APS Foundation of America, Inc.

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APS Foundation of America, Inc. The APSFA is bringing awareness to Antiphospholipid Syndrome (APS). Founded in 2005, APS Foundation of America, Inc.

(APSFA) is the only United States nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Syndrome (APS), the primary cause of multiple miscarriages, thrombosis, young strokes, and heart attacks. We are a volunteer-run, community-based 501(c)3 non-profit Public Charity organization. We are dedicated to fostering and facilitating joint efforts in education, support, pub

lic awareness, research, and patient services. The APSFA’s Medical Advisory Team includes nationally & internationally recognized experts on Antiphospholipid Syndrome.

*Disclaimers*
The Founders, Administrator (s), Assistant(s), Helper(s), Greeter(s) & Staff of this forum are not medical doctors. This forum's Founders, Administrator(s), Assistant(s), Helpers, Greeters & Staff are not medical doctors. APS Foundation of America is not intended to replace standard doctor-patient visits, physical examination, and medical testing. Information given to members is only an opinion. All information should be confirmed with your personal doctor. Always seek a trained physician's advice before seeking any new treatment regarding your medical diagnosis or condition. Any information received from the APS Foundation of America is not intended to diagnose, treat, or cure. This site is for informational purposes only. Additionally, while APS Foundation of America, Inc. frequently updates its content, medical information changes rapidly; therefore, some information may be outdated when you read it.

**If you think you may have a medical emergency, call your doctor or 911 immediately.**

If you use this page, we want you to know that you are solely responsible for your communications, the consequences of posting those communications, and your reliance on any communications found in those areas. APS Foundation of America, Inc., and its licensors are not responsible for the consequences of any communications in the forum, chat room or page. If you give your personal information to a host or other member and later threaten to hurt yourself or others, we reserve the right to contact appropriate authorities; however, no guarantee is made that someone will contact emergency personnel for you. We are not equipped to handle these types of crisis situations. You should contact your local law enforcement agency right away. Members agree to accept personal liability for any medical advice they provide to another member. Furthermore, anyone who accepts and applies medical advice from another member agrees that they are doing so at their own risk and will hold APSFA, its affiliates, employees, and volunteers harmless.

**All posts are moderated 24/7 and are subject to deletion for any reason.**

Medical journal articles do not constitute medical advice. Please share these with your medical care team. Page rules can be found here:http://apsfa.org/new/wp-content/uploads/2022/01/APSFA-Rules.pdf

08/08/2025
🩺 Plaquenil in Autoimmune Disorders 🩺Plaquenil, also known by its generic name hydroxychloroquine, is commonly prescribe...
07/08/2025

🩺 Plaquenil in Autoimmune Disorders 🩺
Plaquenil, also known by its generic name hydroxychloroquine, is commonly prescribed to manage autoimmune disorders such as lupus, rheumatoid arthritis & Sjögren’s syndrome. Originally developed as an antimalarial medication, it was discovered to help reduce inflammation & modulate the immune system, making it an essential treatment option for chronic autoimmune conditions.
📌 How Plaquenil Works:
Plaquenil helps suppress the overactive immune response that characterizes autoimmune diseases. It decreases inflammation, reducing joint pain, swelling, fatigue & other symptoms, improving the quality of life for many patients.
📌 Common Uses:
Lupus (Systemic Lupus Erythematosus - SLE): Helps control flares & reduces risk of organ damage.
Rheumatoid Arthritis (RA): Relieves inflammation & prevents joint damage.
Sjögren’s Syndrome: Eases symptoms like joint pain & fatigue.
📌 Possible Side Effects:
Mild stomach upset or nausea (taking it with food often helps)
Dizziness or headaches
Skin reactions or increased sensitivity to sunlight (wear sunscreen!)
Rarely, eye toxicity (retinal damage), making regular eye exams crucial.
📌 Medication Monitoring:
Eye Exams: Regular eye screenings are essential—baseline exam at start, followed by yearly checks to monitor for rare retinal damage.
Blood Tests: Periodic blood work to monitor for rare blood cell changes.
Regular follow-ups with your rheumatologist to assess medication effectiveness & side effects.
📌 Recent Research & Insights:
Emerging research continues to support the safety & effectiveness of Plaquenil when properly monitored. Studies confirm its importance in preventing disease flares & reducing long-term complications, especially in lupus.
💡 Important Tips:
Always take as prescribed by your healthcare provider.
Don’t stop taking Plaquenil without consulting your doctor, as symptoms may worsen.
Report any vision changes immediately.
👩‍⚕️ Talk with Your Healthcare Provider:
Plaquenil has significantly improved the lives of many living with autoimmune diseases. Openly discuss with your healthcare provider about any concerns or questions regarding your treatment plan.
Sources: Lupus Foundation of America Johns Hopkins Medicine Mayo Clinic

07/08/2025

Circle the pain? I ran out of ink. 🥲

07/08/2025

Please DO NOT say these things, if you know someone who has a chronic illness.
Life is very difficult when you have a chronic illness, please don’t make it worse by saying these things.
There’s not anything worse than hearing some of these things, when you have been trying to be brave,
and you have held on and been the strongest person you could possibly be. We are Warriors!We actually
are fighting a war against our own body. Please be kind and remember this.
Thanks 💜

‼️

07/08/2025

You deserve to shine.

APS Magnets100% of the proceeds will go to the APSFA, which will help support an APS research project at Harvard. Only ...
07/08/2025

APS Magnets

100% of the proceeds will go to the APSFA, which will help support an APS research project at Harvard. Only 100 in stock. They will ship by USPS without tracking.

They fit in my palm.

To order: https://www.paypal.com/ncp/payment/Z6BAL9FXLEX7L

NIH Thrombosis and Inflammation in Vessels Initiative (TIVI)Principal Investigator:Dr. Yogen KanthiNational Institutes o...
05/08/2025

NIH Thrombosis and Inflammation in Vessels Initiative (TIVI)

Principal Investigator:
Dr. Yogen Kanthi
National Institutes of Health, Bethesda, MD

Contact:
Sharon Osgood
301-768-6197
Sharon.Osgood@nih.gov

Or

NIH Clinical Center Office of Patient Recruitment and reference study # 001781
800-411-1222
ccopr@nih.gov

The NIH is recruiting patients diagnosed with Antiphospholipid Syndrome to understand the root cause and manifestations of APS. Our goal is to develop new treatment approaches that help patients with APS live longer, healthier lives. Eligible patients are brought to the NIH Clinical Center for clinical evaluations and research studies to understand how APS starts, how it affects different organs, and how it changes over time.

Learn more here: https://clinicaltrials.gov/study/NCT06552767

Credit to If today feels a little heavier than usual, that’s okay✨You don’t need to explain yourself.Maybe you’re still...
27/07/2025

Credit to If today feels a little heavier than usual, that’s okay✨

You don’t need to explain yourself.

Maybe you’re still holding pieces of last week.
Maybe you’re walking through something no one sees. Or maybe it’s just one of those Mondays.

You’re not lazy, broken, or behind.
You’re human and it’s okay to go at your own pace.

Give yourself credit for showing up anyways 🫶

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