APS Foundation of America, Inc.

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APS Foundation of America, Inc.

The APSFA is bringing awareness to Antiphospholipid Syndrome (APS). Founded in 2005, APS Foundation of America, Inc.

(APSFA) is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the primary cause of multiple miscarriages, thrombosis, young strokes, and heart attacks. We are a volunteer-run, community-based 501(c)3 non-profit Public Charity organization. We are dedicated to fostering and facilitating joint efforts in education, support, public awareness, research, and patient services. The APSFA’s Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.

*Disclaimers*
The Founders, Administrator (s), Assistant(s), Helper(s), Greeter(s) & Staff of this forum are not medical doctors. This forum's Founders, Administrator(s), Assistant(s), Helpers, Greeters & Staff are not medical doctors. APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members is only an opinion. All information should be confirmed with your personal doctor. Always seek a trained physician's advice before seeking any new treatment regarding your medical diagnosis or condition. Any information received from the APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly; therefore, some information may be outdated when you read it.

**If you think you may have a medical emergency, call your doctor or 911 immediately.**

If you use this page, we want you to know that you are solely responsible for your communications, the consequences of posting those communications, and your reliance on any communications found in those areas. APS Foundation of America, Inc., and its licensors are not responsible for the consequences of any communications in the forum, chat room or page. If you give your personal information to a host or other member and later threaten to hurt yourself or others, we reserve the right to contact appropriate authorities; however, no guarantee is made that someone will contact emergency personnel for you. We are not equipped to handle these types of crisis situations. You should contact your local law enforcement agency right away. Members agree to accept personal liability for any medical advice they provide to another member. Furthermore, anyone who accepts and applies medical advice from another member agrees that they are doing so at their own risk and will hold APSFA, its affiliates, employees, and volunteers harmless.

**All posts are moderated 24/7 and are subject to deletion for any reason.**

Medical journal articles do not constitute medical advice. Please share these with your medical care team. Page rules can be found here:http://apsfa.org/new/wp-content/uploads/2022/01/APSFA-Rules.pdf

27/09/2025

Finding the right medication for Lupus is rarely a straight path. For so many of us, it's trial and error; one pill makes us feel worse, another is too expensive, and sometimes it works out!

27/09/2025

𝗖𝗵𝗿𝗶𝘀𝘁𝗶𝗻𝗮 𝗣𝗲𝗿𝗿𝗶 𝘀𝗵𝗮𝗿𝗲𝘀 𝗵𝗲𝗿 𝗔𝗣𝗦 𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝗶𝘀 𝗮𝘀 𝗹𝗮𝘄𝗺𝗮𝗸𝗲𝗿𝘀 𝗽𝘂𝘀𝗵 𝗳𝗼𝗿 𝗲𝗮𝗿𝗹𝗶𝗲𝗿 𝘁𝗲𝘀𝘁𝗶𝗻𝗴 𝗶𝗻 𝗽𝗿𝗲𝗴𝗻𝗮𝗻𝗰𝘆

Singer-songwriter Christina Perri has opened up about her experience with antiphospholipid syndrome (APS) following multiple pregnancy losses, and her story is now helping drive real change in the U.S.

A new bipartisan effort in the House of Representatives is calling for 𝗿𝗼𝘂𝘁𝗶𝗻𝗲 𝗽𝗿𝗲𝗻𝗮𝘁𝗮𝗹 𝘀𝗰𝗿𝗲𝗲𝗻𝗶𝗻𝗴 𝗳𝗼𝗿 𝗔𝗣𝗦 . The proposed change could mean earlier diagnosis and treatment for many people, potentially preventing devastating outcomes.

The blood test for APS costs may be expensive but, compared to the emotional and financial cost of loss, which can run far higher.

Christina Perri’s courage in sharing her story is helping to shine a light on APS and why testing before loss matters.

Have you had to push for testing? Were you diagnosed with APS during or after pregnancy? Your voice matters, and it may help others find answers sooner.

https://youtu.be/G3FNr1GyYQ8?si=BT5EMartrxxEL4bj

Washington, D.C. — Today, U.S. Representatives Kat Cammack (R-FL) and Sydney Kamlager-Dove (D-CA) introduced a bipartisan resolution to expand prenatal scree...

26/09/2025

Me. Now

26/09/2025

Credit to Blood clots don't discriminate! Anyone can be affected but there are certain risk factors that may make you even more susceptible to developing a blood clot. Know the risks. Talk to your doctor.

This is life-saving education. Share it. 🫶🏾🩸

26/09/2025

Someone want to go and represent the APSFA. If interested message us.

We are excited for Rare Disease Week 2026 on Capitol Hill this coming February. To help participants attend, we offer a limited number of travel reimbursements. The application is open now! The application window closes on Friday, November 7.

There are also exciting programming improvements coming to Rare Disease Week 2026 based on community feedback. To learn about all the improvements and apply for a travel reimbursement, click here: https://hubs.li/Q03Kj5ZY0.

26/09/2025

🌍 Today is World Contraception Day! 🌍

When it comes to contraception, knowledge equals power. If you’re considering starting birth control or switching your method, it’s crucial to know your risk.

Did you know that some hormonal contraceptives, like the patch, delivers more estrogen overall than most combined pills or rings and has been linked to a higher risk of blood clots?

It’s not just about the type of contraceptive — your personal risk factors matter too: age, family history, obesity, smoking, or known clotting disorders all play a role and further increase your risk for blood clots.

Know the signs of a clot and seek emergency care if you experience these symptoms:
• Leg: swelling, pain/tenderness, warmth, discoloration (usually one side)
• Lungs: sudden shortness of breath, chest pain, rapid heartbeat, coughing up blood

Stay informed, stay safe, and talk to your doctor to choose the safest and more effective method for you.

Know your risk ➡️https://www.stoptheclot.org/wp-content/uploads/2022/05/Women-and-Blood-Clots-Risk-Assessment-Tool.pdf

26/09/2025

📖 𝗣𝗼𝘄𝗲𝗿𝗳𝘂𝗹 𝗻𝗲𝘄 𝗺𝗲𝗺𝗼𝗶𝗿 𝘀𝗵𝗲𝗱𝘀 𝗹𝗶𝗴𝗵𝘁 𝗼𝗻 𝘁𝗵𝗲 𝗵𝗲𝗮𝗿𝘁𝗯𝗿𝗲𝗮𝗸 𝗮𝗻𝗱 𝗵𝗼𝗽𝗲 𝗼𝗳 𝗻𝗮𝘃𝗶𝗴𝗮𝘁𝗶𝗻𝗴 𝗽𝗿𝗲𝗴𝗻𝗮𝗻𝗰𝘆 𝘄𝗶𝘁𝗵 𝗔𝗣𝗦.

Dominique van der Watt shares her journey through miscarriage, high-risk pregnancy, and life in the NICU, while living with 𝗮𝗻𝘁𝗶𝗽𝗵𝗼𝘀𝗽𝗵𝗼𝗹𝗶𝗽𝗶𝗱 𝘀𝘆𝗻𝗱𝗿𝗼𝗺𝗲 (𝗔𝗣𝗦).

💬 "𝙒𝙝𝙖𝙩 𝙄 𝙧𝙚𝙖𝙡𝙡𝙮 𝙬𝙖𝙣𝙩 𝙥𝙚𝙤𝙥𝙡𝙚 𝙩𝙤 𝙠𝙣𝙤𝙬 𝙞𝙨 𝙩𝙝𝙖𝙩 𝙖𝙬𝙖𝙧𝙚𝙣𝙚𝙨𝙨 𝙤𝙛 𝘼𝙋𝙎 𝙞𝙨 𝙞𝙢𝙥𝙤𝙧𝙩𝙖𝙣𝙩, 𝙗𝙚𝙘𝙖𝙪𝙨𝙚 𝙞𝙩 𝙘𝙖𝙣 𝙨𝙖𝙫𝙚 𝙡𝙞𝙫𝙚𝙨 𝙖𝙣𝙙 𝙥𝙧𝙚𝙜𝙣𝙖𝙣𝙘𝙞𝙚𝙨 𝙞𝙛 𝙧𝙚𝙘𝙤𝙜𝙣𝙞𝙨𝙚𝙙 𝙚𝙖𝙧𝙡𝙮." – Dominique.

Her story is a reminder of the importance of awareness, advocacy, and early diagnosis.

🖊️ 𝙁𝙤𝙧𝙚𝙫𝙚𝙧 𝙃𝙤𝙥𝙚 launched this week in South Africa, offering comfort and courage to others facing similar battles.

📲 𝗥𝗲𝗮𝗱 𝘁𝗵𝗲 𝗮𝗿𝘁𝗶𝗰𝗹𝗲 𝗶𝗻 𝘁𝗵𝗲 𝗰𝗼𝗺𝗺𝗲𝗻𝘁𝘀 𝗯𝗲𝗹𝗼𝘄. 👇

26/09/2025

🌍 Calling all ISTH members! Whether you work in a hospital, clinic, university, nonprofit, or community organization—your voice matters in the fight against thrombosis.

By joining the World Thrombosis Day campaign, you’ll gain free access to:
✅ Ready-to-use educational resources
✅ Multilingual materials to share internally & externally
✅ Tools to raise awareness and drive real impact

Thousands of organizations worldwide are already part of this movement—let’s make our collective voice even stronger.

👉 Join today: https://lnkd.in/eV7eVGQS

26/09/2025

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