Endo Won’t End Me

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Endo Won’t End Me

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Endo Won’t End Me, Health & Wellness Website, 127 South San Vicente Blvd, .

21/11/2022

On Thursday I had my 4th laparoscopy for endometriosis. ⁣
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Unfortunately, I had an endometrioma that ruptured and allowed for new lesions to grow. The good news, no additional lesions from previous sites came back meaning my last surgery did in fact help put me in remission. ⁣
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I ended up having extensive adhesions that were “gluing” organs together removed from my pelvic sidewall, my o***y, fallopian tube, my ligament, along with a complete ureterolysis for retroperitoneal fibrosis due to the endometriosis.⁣
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This was my longest and quite possibly my most painful surgery I’ve had. Recovery has been rough to say the least. I’m hoping once the swelling starts going down it’ll start to get better. ⁣
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I’m so incredibly thankful for Dr. Matthew Siedhoff, his team at Cedars Sinai, and his Research Program that I get to be a part of. Thank you for constantly fighting and listening to the women who have been dismissed and ignored all these years. Best excision surgeon. 🙌🏻💛🎗️⁣
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08/03/2020

Day 7: What has Endo brought to your life in a positive way?⠀
What doesn’t kill you really does make you stronger. 🎗💛⠀
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07/03/2020

Day 6: How many surgeries have you had?:⠀
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3 surgeries in total.⠀
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Surgery 1 was a diagnostic lap with ablation in 2013. My doctor found endo in my left posterior cul-de-sac, left o***y and right pelvic sidewall. I left surgery being told I did in fact have endo (which I said for 3 years before actual diagnosis) and that I had a 50-50 chance of getting pregnant. Mind you I was 21 yo.⠀
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Surgery 2 was an exploratory lap with possible ablation in 2016. My doctor who I had now been going to since the end of 2013 did this surgery and I came out of that surgery being told “no evidence of disease.” I had this surgery because I had a significant increase in pain, I was having bleeding from my re**um and severe cramping 3 out of 4 weeks per month. I nearly cried after hearing this. How did I just not have endo anymore. Turns out my it was out of my doctors scope of practice and was unable to properly see and find the endo. I left that surgery knowing I needed to find someone better, someone with the knowledge and skill. Then I learned about excision.⠀
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Surgery 3 was an excision surgery with an appendectomy and a presacral neurectomy. My surgeon Dr. Siedhoff (who deserves ever ounce of attention) fist bumped me and said we are going to get this before surgery. I came out of surgery learning that I had endo in my anterior cul-de-sac over my bladder, extensive implants throughout my entire posterior cul-de-sac, in the ovarian fossae, the uterosacral ligaments, the rectovaginal space and on the re**um itself. I also had endo on both ovaries, but no endometriomas. I also learned I had extensive retroperitoneal fibrosis from endometriosis. I cried the happiest of tears knowing that what I had been feeling was real. The appendectomy was for the removal of my appendix because it is a common area for growth of endo. I had a PNS to cut my nerve to my uterus for pain relief for possible adenomyosis. Due to symptoms my doctor believes I have adeno but cannot give a true diagnosis until I have a hysterectomy. So to allow me a chance to have children we cut the nerve to get rid of pain until I’m ready to have a hysterectomy for it (if ever). ⠀
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Eventually I will have to have anot

07/03/2020

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07/03/2020

A little late, but here we go..⁣⁣
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Day 5: What medications or treatments have you tried?:⁣⁣
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I’ve tried just about all birth control that is available on the market: every pill, patch, ring, shot. You name it, I’ve tried it, with the exception of any IUD.⁣⁣
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Currently I have detoxed myself from birth control with the help of and am choosing not to use it. I found for me it did not help with my endo or endo symptoms. In fact it made my periods worse for me. ⁣⁣
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I was on all sorts of pain meds for years. I was prescribed tramadol, ibuprofen, Vicodin and norco. These were last resorts for me. I knew they were addictive, not good for me and only took the edge off so I never took these regularly. Instead I stuck to CBD products.⁣⁣
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Excision was the best treatment I could have ever done. Since having excision almost 3 months ago, I have felt the best I have felt in almost a decade. Excision helped remove my endo, but PT is required to help heal my pelvic floor now from the damage from years of chronic pain. ⁣⁣
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05/03/2020

Hello, my name is Sarah. I’m 27 going on 28 years old and from Los Angeles, CA. Saw this posted on page and thought it would be fun to get to share each day. ⁣⁣⁣⁣

03/03/2020

My newest battle wounds. I’m so damn proud of these scars.

09/07/2019

Did I mention my uterus is a bitch?⁣
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This is my life 90% of the time and it sucks. ⁣
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03/07/2019

Started summer school this week and I had a great first two days. I absolutely love my job and love what I do. But having autoimmune disorders that makes the simplest of tasks almost impossible and that’s heartbreaking. I got through both days of work, I did a low impact workout yesterday and I felt good. But now I’ve been in bed since I got home almost 4 hours ago and I can barely move. Every muscle in my body hurts and I have fatigue so severe I feel like my body hasn’t rested in years. I want to scream and cry all at the same time because these kinds of activities should not make me feel like this, but yet here I am. ⁣⁣⁣
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Sometimes it’s hard staying positive when you see yourself getting sicker by the day with no answers, no treatments and no relief in sight. Today’s one of those days. I know it’ll pass and I know there are better days ahead. But today sucks and I miss being able to do my job and live life without my body turning against me. ⁣⁣⁣
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Started summer school this week and I had a great first two days. I absolutely love my job and love what I do. But having autoimmune disorders that makes the simplest of tasks almost impossible and that’s heartbreaking. I got through both days of work, I did a low impact workout yesterday and I felt good. But now I’ve been in bed since I got home almost 4 hours ago and I can barely move. Every muscle in my body hurts and I have fatigue so severe I feel like my body hasn’t rested in years. I want to scream and cry all at the same time because these kinds of activities should not make me feel like this, but yet here I am. ⁣⁣⁣
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Sometimes it’s hard staying positive when you see yourself getting sicker by the day with no answers, no treatments and no relief in sight. Today’s one of those days. I know it’ll pass and I know there are better days ahead. But today sucks and I miss being able to do my job and live life without my body turning against me. ⁣⁣⁣
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20/06/2019

Literally cried the ugliest of happy tears when I opened this up. ⁣😭
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I have been fighting with my insurance company for just about a year. I have been referred to multiple endo specialists and denied every time. I was feeling defeated and at an all time low. My health continued to deteriorate as my pain got worse and my doctor had no other options left for me. ⁣
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Well I have officially been given the approval to see an excision specialist and words cannot express the emotions I’m feeling.
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127 South San Vicente Blvd

90048

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