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The Association for Frontotemporal Degeneration

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King of Prussia, PA
The Association for Frontotemporal Degeneration

AFTD envisions a world with compassionate care, effective support, and a future free of FTD.

AFTD is a 501 (c) (3) nonprofit, and our work is community-driven. Support our mission here: https://www.classy.org/give/381228/ #!/donation/checkout

12/18/2025

Save the date for The 2026 AFTD Education Conference!

📅 April 30 – May 1
📍 Seattle, WA + Virtual via Zoom

This annual gathering brings together people diagnosed with FTD, care partners, families, healthcare professionals, and researchers to connect, learn, and engage with the latest in FTD care, research, and advocacy.

👉 Sign up to be notified when registration opens in February: https://bit.ly/4qaHDb5

12/17/2025

AFTD’s Shana Dodge presented on AFTD’s Multi-Sponsor Industry Advisory Panel Pilot at the 2025 National Organization for Rare Disorders, Inc. (NORD) Breakthrough Summit.

The pilot brought together industry sponsors and people with lived experience to address barriers to research participation.

➡️ Click here to learn more: https://bit.ly/4afGfzn

12/16/2025

Did you know that about 60% of people diagnosed with FTD have no known family history of the disease❓

In this video, AFTD's Kim Jenny explains how FTD can sometimes arise spontaneously through what's called a de novo variant, a genetic change that occurs for the first time in an individual and can be passed to future generations.

Speaking with a genetic counselor is important. They can help you understand whether your family's FTD diagnosis may have a genetic cause. Even more important, they can help you explore opportunities to participate in vital research.

🧬 Click the link to learn more: https://bit.ly/4afpswl

12/15/2025

Small moments can mean everything when navigating FTD.

Through AFTD’s Comstock Grants, families like Jennifer and Jim have been able to reconnect with meaningful activities, create lasting memories, and access vital respite support.

❤️ You can help people living with FTD like Jennifer and Jim with a year-end gift: https://bit.ly/3JFdxwK

12/14/2025

Communication may change with primary progressive aphasia (PPA), but connections can remain strong.

Whether you’re in the early days of shifting conversations or navigating the later stages, small, intentional approaches can help preserve dignity and closeness.

👉 For more tips and community support, join an AFTD support group today: https://bit.ly/4rZ1KLh

12/13/2025

Sometimes the most meaningful holiday moments are the quiet ones: a gentle pause, a shared smile, a memory that brings comfort. ❤️

Wherever you are in your FTD journey, please remember: you don't have to navigate it alone.

👉 Support, guidance, and understanding are just a call or email away at 1-866-507-7222 or info@theaftd.org

12/12/2025

Meet our newest AFTD Ambassadors, Carin Hawkins (MD) and Randee Steffen (MO).

Their passion, advocacy, and personal connection to FTD help bring vital resources and awareness to communities nationwide.

👉 Click here to learn more about their stories: https://bit.ly/3KWye87

12/11/2025

These are photos of AFTD advocates who secured proclamations and resolutions recognizing FTD in their communities this year. ❤️

Their dedication helps bring earlier diagnosis, better support, and increased awareness to families across the country. You can be part of this change, too.

✍️ Sign up for AFTD’s Action Center to receive alerts, tools, and simple steps to advocate in your state: https://bit.ly/4rRzjia

12/10/2025

AFTD CEO Susan L-J Dickinson recently joined hosts Heather Mulder and Janice Greenough on the Dementia Untangled podcast to discuss FTD, sharing insights about diagnosis challenges, the impact on families, and the vital role of community support.

👉 Learn more: https://bit.ly/48Dljjb

12/09/2025

AFTD has come a long way since 2002, from launching our HelpLine and Comstock Grants to building research partnerships and national advocacy efforts. ❤️

Swipe through to see how far we’ve come, and where we’re heading next with our 2025–2028 Strategic Plan: https://bit.ly/48EVb7K

12/08/2025

In this clip from our 2025 Education Conference, AFTD’s Shana Dodge shares how global research efforts, new gene discoveries, and emerging biomarkers are shaping the future of FTD research and driving hope forward.

Click the link to watch the full FTD 101 session to learn more about where research is headed and how progress is being made: https://bit.ly/4nvvAn9

12/07/2025

Sharing an FTD diagnosis with family can feel overwhelming, especially during the holidays.

This week’s Help & Hope article offers guidance, practical steps, and resources to support meaningful conversations with loved ones, including children and teens.

📌 Learn more: https://bit.ly/48lXv4B

Address

2700 Horizon Drive, Suite 120
King Of Prussia, PA
19406

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+18665077222

Website

http://www.theaftd.org/

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