Visible Illness

Visible Illness EDS Medical Advocate | Beating Underdiagnosis Together!

04/18/2026

300+ hrs to beat an insurance denial fo life-saving surgery for arterial thoracic outlet syndrome for Clover Fields

04/17/2026

If your primary care doctor is telling you your severe joint pain and fatigue is just "anxiety" or "psychosomatic," you need to hear this. Ehlers-Danlos Syndrome is a real, incurable genetic disease. The medical bias is staggering—men get diagnosed in months, while women are routinely dismissed, denied care, or even institutionalized. You are not crazy, and you are not alone.
Full video linked down in the comments. 👇

04/09/2026

If this video saves on person’s life, it was all worth it. This is a full explanation of why Clover needs life saving surgery, why the only surgeon who can do it is at Johns Hopkins in Baltimore, & why we need to raise enough money to pay cash, or at least cover or bills while I’m fighting to get her this surgery before it’s too late.

I’m tired of being misunderstood or disbelieved. I know it’s all complicated and hard to understand—so hopefully this video explains exactly the dire situation we face, why I put everything on the line to get Clover care, why I’m workin on getting her care 60+hrs a week instead of working a full-time job, and why we still need help from friends & family to cover our bills until I get Clover this survey.

Tysm to everyone who has been there for us, supported us, donated to the GoFundMe, believed us, and given kind words of love and support.

If it wasn’t for you, we wouldn’t even have a diagnosis yet and that means the world. But we still need your help. Anything counts. Ty -Ross & Clover

GoFundme pinned in comments

Clover Fields with a happy customer and with some famous underground tattoo artists that are now colleagues. Clover buil...
04/09/2026

Clover Fields with a happy customer and with some famous underground tattoo artists that are now colleagues.

Clover built an entire Celebrity Scratcher tattoo career from nothing after moving to LA 2 years ago—and she did it while having arterial Thoracic Outlet Syndrome.

She has fans. She has industry clout. She even got offered residencies at 2 of the best fine line tattoo studios in the country.

But now, she can’t even tattoo part time—she finally got a very legitimate diagnosis for Arterial Thoracic Outlet Syndrome from the renowned Cedars Sinai Medical Center—signed off on by Dr. Azzizedeh (one of the nation’s top vascular surgeons)—It’s a serious condition with a real and constant imminent thr3at to lif3 & 1imb.

The amount of resilience and the amount of p4in Clover powered through is profound. She did something that’s almost impossible even for a healthy person in their prime!—this is exactly the kind of thing is that make it easy to fight for Clover.

There’s only one surgeon in the country that can do the surgery she needs. While we are fighting insurance, what we really need is money to cover our bills. But ideally, we raise $100k to just book the surgery immediately. Every day we wait is another day Clover could lose her arm.

Tysm everyone who has already donated. Without your help we wouldn’t even have gotten her the diagnosis yet for her right arm & shoulder. But there’s a lot of fight left to go in the journey to getting her life saving surgery, and we need your help—anything counts.

GoFundme link pinned in comments.

04/08/2026

Tysm everyone who has donated to our GoFundme. We wouldn’t be here without you. We have a long hard road ahead, but we’re still here fighting and it’s thanks to your ongoing support

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