Cards or care packages can be sent to Jaygen Graham 3905 Schaad rd Knoxville,TN 37921 Jaygen loves getting mail :)
Amazon Wish List: http://smile.amazon.com/gp/registry/wishlist/2NQIYDTG8F8O4/ref=cm_wl_rlist_go_o? Jaygen was 34 weeks and his doctors say he developed like a 30weeker. Jaygen was born by emergency c-section because he broke my water and we didn't know it. He spent 22 days in the NICU at East Tennessee Children's Hospital. Jaygen has CDG-Type 1A, Autism, Tourrettes syndrome, FTT, Celiac Disease,Gastoparesis,Small bowel Dismoltility, GERD, CVID-Common variable immune defficiency, Developmental delays, Sensory processing disorder,Speech Apraxia,Ashtma, hypotonia,auditory processing disorder and he has a gtube. He has IgA and IGg immune difficiency. He also has a porta cath in his chest. Jaygen has developmental delays as well as sensory issues.He is in OT,and Speech. Jaygen is homeschooled and is in the 3rd grade for 2021-22 school yr, with many accommodations for learning. Jaygen is a high maintenance 9 yr old (my oldest baby) but I wouldn't change him for the world..Jaygen's Mommy Jenny
Jaygen is followed by many doctors and specialist. We go to Vanderbilt Childrens Hospital every few months for Jaygen's GI specialist and Neurologist. Jaygen also travels to Mayo Clinic In Rochester MN for CDG. CDG-Type 1A was diagnosed a few yrs ago with genetic testing. Jaygen has insurance but they don't cover everything. Medical expenses for a special needs baby is expensive so any help is welcomed. Thank u for following and sharing our journey.
