CJ’s Journey and CHD Awareness

03/31/2026

Everything went well. The fluid in his ears is gone. So no tubes. Hearing test he passed. Echo went fine. They did do the lip tie. Said it was very thick and short. Which made his lip tight. And his other procedure went perfectly. Now ill just watch him sleep til hes ready for snugs.
🫶🏽Tina

03/31/2026

Dont be fooled by the tears, he is an angry little guy rn. He is definitely tougher than his cry baby mama. He is having 2 possibly 3 very simple yet very needed things done. And 2 exams that he needs to be asleep for. Longest part will be the sedation. Most likely waking up because he loves his sleep.

Please send prayers or good thoughts to him and his surgeons. And his sweet nurses for dealing with grumpy gills.

03/30/2026

Heyyyyyy everyone
Favorite Aunty Lysi 😅🤣
CJ has a couple procedures where he needs to be sedated this week
As you know its not always the safest especially someone with heart problems so Tina and the fam need to go to Utah for all of them
With gas prices going up its a little expensive. Financially hard ya know? If anyone would like to help out with gas that would be awesome!
If not just some prayers and well wishes for the little stinker 🥰

ALSO Tinas birthday is tomorrow!! Make sure to wish her a happy birthday. Birthdays in the hospital suck but ya know she doing her mom thang and taking care of CJ. Hes in the best hands with her!!

02/12/2026

Stable’ gets celebrated.
But in CHD, it means closely watched.
Not cured.
Never ignored!

02/12/2026

CJ update.

He loves his food. There is nothing he doesn't eat.

He is slightly speech delayed. Turns out he hears as if he is under water. They suspect fluid in the ears even though he has never had an ear infection. He has signs. After 3 hearing test, 1st was perfect, 2nd slightly not perfect, 3rd not looking good.
He does go back for another test in Utah end of March. And we will hopefully make a plan.

As of right now, we are working on ASL for communication and being very loud and exaggerated when talking to him.

02/04/2026