The Association for Frontotemporal Degeneration

08/24/2025

Summer’s winding down, but AFTD’s fundraising volunteers are still going strong!

📕 Gina, an author and Speech and Language pathologist, hosted a book signing at Panera Bread for her recently published work, No Fault of His Own.
🚴 Likewise, the Rink family invited loved ones to join them biking around Lake Missaukee to bring awareness to Gail’s FTD diagnosis.

👉 If you feel inspired, AFTD’s Events Department is here to get you started. Email us at fundraising@theaftd.org

08/23/2025

Talk therapy can be a powerful tool for people living with FTD, but it’s not without risks.

In this week’s Help & Hope article, Anne Fargusson, RN and member of AFTD’s Persons with FTD Advisory Council, shares her personal journey with therapy: the challenges, the setbacks, and ultimately the benefits that helped her navigate life with an FTD diagnosis.

🔴 Learn more: https://bit.ly/4fNwg57

08/22/2025

AFTD joined advocates, including Emma Heming Willis, at the California State Capitol as lawmakers recognized FTD Awareness Week for the second year in a row.

We are deeply grateful to Senator Roger Niello, the resolution’s coauthors, and the California State Legislature members for making FTD a priority and amplifying the voices of our community.

Together, we can pave the path forward to ❤️

08/21/2025

“We wanted to create a space where people could come together, share experiences, and feel validated.” – Julia, co-facilitator of AFTD’s Young Adult Support Group

If you’re between the ages of 17–26 and have a parent or loved one diagnosed with FTD, you don’t have to face it alone. This group offers understanding, connection, and a safe space to be heard.

📩 Reach out to AFTD’s HelpLine at 1-866-507-7222 or info@theaftd.org to learn more or sign up.

08/20/2025

Bruce Miller, MD, was a recent guest of the University of Chicago podcast "Big Brains," sharing his experiences observing people with FTD.

He discussed the need for a new way to look at behavioral issues, and the importance of keeping our "social brain" healthy.

🎙️ Learn more: https://bit.ly/4fHVzFD

08/19/2025

You don’t have to be an elite athlete to run with heart. Lauren ran for her father-in-law, who is living with FTD.

Crossing the finish line means more than just miles. It also means love, purpose, and an impact to pave the path forward for others. Whether it’s your first marathon, or your tenth, Honolulu is the perfect place to make it meaningful.

👟 Only 3 spots remain for the AFTD-Team! Email us now at fundraising@theaftd.org

08/19/2025

📣 The Older Americans Reauthorization Act of 2025 would strengthen vital services for older adults, people with disabilities, and family caregivers, including those impacted by FTD.

This legislation reauthorizes key programs through 2030 with increased funding to help families live healthier, more independent lives.

💬 Add your voice today and help protect essential supports for the FTD community.

👉 Visit AFTD’s Advocacy Action Center to take action now: https://bit.ly/4fAgWsj

08/18/2025

A study that includes a number of AFTD grantees and Medical Advisory Council emeritus as authors analyzes over 4,000 proteins to look for potential biomarkers and better understand the biological mechanisms of .

🔬 Learn more: https://bit.ly/3J80DXm

08/17/2025

📄 AFTD's Provider Letter helps you start an informed conversation with healthcare professionals about FTD.

This downloadable resource outlines the symptoms and challenges of FTD and explains how it differs from other conditions. Whether you're seeking a diagnosis or managing ongoing care, this letter can help your voice be heard.

👉 Download the Provider Letter at https://bit.ly/4o4GcL4

Call 866-507-7222 or send an email to info@theaftd.org for answers to your FTD questions. Staffed by social workers, the Helpline can provide more

08/16/2025

🎥 Susan - A Feature Documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream.

Susan worked to change perceptions, eliminate stigma, and help bring to life the reality of her diagnosis. She was an AFTD volunteer and recorded a video for the 2016 AFTD Education Conference.

👉 Click here to watch the documentary now: https://bit.ly/46YFGIE

08/15/2025

Living with FTD comes with challenges, but stigma shouldn't be one of them.

Members of AFTD’s Persons with FTD Advisory Council share honest experiences with stigma and how they choose to respond. Swipe through for insights and tips.

📞 Need support? Contact our HelpLine: 1-866-507-7222 or info@theaftd.org.

08/14/2025

What kind of Food For Thought fundraiser fits your vibe? We encourage hosts to put their own flare on their event.

From chili cook-offs and farmer market stands to ice cream parties and yoga classes. There’s no wrong way to make an event that is personal to you!

📅 Help raise awareness for FTD this Sept 21 to Oct 5.
🥨 Reach out to fundraising@theaftd.org for more info.