PF Warriors - Pulmonary Fibrosis, IPF, other Rare Lung Diseases

11/27/2025

This Thanksgiving, we are thankful for you!

Our community is made up of people facing PF with strength, hope, and honesty every single day. You show up for one another in big and small ways, and that spirit carries all of us.

If you live with PF, care for a loved one, support a friend, or remember someone who shaped your life, you are part of what makes PF Warriors special. Your courage, questions, stories, and support create a space where no one has to feel alone.

We hold deep gratitude for this community and for the way you lift each other up.
You are the ❤️💙 at the center of everything we do.

11/26/2025

The American Thoracic Society Public Advisory Roundtable (PAR) held its fall planning meeting recently. During the meeting, the group discussed important updates, outlined future talks and listening sessions, and planned for PAR's 25th anniversary, which will be celebrated in May 2026!

We spy with our little eye, Chief Executive Warrior, Teresa Barnes. Look third from the left, standing!

11/25/2025

“Home monitoring is not just about collecting numbers. It is about helping patients notice changes, feel prepared, and take a more active role in managing their health. At PF Warriors, we believe that education, support, and shared experience help patients and caregivers use these tools in ways that are both practical and empowering." - Dolly Kervitsky, RCP, CCRC, CNP and President, PF Warriors

We are sharing an interesting study looking at whether people living with IPF and other forms of interstitial lung disease could use simple home tools, such as handheld home spirometers and oximeters, to track their breathing and oxygen levels from home. This was a single-center study, and most participants were able to use the devices successfully over several months. Many said that being able to monitor their own numbers helped them feel more informed, more confident, and more engaged in their care.

Some participants faced challenges, especially those with hand stiffness or reduced finger circulation (often caused by Raynaud’s, which makes fingers cold or painful and can interfere with fingertip oxygen readings). This reminds us that not every tool works the same for every person, and supportive guidance, caregiver involvement, and peer help can make a meaningful difference.

https://rdcu.be/eQV9e

11/24/2025

We’re excited to share the third of three PF Warrior stories featured in the American Thoracic Society’s Patient Voices series.

This week, meet Yvonne, one of our amazing PF Warriors who spoke from the heart about becoming proactive with her care.

Her story shares how her path to diagnosis is intricate and started in 2010.

Help us spread PF Patient Voices and SHARE this video so more can learn and understand about pulmonary fibrosis!

Yvonne Chamberlain from PF Warriors shares her story as a patient with the ATS at the 2025 ATS International Conference. Learn more and hear other patient st...

11/20/2025

"What a pleasure to attend and present at the 𝟮𝟰𝘁𝗵 𝗕𝗶𝗼𝗣𝗵𝗮𝗿𝗺𝗮 𝗖𝗹𝗶𝗻𝗶𝗰𝗮𝗹 𝗧𝗿𝗶𝗮𝗹𝘀 𝗡𝗲𝘅𝘂𝘀 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 with Brittany Davis, Senior Director of Advocacy and Insights at Avalyn Pharma.

We teamed up to present 'Collaborating with Advocacy Groups to Enhance Trial Access and Awareness.' I was truly impressed by the focus on the value of patients and care partners throughout the conference." - Dolly Kervitsky

{Photo credit: Nexus Conference}

11/18/2025

We’re excited to share the second of three PF Warrior stories featured in the American Thoracic Society’s Patient Voices series.

This week, meet Maryluz, one of our amazing PF Warriors who spoke from the heart about being a physican and a patient with pulmonary fibrosis. Her story shares how she felt the need to help empower and educate patients and caregivers.

Help us spread PF Patient Voices and SHARE this video so more can learn and understand about pulmonary fibrosis!

Maryluz Fuentes, MD, MSPH, from PF Warriors shares her story as a patient with the ATS at the 2025 ATS International Conference. Learn more and hear other pa...

11/17/2025

Join us for our monthly PF Warriors open question and answer meeting.

🗓️ Date: Thursday, November 20, 2025
🕙 Time: 10:00 am Central Time (US)

Register NOW! https://bit.ly/W2WNOV2025 to save your seat!

This monthly session is led by patients and caregivers. Ask questions and learn more about living with pulmonary fibrosis (PF).

11/15/2025

It’s been amazing to connect and collaborate with other groups committed to helping and improving the lives of patients and families impacted by pulmonary fibrosis!

Representing from L to R:
✅Sharon Lee of the Canadian Pulmonary Fibrosis Foundation
✅Jennifer Bulandr of PF Warriors
✅Steve Jones of Action for Pulmonary Fibrosis
✅Jessica Shore of Pulmonary Fibrosis Foundation

11/14/2025

Day Two of PFF Summit is starting strong!

Last night we enjoyed the Poster Presentation, where we presented two posters.

Lastly, Theresa is meeting so many people who are impacted by PF. Lots of understanding, some laughs, and shared experiences are going on for sure!

11/13/2025

We are here at the PFF Summit and excited to share with you our journey. Currently, we are attending a session called Beyond the Scars with Bernie Williams, former New York Yankees and Grammy nominee, as well as patients Tim and Vickie. All shared their stories which were powerful.

11/11/2025

11/10/2025

We’re excited to share the first of three PF Warrior stories featured in the American Thoracic Society’s Patient Voices series.

This week, meet Theresa, one of our amazing PF Warriors who spoke from the heart about life with pulmonary fibrosis. Her story offers a clear reminder of courage, hope, and the strength found in community.

We are grateful for Theresa and the way she represented PF Warriors at ATS while sharing her story about living her best life with lung disease.

Help us spread PF Patient Voices and SHARE this video so more can learn and understand about pulmonary fibrosis!

Theresa Genovese from PF Warriors shares her story as a patient with the ATS at the 2025 ATS International Conference. Learn more and hear other patient stor...