Will the WAS Warrior

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Will the WAS Warrior Will was born with a very rare, genetic bleeding and immune disorder called Wiskott-Aldrich Syndrome (WAS for short).

This page is to follow his progress during his bone marrow transplant.

You can give in Will’s honor by mentioning that in your donation.
07/12/2025

You can give in Will’s honor by mentioning that in your donation.

Big breakthroughs are happening in WAS research -- and your support helps push them forward. Educational tools, gene therapy advancements, and vital family resources are only possible because of donors like you

Join us this GivingTuesday by giving every Wiskott Warrior a stronger and hopeful future. https://wiskott.org

Will met his hero today! And a few of his friends too 🥰
05/01/2025

Will met his hero today! And a few of his friends too 🥰

Once in a lifetime experience… getting stuck on Tiana’s Bayou Adventure!
03/01/2025

Once in a lifetime experience… getting stuck on Tiana’s Bayou Adventure!

See you in Orlando!! ✈️
02/01/2025

See you in Orlando!! ✈️

Will got a special gift this Christmas…. Make-A-Wish Missouri & Kansas is granting Will’s wish to go to Disney World! He...
27/12/2024

Will got a special gift this Christmas…. Make-A-Wish Missouri & Kansas is granting Will’s wish to go to Disney World! He is so excited and is already counting down the days until we leave on January 2!

Make sure you follow along on Will’s page for all the pictures I’ll post while we’re there!

Happy 2 year Re-Birthday, Will! That is a BIG deal after a bone marrow transplant. That means we are past the point whe...
25/10/2024

Happy 2 year Re-Birthday, Will! That is a BIG deal after a bone marrow transplant. That means we are past the point where most of the bad reactions might happen.

25/10/2024

In honor of Will’s 2 year Re-Birthday we have a video from his 5y/o birthday in September.

Will had a special day yesterday. It was his one year re-birth day. (One year since his bone marrow transplant). He cele...
26/10/2023

Will had a special day yesterday. It was his one year re-birth day. (One year since his bone marrow transplant). He celebrated at Fun Run, playing like all the other kids. He continues to do great!

So eternally grateful today. Our little warrior has made it to his fourth birthday! Last year at this time, we were full...
01/09/2023

So eternally grateful today. Our little warrior has made it to his fourth birthday! Last year at this time, we were full of anxiety and stress knowing that you would be getting your BMT soon after. This year we celebrate what a fighter and how strong you are! Happy birthday Will!! 💙🎂

Our little man started pre-school today. He has come a long way in the past 10 months. He is off all medication at this...
21/08/2023

Our little man started pre-school today. He has come a long way in the past 10 months. He is off all medication at this time. 🙏🏼

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