05/22/2026
I posted something this AM that I thought would be a trigger alert.
So I waited.
Nothing.
Seem fb wouldn't link to it. Just send readers to messenger.
So here is is, straight away, not via linkedin.
+++
Second Opinions:
When advocacy, fear, hope, and misinformation begin to blur
I believe second opinions can save lives.
In fact, they saved mine.
But lately, I’ve been wrestling with a more difficult question — one that feels uncomfortable to even ask.
At what point does seeking another opinion become searching for the answer we most want to hear?
Bear with me, because this is a sensitive conversation.
I am a strong believer in second opinions when it comes to medical care. In some situations, they are not just valuable — they are essential. Too many women, especially those with rare or aggressive cancers, are dismissed, minimized, or told there are no meaningful options left when there may still be expertise elsewhere.
I often compare it to hiring a contractor for a kitchen remodel. You probably wouldn’t go with the very first estimate without hearing other perspectives. That may sound like a crass comparison when talking about cancer, but when you are facing a rare disease, one doctor’s opinion may not represent the full spectrum of what is possible.
For some of us, second opinions can be lifesaving.
In my own case, I spoke with nearly five teams before I found the right one — people who truly understood the complexity of triple-negative inflammatory breast cancer. If I had listened to the first team, I honestly do not believe I would be alive today. They wanted to offer only a few rounds of chemotherapy and begin preparing me for hospice. I was told I was too far gone.
Eighteen years later, I am still here.
I owe that, in part, to continuing to ask questions and refusing to stop at the first opinion.
Because of that experience, I frequently encourage women to seek second opinions, especially when facing a rare cancer diagnosis. But lately, I’ve noticed something that feels more complicated, and I think we need to be honest enough to talk about it.
Sometimes, I worry that fear can slowly shift the goal from gathering information to finding reassurance for a decision we already hope to make.
It may begin with understandable concerns: fear of side effects, fear of losing quality of life, fear of aggressive treatment, or simply exhaustion from the emotional weight of cancer itself. None of that makes someone weak. These decisions are deeply personal, and cancer treatment is rarely black and white.
But eventually, if we continue searching long enough, we may find someone willing to tell us what feels safer, less frightening, or more manageable — even when it may not reflect the current standard of care.
And in today’s social media landscape, those stories can spread quickly.
A personal experience can become a powerful influence. A survivor story is compelling, especially when someone appears to succeed by rejecting conventional recommendations. But individual outcomes are not the same as medical evidence, and what works — or appears to work — for one person may carry devastating consequences for another.
That is what makes these conversations so delicate.
Because while medicine is imperfect and patients absolutely deserve autonomy, there are also people and institutions willing to profit from fear, desperation, and distrust. Some offer hope without scientific validation. Others present themselves as revolutionary while discouraging evidence-based care altogether.
And I say this carefully, because I am not blindly defending the medical establishment. Traditional medicine has failed many patients at times, particularly those with rare diseases. I know that personally. But there is also a difference between thoughtful medical innovation and abandoning evidence altogether.
This is where the conversation becomes uncomfortable.
There is a fine line between advocating for yourself and filtering out realities we do not want to hear — especially when fear and hope are both involved. And when you are terrified, overwhelmed, and desperate to preserve some sense of control, of course the less frightening path can feel appealing. Any of us could understand that impulse.
But I do think these are hard questions worth asking.
Are we seeking another opinion to become more informed?
Or are we hoping someone will validate the answer we already want?
And how do we navigate that slippery slope while still honoring patient autonomy, hope, legitimate medical nuance, and the very real need for second opinions?
