธ

Silent auction & raffle will close Sunday at noon. *You do not need to be present to win.*

Saturday, September 27
Sunday, September 28

I pray for guidance and protection for my daughter and our family. I pray for strength and peace to face whatever result...
09/23/2025

I pray for guidance and protection for my daughter and our family.

I pray for strength and peace to face whatever results we receive.

I pray the doctors be blessed with wisdom as they read my daughterโ€™s results.

I pray the results are positive and reassuring.

I pray for my daughter to live a long, healthy life.

Tomorrow we will be headed to STL for Willaโ€™s first big MRI since tumor removal and radiation. Please say all the prayers and send all the good vibes. ๐Ÿ’›๐ŸŽ—๏ธ

As we were leaving Macโ€™s Diner tonight this little straw wrapper stopped me in my tracks. Look at that ribbon. ๐ŸŽ—๏ธ I just know it was a sign from our guardian angels. ๐Ÿชฝ

I donโ€™t know where to begin. Thank you all so incredibly much for everything that you did to make Warrior Willa Yard to ...
08/25/2025

I donโ€™t know where to begin. Thank you all so incredibly much for everything that you did to make Warrior Willa Yard to Yard Competition and Benefit so successful!! To the businesses, families and individuals that donated items for the silent & live auction- thank you!! Thank you to the Moose. We have been blessed to live in such a supportive community. I truly cannot thank everyone enough for everything they have done.

My biggest thank you is- thank you for loving our girl. Willa is a warrior. She is one of a kind, sweet then spicy, baby loving queen! In a month we will be back at Childrenโ€™s in STL for Willaโ€™s first set of big scans since treatment. Lets say big prayers that the scans show Willa is cancer free!! ๐Ÿฉท๐ŸŽ—๏ธ

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