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The Association for Frontotemporal Degeneration

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King of Prussia, PA
The Association for Frontotemporal Degeneration

AFTD envisions a world with compassionate care, effective support, and a future free of FTD.

AFTD is a 501 (c) (3) nonprofit, and our work is community-driven. Support our mission here: https://www.classy.org/give/381228/ #!/donation/checkout

03/16/2026

A note from us and The Association for Frontotemporal Degeneration ⬇️

03/15/2026

After losing his father and brother to FTD and seeing the disease affect other members of his family, Mike Brucklier has turned to marathon running as a way to support research and raise awareness.

Since 2023, he has run two marathons for AFTD and, with support from his workplace and community, has raised about $41,000 for AFTD’s mission.

👟 Read now: https://bit.ly/40wyrmG

03/14/2026

🎨 FTD in the Arts is returning to the AFTD 2026 Education Conference.

We invite people diagnosed, care partners, caregivers, and families to share their creativity and perspective through art. Paintings, photography, poetry, music, textiles, and more are welcome.

Take a look at some of last year’s entries, and feel free to submit your own by March 26: https://bit.ly/4sM19fv

03/11/2026

FTD is a devastating disease that impacts thousands of families.

🧠 It’s the most common dementia for people under 60.
⏳ The average time to diagnosis is 3.6 years.
💰 The annual cost of FTD care is double that of Alzheimer’s.

FTD has no cure, no FDA-approved treatment, and takes an immense toll on families. Raising awareness is the first step toward change.

👉 Learn more: https://bit.ly/3P0dOwF

03/10/2026

This past weekend, AFTD Ambassador Julie Pierrat and other local families took on the Los Angeles Marathon and raised more than $10,000 in support of AFTD’s mission. 👟❤️

Every mile ran is inspiring progress in awareness, research, and support for individuals and families facing frontotemporal degeneration. Thank you to all the runners!

03/09/2026

The AFTD Education Conference offers trusted education, meaningful connections, and practical support for people impacted by FTD.

Because of donor support, this conference is free and accessible — allowing people to participate in person or virtually, wherever they are in their FTD journey.

❤️ Support the 2026 Education Conference today: https://bit.ly/4aB8x6X

03/08/2026

Today, on International Women’s Day, we recognize women living with FTD who are helping strengthen the FTD community.

Members of AFTD’s Persons with FTD Advisory Council share their lived experience to advance awareness, guide programs, and support others navigating FTD. We’re grateful for their leadership and advocacy.

❤️ Learn more about these remarkable advocates: https://bit.ly/4rWzbOb

03/07/2026

❤️ 100 support groups and growing.

This milestone means more individuals and families facing frontotemporal degeneration have a place to connect, share experiences, and find support.

AFTD offers local, regional, and national support groups, so whether you are a person living with FTD, a care partner, or a family member, there is a community ready to welcome you.

Join today: https://bit.ly/4bwYQWL

03/06/2026

At AFTD’s 2025 Education Conference, Katie Brandt shared her concept of the “caregiver mind,” a powerful way to understand the complexity of caring for someone with FTD and the importance of asking for support.

➡️ Read now: https://bit.ly/4r9v0Nq

03/05/2026

At AFTD’s 2026 Education Conference, we’re honored to feature keynote speaker Susan Dickinson, AFTD’s CEO, alongside leading researchers, healthcare professionals, advocates, and individuals with lived experience.

Join us April 30–May 1 in Seattle or online to explore the latest advances in FTD research, and connect with a community that understands.

🔴 Register now: https://bit.ly/4u2nQ0r

03/04/2026

In a new animated video created with ALLFTD, AFTD explains how collecting cerebrospinal fluid helps researchers better understand frontotemporal degeneration — from identifying biomarkers like tau and TDP-43 to advancing diagnostic tools and potential treatments.

Watch the video to learn what families can expect and why participation in research is so important. 🧠🔬

03/02/2026

How are biomarkers helping diagnose FTD sooner and more accurately?

Find out in AFTD’s next webinar on March 10 at 10 am ET featuring Dr. Charlotte Teunissen and the FTD Disorders Registry.

🔴 Sponsored by AviadoBio
👉 Register now: https://bit.ly/45RGKg5

Address

2700 Horizon Drive, Suite 120
King Of Prussia, PA
19406

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+18665077222

Website

http://www.theaftd.org/

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