The Association for Frontotemporal Degeneration

02/01/2026

When FTD enters a family, creativity can emerge in unexpected ways—both in those diagnosed and their loved ones.

🎨 Meet the artists transforming grief into beauty, finding solace in color, and proving that personhood endures through it all: https://bit.ly/4a2gH6P

01/31/2026

🏀 For the fifth year in a row, AFTD Ambassador Spencer Cline and the Babson College Men’s Basketball team honored the memory of Spencer’s dad, Lawrence T. Cline, by raising FTD awareness during their annual fundraising game on January 17.

❤️ Thank you, Spencer and team, for your incredible dedication and impact.

👉 Interested in starting your own fundraiser? Learn more: https://bit.ly/3ZBJElo

01/30/2026

Caring for someone with FTD can feel isolating, but AFTD’s support groups create a space to connect, share, and feel seen. Whether you’re new to the journey or have been on it for years, you deserve support from people who understand.

❤️ Learn more and find a group near you: https://bit.ly/4sQFlzZ

01/29/2026

A 24-year-old's brain donation could unlock FTD mysteries. Andre Yarham's family chose to turn tragedy into hope—learn how brain donation advances critical dementia research: https://bit.ly/4jXgere

01/28/2026

🧠 What can biomarkers tell us about FTD?

Join AFTD’s Healthcare Professional Webinar on Friday, Feb. 13, exploring how new imaging and blood-based biomarker tools like P-Tau, NFL, and GFAP are shaping the future of dementia diagnosis.

🔴 Earn CME credit.
🔗 Register now: https://bit.ly/45v8N4C

01/27/2026

Natasha Smith, an AFTD volunteer and advocate, shares how her journey with FTD inspired powerful self-portraits and a new purpose: raising awareness and connecting with legislators.

❤️ Hear her story and explore how your voice can make a difference: https://bit.ly/4bjqbNr

01/26/2026

Emma Heming Willis shares how art gives voice to those with FTD and what Bruce's journey has taught her about love: "Your love shifts. It expands and is different but very meaningful."

👉 Read her inspiring story: https://bit.ly/4jVZLn6

Art can reveal the “whole person” that lies beneath their infirmity or grief, said Emma Heming Willis, wife of Bruce Willis, last week. She was featured

01/25/2026

❤️ “With Love gave me a reason to celebrate my father.” – Scott O.

With Love is more than a fundraiser — it’s a way to honor someone you love, raise awareness of FTD, and support families facing this disease.

This February, join Scott and others as they turn love into action. Create a page, share your story, and help bring us closer to a future free of FTD: https://bit.ly/4qzMiEf

01/24/2026

🔍 The FTD diagnostic journey currently averages 3.6 years.

Being Patient Alzheimer's recently highlighted the complexities surrounding FTD diagnosis, shedding light on why so many families face years of uncertainty before receiving accurate answers.

👉 Learn more: https://bit.ly/4r9ZGhZ

01/23/2026

FTD remains difficult to diagnose, with no clinically validated biomarkers and no approved treatments or interventions.

AFTD’s 2025–2028 Strategic Plan outlines how we’re driving change: funding innovative research, empowering clinicians with better tools, and supporting families at every step of the journey.

🔴 Learn more: https://bit.ly/3LV795F

01/22/2026

🧬 Is FTD genetic? In some cases, yes.

The three most common genes associated with FTD are C9orf72, MAPT, and GRN — but there are others, and new discoveries are still being made.

Because symptoms can vary even within the same family, genetic FTD is often missed or misunderstood, even by health professionals. Learn more: https://bit.ly/49QYDwD

01/21/2026

Living with FTD or caring for someone who is? You’re not alone.

Join AFTD’s Jan. 28 webinar to see how we’re collaborating with other orgs focused on related neurodegenerative diseases, advocating for meaningful change — together.

🖊️ Save your spot: https://bit.ly/3Yt4naA