A Cure For Everett

A Cure For Everett On a mission to fund & cure Everett’s ultra-rare HK1 genetic condition - a form of childhood dementia.

Learn more & donate at www.acureforeverett.org or Venmo ACureforEverett

05/30/2026

Join Team Everett and help change the trajectory of my sweet boy’s life.

We are working to raise $3 million to fund the research and treatment for his ultra-rare genetic condition, which has a heartbreakingly high mortality rate.

💙 You can make a tax-deductible donation, find our GoFundMe, and shop our merch at ACureForEverett.org
💙 Donate directly via Venmo at ACureForEverett.

Please follow, like, and share Everett’s story so we can reach the supporters who can make his future brighter.

Every action helps.

Thank you. 💙
time

05/28/2026

This week has been some work…E is keeping Mom on her tippy toes, but thankfully we’ve been managing at home and have avoided a trip to the hospital.

Help us keep fighting for Everett’s future where he can be anything he wants to be. Donate at acureforeverett.org
Or Venmo:

Donate. Share. Follow.

Thank you. 🩵

05/26/2026

Donate. Share. Follow. Like.
Turn hope into action.
Everything helps.

Speaking it into existence that we will fund and develop a cure for my sweet boy. We are making progress!

Donate at ACureForEverett.org or Venmo

Thank you 🙏 💙

05/25/2026

Help E live his best life possible. We’re raising $3 million to fund a cure for his ultra-rare genetic condition.

Join Team Everett and donate at ACureForEverett.org or Venmo directly .

Every donation, follow, like, share helps move the research and development forward.

Thank you. 💙

05/25/2026

Everett has an ultra-rare genetic condition, and we’re racing to fund the research that could change his future.

We’re fighting for more ordinary little moments like this one.

We can’t do it alone.

Donate at ACureForEverett.org or directly Venmo

Thank you. 💙

05/24/2026

He’s delicious. Chubby thighs and cheeks we can’t stop squishing.

Help us keep pushing forward to keep E healthy and growing. You can support our fight at acureforeverett.org or donate directly via Venmo

Donate. Share. Follow.
Join Team Everett.

Every action helps.

Thank you. 💙
up

05/21/2026

But using a mask? Absolutely not.
That’s where E draws the line.

If you’d like to help support Everett’s journey and the fight to fund a cure for his ultra-rare genetic condition, you can donate at acureforeverett.org or via Venmo:

Thank you 💙

05/20/2026

We’re moving on to yet another seizure medication (please pray that #7 is finally the one that helps). One of the possible side effects is vision issues, and Everett’s genetic condition can also come with vision challenges…so we’re officially adding another specialist.

Welcome to the team Neuro-Opthalmology. A specialty I honestly didn’t even know existed until recently.

If you’d like to help support Everett’s journey and the fight to fund a cure for his ultra-rare genetic condition, you can donate at acureforeverett.org or via Venmo:

Thank you! 💙

05/20/2026

Insurance gives us 8 syringes a month. We use about 20 a day.

So we are just…cleaning, sterilizing and drying for the foreseeable future.

If you’d like to help support Everett’s journey and the fight to fund a cure for his ultra-rare genetic condition, you can donate, acureforeverett.org or via Venmo:

P.S. ignore the back of my head and the wet paper towel…it was a one take kind of video…

05/18/2026

I wish love alone could cure him.

We’re raising funds to help develop a personalized cure for Everett and give him the future he deserves. If you’d like to help support his journey…you can donate, share his story, or follow along.

✨ acureforeverett.org
✨ Venmo:

Address

Lakeway, TX
78738

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