That Medical Mom

That Medical Mom Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from That Medical Mom, Disability service, Isle of Palms, SC.

Thank you for the messages, the phone calls, the cards… the love. 🤍Birthdays in the caregiving space can be complicated ...
04/25/2026

Thank you for the messages, the phone calls, the cards… the love. 🤍
Birthdays in the caregiving space can be complicated to day the least.
There’s no pause button. No day off. No clean break from the responsibility. Sometimes it’s celebrating in between medications, appointments, and whatever the day requires of you.
So when people go out of their way to celebrate you anyway and to see you in the middle of it all,
it means more than I can fully put into words.
And I am allowing myself to receive it. The love. The effort. The intention.
And that’s what Chapter 41 is about for me...
Learning how to receive.
Allowing myself to be held.
Stepping into abundance without guilt.
Because for so long, I’ve been the one pouring, holding, carrying. And somewhere along the way, I forgot that I’m allowed to be held too.
So thank you for reminding me.
Thank you for showing up for me.
I am learning that this kind of love is exactly what I deserve. 🤍

Part of my birthday celebration looked like this… 🥹🖤A private, intimate showing of Dragons Love Tacos at the with some ...
04/24/2026

Part of my birthday celebration looked like this… 🥹🖤
A private, intimate showing of Dragons Love Tacos at the with some of our rare disease and disability community families and it was everything.
It was laughter. It was joy. It was kids being fully themselves.
No stares.
No judgment.
No explaining.
Just freedom to be excited, to make noise, to move, to experience something magical together.
Watching these families enjoy a moment like that safely, comfortably, and in community is something I will never take for granted. It was so special.
We had the BEST time. Truly.
And if you’re planning to see Dragons Love Tacos, just know, you are in for a treat 🐉🌮✨

The best part about MUSC being in Charleston… when everything starts to feel a little too heavy, we can sneak away to Ev...
04/22/2026

The best part about MUSC being in Charleston… when everything starts to feel a little too heavy, we can sneak away to Evely’s happy place 🌊☀️
Where the beeping slows down, the tension softens, and for a moment… she just gets to be a kid.
And I get to breathe too 🤍

04/14/2026

Have you ever waited a decade for a diagnosis for your child and then finally get it, and as you research and learn, it validates every single fear and concern you’ve ever had?
Like, every. Single. One.
And then your mind starts replaying all the moments…the conversations…the times you spoke up and said, “something isn’t right.”
And instead of being met with support, you were met with…
“You’re overthinking.”
“You’re doing too much.”
“You’re worrying for no reason.”
Or worse... you're met silence. Distance. Absence.
People who made you feel like what you were seeing… what you were feeling… wasn’t real.
And now here you are.
With proof.
And the part that’s hard to explain is
it’s not even about being “right.”
It’s the grief.
The grief of knowing you were carrying something heavy alone while being made to feel like you were the problem.
The grief of realizing how many people chose comfort over showing up.
Because it was easier to dismiss you than to stand in the reality with you.
Parenting a medically complex child is layered in ways people don’t see.
You fight systems.
You fight for care.
And sometimes… you fight to be believed.
And along the way, you lose people because the truth required more from them than they were willing to give.
And if I’m being honest…
these are the moments where the anger and resentment bubbles up.
Because even though I have the diagnosis now…
I always knew.
No? Just me?

04/12/2026

Another surgery in the morning.
No matter how many times we do this, handing your child over to surgeons never gets easier.
There’s no such thing as a “minor” procedure when it's your baby.
If you pray, believe, or simply hold space, we’ll take all the love, peace, and healing you can send our way tonight. 🤍

04/05/2026

Before we have the diagnosis talk…
I have asked them what they’d want to know.
Preparing their hearts…
while still learning how to hold mine. 🤍

04/02/2026

I’m not ready to talk about it just yet, but after 10 years… I finally received a diagnosis for Evely’s genetic condition.
There are a lot of emotions wrapped up in this, and I’m still processing it all.
We’re scheduled for a conference this afternoon with her medical team to talk through what this means for her future… and I’m just taking it one moment at a time.
If you could keep us in your prayers during this time, I would truly appreciate it. 🤍
Thank you in advance to those who hold us in your sacred moments.

03/24/2026

82 days in of daily procedures.
Before we begin,
we breathe.
we hold each other.
and then we do the hard thing. 🤍

02/26/2026

Something I grieve quietly?
Gift shopping.
There is joy in finding what she’ll love.
And there is an ache in being reminded how different her path is.
Both can be true.
If you feel safe sharing... what is something you grieve quietly? 🤍

08/07/2024

This Friday at Modern Cigar

Come vibe with us tonight at a Modern Cigar of Greenville from 8pm-11pm. Sip. Smoke. Relax.
06/21/2024

Come vibe with us tonight at a Modern Cigar of Greenville from 8pm-11pm. Sip. Smoke. Relax.

Come chill with us on Friday.
06/17/2024

Come chill with us on Friday.

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Isle Of Palms, SC
29451

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