My SBC Family Camp

My SBC Family Camp Home of the NATIONAL PLAYDATE This event is always in October. Located in Lawrence, KS

10/27/2025

2843 likes, 49 comments. “When i play musical chairs the music doesn’t stop 🔥”

HAPPY WORLD SPINA BIFIDA DAY! 🎗️
10/25/2025

HAPPY WORLD SPINA BIFIDA DAY! 🎗️

08/23/2025
08/20/2025

Spina bifida, a birth defect that can have effects ranging from mild to severe, requires specialty care, which Upstate Medical University provides through it...

Iowa's next U.S. Senator...
08/15/2025

Iowa's next U.S. Senator...

Did you know there's an APP you can download to report disabled parking abuse/violations?
07/19/2025

Did you know there's an APP you can download to report disabled parking abuse/violations?

Follow us on Facebook and connect with the 1,000's of people around the world who are helping end accessible parking abuse.

❤️🎗️💪❤️🎗️💪
07/17/2025

❤️🎗️💪❤️🎗️💪

Vanderbilt’s first adult spina bifida clinic is opening in October 2025, offering comprehensive, cutting-edge urologic care to patients with congenital urologic conditions.

06/17/2025
02/28/2025

652 Followers, 361 Following, 254 Posts

This morning, Kansas City lost a spina bifida warrior, Raiden Harnden, age 13. Please share this meal train link and le...
02/19/2025

This morning, Kansas City lost a spina bifida warrior, Raiden Harnden, age 13. Please share this meal train link and let's wrap them in our love and support through meal offerings during the difficult days ahead...

The Harnden family has experienced a tremendous loss, their sweet boy Raiden. Let's shower them with our love and support through meal offerings. Whether you bring it homemade or store bought it will be a huge help over these next couple of weeks. Foodie gift cards are awesome too. Please sign up be...

Ella you stole our hearts during our 1st ever glamping weekend! What an Amazing young lady you are! Jana Walker aka Mom...
11/03/2024

Ella you stole our hearts during our 1st ever glamping weekend! What an Amazing young lady you are! Jana Walker aka Mom, must be so darn proud of you on a daily basis!

Thank you to Josie, our reigning 2024 miss wheelchair KansasLittle Miss Wheelchair Kansas ❣️ It was so wonderful gettin...
10/28/2024

Thank you to Josie, our reigning 2024 miss wheelchair Kansas
Little Miss Wheelchair Kansas ❣️ It was so wonderful getting to meet you and your mom Chelsea Metzinger at our very first glamping National Playdate weekend!

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Lawrence, KS

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+19132386869

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New APP will change your life

If you are reading this, you have found your new family! A community dedicated to supporting each other through the good times & the bad. Being there when you need us the most - to lend an ear, share a triumph, help you get up when you are feeling down, a shoulder to cry on, medical advice from MOMS THAT KNOW BEST. We host fun events locally & nationally to bring us together under one roof & create JOY! Welcome to MY Spina Bifida Community we are YOURS. Behind the scenes for several months we’ve been working hard on our very own APP to make your special needs world a better place! Currently we have a team of you awesome people test piloting it and our goal is to launch the APP live in June! check back here often for updates or visit website: MYSPINABIFIDACOMMUNITY.ORG