Team Eva

Team Eva Help support Eva through the fight!! We have created this page as another way to support Eva. Feel f

07/07/2025

CCS: The Cancer Medicine Forgets

Most doctors will never see a Clear Cell Sarcoma case. At just 1% of rare sarcomas, CCS slips through the cracks, while shattering young lives (average diagnosis: age 25). This isn't just rarity. It's isolation.

Share to help change that.

06/30/2025
06/30/2025

Get ready to Go Yellow for CCS Warriors!

Every July, something powerful happens. Our CCS family comes together to shine a light on this rare cancer that too few understand.

Here's how you can stand with us:

๐ŸŒป Share your story with
๐ŸŒปWear your heart with our CCSF awareness shirts
๐ŸŒปPlant a sign in your yard to start conversations

When we go yellow together, researchers notice. Pharma notices. The world notices.

Let's make this July unforgettable. Who's joining us?

https://www.clearcellsarcoma.org/get-involved/ccs-awareness-month

05/10/2025
05/09/2025
Happy heavenly sweet 16th Birthday Eva!! ๐Ÿ’œ๐Ÿฉต You are so extremely missed and loved every single day.
04/21/2025

Happy heavenly sweet 16th Birthday Eva!! ๐Ÿ’œ๐Ÿฉต You are so extremely missed and loved every single day.

09/08/2024

Did you know about 47 children each day are diagnosed with cancer just in the United States. This is just one country! Every year, approximately 400,000 children all over the globe develop cancer.

Our foundation focuses on a specific type of cancer called Clear Cell Sarcoma. This ultra rare disease is found mostly in teens and young adults, making this a pediatric cancer. Most of us involved with CCSF have experienced CCS first hand in our families, friends, or ourselves, and WE ALL NEED SUPPORT. If you have been impacted or know a child or loved one who has been diagnosed with any type of disease, we want you to know that we see you, we love you, and we support you!

We are asking everyone to help us spread awareness by sharing this post, or make your own post using the ๐Ÿ’›

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La Crosse, WI
54891

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TEAM EVA!!!

Eva is almost 11 years-old and is in the 5th grade at Washburn Elementary. Eva is a fun-loving, caring, and smart girl who enjoys playing soccer, doing gymnastics, baking, spending time with her family, and playing with her brother, sister, and friends! In January, Eva discovered a bump on her arm that prompted her parents Ryan (son of Bonnie Belanger-Livingston) and Erica to take her to the doctor. After multiple appointments, scans, and a biopsy of the tumor, all done at Essentia Health St. Mary's in Duluth, MN, it was determined that the lump was a soft tissue cancer known as, Clear Cell Sarcoma, which is extremely rare. After getting this diagnosis she was immediately referred to the Mayo Clinic in Rochester, MN for further evaluation and treatment. After more appointments, biopsies, and scans, it was confirmed that Eva's cancer has spread to the lymph nodes in her arm and armpit. The good news is that the cancer has not metastasized elsewhere. After her most recent appointment it was determined that amputating Eva's arm is the best course of treatment at this time. Eva has been incredibly brave and positive throughout this entire process. Her mom, dad, brother Caleb, and sister Addisen have also remained positive as well! Erica and Ryan have both been off of work and not sure when they will be able to return. With both kids still at home, day to day bills, travel expenses, medical expenses, etc we would like to help the family during this financial hardship.