Langerhans Cell Histiocytosis
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I am a Histio Warrior, as I continue my fight I have created this so anyone who needs information or to vent, talk, share your story, we are here for you!!!
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A Rare Cancer
This is a very rare cancer I was diagnosed with about 2009 I went through almost a year of chemotherapy. Unfortunately it not help me. At which time I was not giving up. We traveled back and forth to a very nice intelligent Dr head of Oncology at University of TN in Knoxville. I was then sent to Duke in Durham NC, I entered into the transplant program for a double lung transplant we traveled back and forth for at 5yrs and was told there was nothing else that could be done although we knew at the beginning my antibody count was very high, for a lung transplant you must match blood type and antibody count. Would have taken a long time to match. They were able to wipe out the antibodies but we’re not able to keep them from coming back. So I was sent home. That was abt 1yr ago. I am now doing IVIG treatments every 3wks a nurse comes to my house to put an IV into my port it takes almost the entire day. They have been very ruff but I am (like my mmom always saiid) I am determined!!
