Jonathans Battle w/ CHD

Jonathans Battle w/ CHD This is about a warrior named jonathan and his journey... as he battles CHD (congential heart defect

This is jonathan, he was born with a heart defect called tetrology of fellot with pulmonary atriesia and a vsd this took us a little while to figure out this all meant so I'll simplify it. Jonathan was born fedruary 22nd 2013 he was born 6 lbs 5 oz 18 inches long.. he was so beautiful the most amazing day ever...while everything went while the day he was born and the day after we were planning on

going home with him that day. They were planning on taking him back and doing last min testing before we went home. Well we waiting and he didnt come back so we walked to the nursery to find out baby boy getting oxygen pumped through him..I fell to the floor crying so hard screaming my baby. Test they did was a pulse ox test they just started doing them routinely two month before he was born...so he is very lucky to be alive with us today. He was than rushed to akron childrens hospital were he was put on medication to survive .the only thing keeping a live for two week was the ducis...as he a waited his first surgery the BT shunt..that was to reroute his blood flow so he could breath on his own...and we could take him home and let him be a normal baby...well he was in the NICU for a month and than sent home on oxygen...his oxygen levels where low every time he came off the oxygen...so they were wondering what was wrong well two month after he was born he went for a heart cath...the day after had emergency open heart surgery Jonathan was only breathing from his right lung...so they had fix it or he would die...he recover good and went home a week later. but we are now awaiting his next surgery December 5 full repair where the put a cuduit in to give him oxygen levels like us Jonathan oxygen levels now are 60 to 70%.

Jonathan has been doing great since he’s been home. He’s went to the zoo (for sister field trip) and walked a good porti...
05/14/2026

Jonathan has been doing great since he’s been home. He’s went to the zoo (for sister field trip) and walked a good portion of it. He did have me (bonus mom) push him in chair some part of it to catch a break. He has also been doing A LOT of Lego building. We start home schooling Monday so he don’t fall behind.

Our warrior is up and moving today!! Also this nurse is amazing and we love her!!
05/01/2026

Our warrior is up and moving today!!
Also this nurse is amazing and we love her!!

Jonathan‘s surgery was successful and went really well! He is in recovery right now still out of it from the medication ...
04/30/2026

Jonathan‘s surgery was successful and went really well! He is in recovery right now still out of it from the medication and a little sore for obvious reasons but all in all he is doing great! First picture is right before surgery so he was definitely in good spirits

Today is the day Jonathan goes in for his fourth open heart surgery!! He will have a ton of support at the hospital from...
04/30/2026

Today is the day Jonathan goes in for his fourth open heart surgery!! He will have a ton of support at the hospital from all four of his parents and grandparents, and if you aunts and uncles but he could use some more!!
The doctors seem to be very positive that this will be the last one for 15-20 years and said everything looks good. That the hardest part will be getting in his chest. For this surgery, they do not have to stop his heart, which is a very good positive thing. We will keep everybody updated as we get updates.. 

03/01/2026

Jonathan goes in for a CT Scan in March to see when his next surgery will be.

Got contacts and bottom braces ready to start 7th grade
07/30/2025

Got contacts and bottom braces ready to start 7th grade

Just some summer pictures ♥️
07/30/2025

Just some summer pictures ♥️

01/23/2025

Jonathan got cleared for another year of no surgery!! This is great news for all our families!! 

Day late but Merry Christmas from our blended family to yours🎄🎁
12/26/2024

Day late but Merry Christmas from our blended family to yours🎄🎁

12/18/2024
Started 6th grade this year at St.Mary’s.
09/29/2024

Started 6th grade this year at St.Mary’s.

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Logan, OH

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