02/28/2026
👏🏻 🎉 I am thrilled with the announcement from RFK that the FDA is releasing and reorganizing access to some of the peptides and hopefully more…
I have been on my own health journey for two years now, working on my health and strength. It is all of our duty to research and seek all possibilities when faced with challenges- it is not in me to lay down and just trust the system. The research I have done as well as being shoved into a health system that works for profit off of people’s illnesses has opened my eyes to levels of systems that are literally designed to keep you in the loop.
I am thankful for science BUT if more people understood how much has been withheld and manipulated within the industry- there should be pitchforks and torches, and holding people accountable. I will stop there because this is supposed to be a celebration post 🙃
I want you to remember that as a 🇺🇸 US citizen you have an obligation to speak out against things that are important to you- use your voice! I wrote and sent this letter to the White House when RFK was in stated to make America healthy again. Healthcare is non-partisan issue and is personal for me.
Here is the copy of what I submitted to the White House:
Dear Mr. Robert Kennedy,
Thank you for taking the time to take this letter at its word, I will try to condense my words to bring it to point. I have a genetic condition called Polycycstic kidney disease (PKD), which has been passed down through my father's line generationally (he is deceased). I am a divorced mom of two girls, who is currently on dialysis twice a week- but I am healthy from any other issues. My income has been reduced to part time to support my medical care. If I want to qualify for disability I would have to quit working and disability only covers about 1/3 of my income. Medicaid is currently covering me but because I cannot afford it, the National Kidney Foundation is bridging the gap of things not covered as well as co-pays. As a single mom it is not in my budget to afford coverage from the marketplace either. That whole system is a joke! Our current system does not reward the people that are working, only the people that do not work. The health/welfare programs it seems are designed to only help those who are dependent, not the people who are trying to be a participant in the work force, this continues the cycle of dependency. We should be helping the people that help themselves or create systems that people are required to level up to qualify for continued assistance, and then wean them off.
My stance on the current medical system is I believe the FDA or other organizations are blocking new technology and medications in order to keep people dependent on the money-making business of dialysis. I am requesting the release of certain peptides/amino acids and non-pharmaceutical medications that can help heal or prolong kidney function, such as BPC-157 and TB-500. BPC is shown to help soft tissue heal and TB is to support cardiovascular health, both of which are life-changing for people who must do dialysis, as it helps repair the damage in the body.
I have no doubt that there are many other medications the public is unaware of because of the conflict from profit based businesses. The American people have been made sick from the chemicals/hormones in our food sources and are being then forced into pharmaceuticals to 'fix' them, which make them dependent and sicker instead of well. I believe the Federal government/agencies should also be held accountable for limiting our knowledge and access, as well as the media who has also been bought out as well as the 'science'. It seems fairly apparent that the science is only being funded to support certain narratives that only benefit big pharma business. We can see lack of support/published studies for natural supplements and alternative medicines within the medical field.
I am also requesting the expedition of technology that has been withheld as well- mainly the technology of organ replacement and new techniques in blood cleaning, as well as potentially the organs grown in genetically modified pigs and CRISPR technology, or 3d printed organs. My immediate concern is the limitations for kidney donation, as the current waitlist for cadaver is up to 8 years. This poses a potential problem for people that are relatively healthy to develop other issues related to dialysis. The anti-rejection medications currently in use also run the risk of numerous types of cancers from extended use. This is a disturbing reality for people already struggling with the trauma of transplant- many of the medicine side effects are offering a bleak future.
Another looming crisis is the Co-vid vaccinations still being forced onto transplant listed people, they are withholding services if you use your God-given sovereignty, and denying because of protocols in place. I made the decision to not vaccinate due to untested results on people with my condition- I did not want to chose something that might cause future issues unseen. But now I potentially face being listed as non-compliant if I refuse. In turn I also do not want to take an organ that has been vaccinated, this is why the possibility of using a pig kidney or better yet an organ grown with my own stem cells would be the best possibility.
They have isolated the gene in which the PKD mutation occurs, I believe there is science that could make this come true. I also am lead to believe since they have isolated the gene, they could insert a genetic disruption to block the very genetic structures through CRISPR technology, in which causes this disease. The current amino acid they have created is currently too long to insert at a cellular level, but I believe it’s close. This particular treatment has been shown to not only slow the growth but also in some cases cause the cysts to reduce and shrink. The cyst growth is what forces the kidney to expand and blocks blood flow, thereby forcing a nephrectomy and transplant.
There is a current medicine as well which was released to supposedly slow the cyst growth, but this doesn't help me at the point I am now, however it risks damaging the liver. This is only a potential help for my children who may or may not be diagnosed in the future.
So you see my request is not just for me but rather the hope I have for my children that they will not suffer the same as I in waiting for a transplant. My children also understand the reality that they may choose to not have children because of wanting to end this genetic defect. It makes me incredibly sad to think they bear the weight of this decision, as well as missing out the joy it brings.
Please help my quest in putting pressure to release new science and technology that supports life for those of us that didn't choose this path of genetic defect.
Please hold accountable the people that have knowingly withheld cures and treatments in order to profit from our illnesses.
God bless and thank you,
Rachel Love, TX
