Cooper’s Crew

23/04/2026

21/04/2026

I never thought I would do this, but I need help with Cooper. The expenses are adding up and after all this time off for ER trips, and surgeries we desperately need help.

I’ve had many people ask me how they can help, or what they can do, well this is it. I created an Amazon wishlist; I will also be sharing my Venmo and Cashapp.

Cooper needs size 7 diapers. Any brand is fine, just not Luv’s. We also need milk, and baby food such as ge**er meals, and soft foods like Mac and cheese, crackers, potatoes, etc. These are not on the wishlist, if you are wanting to help get these please use Venmo, cashapp, or message me.

Cooper needs educational books to help her learn to speak. We read to her daily so I’ve added lots of books.

She needs soft, and sensory toys. The girl just had brain surgery so nothing that lights up, some noise like rattling is okay but music is best to be avoided.

She needs summer clothes in 24 months or 2T. We added some to the wishlist but if you have hand me downs we will always take it.

Overall, we really just need help with the basic things. We have the medical equipment and everything we need medically for her just not the everyday needs. The costs have been drastic.

I hate asking for help but please do if you can.
Life got hard fast, and we need our crew.

Feel free to share this post, help if you can, and anything is appreciated.

Check out this Gift List I just created. https://www.amazon.com/registries/gl/guest-view/2STEBD6C7KW8A?ref_=cm_sw_r_apin_ggr-subnav-share_SZV08PCYAZM0VK8P541M&language=en-US

17/04/2026

Today was a long one.

We went to Children’s Mercy - Kansas. We met with Dr. Bansal, her new epileptologist (a fancy word for epilepsy doctor). He did a lot of things today.

We discussed surgery, and how well she has been doing since hers. He is still worried that she is still seizing and wants to do an MRI to make sure that the surgery was completed properly. He also said that her seizures could be caused by her lack of sleep so we made some other decisions.

He changed meds. He took her off of stirpentol and put her on Fintepla. He also took her off of her zonasimide and put her on trazedone to help her sleep.

He tweaked her VNS a little bit. But only on her day time settings because that is when she seizes the most.

Her put her in the druvet clinic for next week. She will see a nutritionist, a pharmacist, and a sleep specialist.

We are finally getting the care she needs and she is slowly progressing after surgery. She stood up on her own and she is slowly starting to eat regularly again.

Cooper is doing the best she can with what life handed her.

Until next time,
Cooper’s Crew

12/04/2026

We are headed home.
Doctors have cleared us.

Cooper is doing good.
Just very sleepy, and sensitive to the world.
She did take a bottle, and is eating on her own!

More updates to come but for now, we are going to sleep in our own bed.

Until next time,
Cooper’s Crew

11/04/2026

Cooper is doing good today. She’s in some pain, but nothing too bad.

We’ve woken up several times. We are slowly starting to act like ourself but mostly just sleepy.

We are getting moved out of the ICU and into a regular room today.

Neurosurgery says she’s progressing well, so keep the prayers coming. She still has a ways to go.

10/04/2026

She is resting now.
Surgery went great.
She is showing all positive signs.

Thank you to all who are praying for her and sending good vibes.

Cooper is our trooper 🫶🏻

Until next time,
Cooper’s Crew

10/04/2026

Surgery is done. She is in recovery. We will get to see her soon.

We will update more when we see her.

10/04/2026

They are starting to close.
Cooper is doing great.

Will let you know when we get to see her and she’s in recovery.

10/04/2026

Dr. Kaufman started the surgery about half an hour ago. Cooper is doing great, she is tolerating both anesthesia and the procedure very well.

More updates soon.

10/04/2026

And she’s off to surgery.

We will continue to keep you posted as we know more.
I prayed with her before she left, it’s in God’s hands now.

10/04/2026

Checked in at same day surgery.

Waiting on nurses for the pre-op exam and questions.

10/04/2026

Just checked into the Ronald McDonald House by Children’s Mercy.

Big surgery day is tomorrow.

We will post with updates as we have them.
Thoughts, prayers, and messages are accepted and much appreciated.

Until next time,
Cooper’s Crew