MySoulsongs

04/06/2026

04/06/2026

Have a beautiful week in a life well lived.

04/06/2026

This is my aim!

03/29/2026

This quote says it perfectly. Thank you to all who have listened and allowed me to raise awareness and support for MS.
These posts don’t convey more than thoughts and information. They certainly aren’t the same as spending hours each week planning meds, the doctors visits, the pseudo flares that come with stress or big emotions, the fear that a pseudo flare will become a full flare or relapse, but they offer a glimpse into the life of an MS warrior. And with your support, maybe fewer will have to experience more than a glimpse into the disease. Research is brining us closer to a cure. Go to the National MS Society to learn more.
🎗 🧡 👸🏼

03/29/2026

Life is short. Today has brought reminders of that to be sure. Hug your family. Give thanks for each moment. Embrace struggle and opportunity alike. MS sucks but I’m here and still have so much to love, do, and be thankful for.
To those who do not, those who are experiencing loss, embrace the memories and know I wish you healing and joyful remembrance.
🎗 🧡 👸🏼

03/28/2026

I live in Utah. I love it here! I get good neurological care partially because Utah has a lot of MS expertise. This makes sense because Utah has one of the highest rates of MS cases in the country. Read more: https://www.deseret.com/utah/2024/03/25/utah-highest-multiple-sclerosis-rates-in-nation/
🎗 🧡 👸🏼

03/27/2026

I’m not lucky to have MS in my life but I’m so lucky in so many ways. My family is one of my greatest gifts. 🎗 🧡 👸🏼 🍀 ❤️

03/26/2026

I’m tough and strong and sweet and smart and … chronically ill. I don’t want people to notice but I think they should know. Hiding our needs means they can’t be met. And my needs are shared by many. I have to speak up. Thank you for listening this final week of 🎗 🧡 👸🏼

03/25/2026

This theory helps explain how people with chronic illness get tired and overwhelmed differently than those without because they start with “fewer spoons” than those without chronic illness. MS patients are considered “spoonies.”
🎗 🧡 👸🏼

03/24/2026

MS is a snowflake disease—each case completely unique. The variance is largely due to the location of where the nervous system has been attacked. Other factors play a role as well.
I’ve always said I have unusual luck—a lot has happened to me but it’s all worked out… A neurologist told me more than ten years ago that I’d likely be in a wheelchair by my mid-40’s. Look at how lucky I am!! I’m not lucky to have MS but I sure am lucky to be doing well!
🎗 🧡 👸🏼