02/28/2026
Just one week after he was born, Miles’ life changed because of a routine newborn screening. Though he appeared healthy and strong, testing revealed SCID, a rare condition that prevents the immune system from working properly.
Miles was referred to Texas Children’s, where specialists guided him through a cord blood transplant. “We are extremely blessed to have Dr. Martinez and Roseen Salman at Texas Children’s—they have been a Godsend to our family,” says Miles’ mom, Ellis.
The journey was overwhelming, but the support of their care team and community helped Miles’ family through every step.
“Don’t refuse the newborn screening,” Ellis says. “It could save your baby’s life.”
We’re honored to share Miles’ story in recognition of Rare Disease Day, highlighting the power of early detection and expert care for families facing rare conditions. ❤️