09/07/2025
This week we received some long awaited news on Josh's condition and what caused his kidney failure. After a second blood test, as there was a bit of a snafu with the first one, we have found out that he has Atypical HUS. I attached a link, as we are still wrapping our heads around what it is. The Doctor in Albany is working on finding somewhere closer, as he will be needing infusions, which will eventually be every 8 weeks, but will start off being closer together, possibly every 2 weeks. Thankfully, it will not exclude him from being on the transplant list! The doctors will be having their round table meeting and then we'll see what follows! Prayers appreciated!
Sept. 24 is aHUS Awareness Day, an opportunity to shine a light on this serious kidney disease and the people who are living with it or caring for someone living with it.