Bob Scott’s Cancer Page 01, 215 S Santa Fe Ave (2026)

15/08/2019

Bob died at 3:12 PM today at home in his bedroom under the best hospice care ever. My sister Jane and his long time friend Betsy Starman were with him as well as me of course. It was exceptionally peaceful as well as very fast.
Waiting for the mortuary, I'm finally alone with him : )
He's dressed for his journey in a shirt I made for him and some rather elegant pants he had custom made in Vietnam. I will plan a celebration of his life for a few months from now and he will be buried at a VA cemetery, probably at the old Fort Ord site in Monterey near the ocean. That ceremony probably won't be until 2020 as, of course with the VA, there is a wait.

All you kind people have asked how I'm doing. Kind of numb and expect to be for a bit. I DID book a flight to London for October.
Bob and I have been surrounded by love this whole journey. Thank you all

14/08/2019

This is Ann, Bob's wife. On July 4th Bob elected hospice. Only a few weeks after chemo and his cancer had returned and spread up his spine. He was paralyzed from the waist down but far from numb. His legs were incredibly painful and he's been on the big drugs - fentanyl , morphine and oxy.
His oncologist and his surgeon agreed that the cancer was moving so fast that by the time he got healthy enough for another round of aggressive treatment, the cancer would kill him.
One of the side effects is that his hands have also become very uncoordinated...thus the lack of posts.
He's been surrounded by friends and family. There have been many wine and cheese parties at the bedside.
Last Saturday morning he told me that he knew he was dying. We lay together and shared some private words and that was the last time he was truly conscious
Hospice says he is "actively dying" now. To me he's really gone, no affect or movement and well on his final journey. Only a few more days.
He has 24 hour nurse care plus the help of an additional caregiver. They're managing him beautifully and he is pain free which is my primary concern.
The beautiful photo was taken last night by our friend Ed Freeman. To me he is beautiful.
I'll update going forward

14/08/2019

This is Ann, Bob's wife. On July 4th Bob elected hospice. Only a few weeks after chemo and his cancer had returned and spread up his spine. He was paralyzed from the waist down but far from numb. His legs were incredibly painful and he's been on the big drugs - fentanyl , morphine and oxy.
His oncologist and his surgeon agreed that the cancer was moving so fast that by the time he got healthy enough for another round of aggressive treatment, the cancer would kill him.
One of the side effects is that his hands have also become very uncoordinated...thus the lack of posts.
He's been surrounded by friends and family. There have been many wine and cheese parties at the bedside.
Last Saturday morning he told me that he knew he was dying. We lay together and shared some private words and that was the last time he was truly conscious
Hospice says he is "actively dying" now. To me he's really gone, no affect or movement and well on his final journey. Only a few more days.
He has 24 hour nurse care plus the help of an additional caregiver. They're managing him beautifully and he is pain free which is my primary concern.
The beautiful photo was taken last night by our friend Ed Freeman. To me he is beautiful.
I'll update going forward.

14/06/2019

Thursday 6/13. I am at a very good convalescent hospital called Villa Garden. I have been scrubbed poked and prodded to my hearts content. I have learned some things about my body that I could have left alone. Anyway, I can walk to the bathroom and the kitchen, we have a caretaker in place for a few hours, a physical therapist for a couple of times a week. All will be well

19/05/2019

So here we go again! Back at Huntington Hospital. I checked in about 7:pm last night due to pain. There didn’t seem to be a point to trying to get by without walking, sitting or driving. It was a very informative visit (I’m still there). They took another very quick C-T scan of just my J1 vertebra and found out that the bone had a splinter that is sticking on the nerve back there. The plan is to go in there and remove that spur and cement up the offending bone. At the same time the surgeon will take a biopsy of the vertebra and inject some chemo juice into the spinal column because, well, why not we’re already in there! So looks like I’ll be here to maybe Wednesday Huntington room East 511.

As we say “more will be revealed”.

17/05/2019

Ok here’s what happened. My level of pain went up,suddenly. Of course Ann was out of town, and I thought I could attribute the,pain to a couple of things around the house. I saw my oncologist and the surgical oncologist and between them the said I have a compression fracture of my L1 disc. They want to do the following; another MRI, a bone marrow biopsy of my spine along with injecting cement into the vertebrae. I started PT rehab and was in so much pain that I vomited into a trash can. Then the second visit they had me doing warmups and toning exercises in the pool. Now for 3 days and nights I am beset with cramps that will not go away without rubbing in a kind of aspirin ointment. This is just jumped up a level fear and stress that is really tearing us apart. Ann swears that she’s in it for the long haul but it is really taxing. Part of it is that I am so flaky losing everything and forgetting everything. It’s driving us both nuts. Well I guess it’s better in that we know why there’s so much pain, and we have a course of action. I am getting just a ton of support, both f of my wife and all the medical professionals. I am now seeing 2 pain management teams, physical therapy, occupational Therapy, psychological therapy, my oncologist my surgical oncologist my radiation oncologist. Our whole lives are wrapped up in medical appointments. Every time Ann plans something relaxing some crisis comes up ruining her plans.We have cancelled the trip to Africa for me. We’re going to look for a caretaker while she’s away (assuming I’m the same). We arranged for a dog walker for the mornings, so that’s a relief. This s shirt has gone on too long. Last August I first noticed something was wrong in my body and now we are in May. Too f’n long.

05/05/2019

Well here I am, 3wks after my final chemo infusion. Ann is out of state and I am able to maintain the house, do errands (even though my expensive 6 way adjustable drivers seat absolutely kills my back) I feel good but weak as a kitten. I can't open some jars, sleeve buttons are a bitch, everytime I lift something my back lets me know how he feels about that activity. PT is coming up soon so that will speed up recovery. I am really grateful for all the kind words and prayers that have been sent my way for the last 6 months. I'm grateful for the excellent care from City of Hope, Medicare and Anthem Blue Cross. Plus LAUSD provided extra insurance to cover the "donut hole" in drug coverage. My cancer treatment has barely cost us maybe $100. Grateful, Grateful Grateful. I was worried that I was gonna' die, I was worried that I would live with this pain in my back for the rest of my life. The consensus is that the pain is muscular, probably from the misalignment from the mass next to my spine. I have aways to go with occupational/physical therapy and maybe radiation treatment. But, I am confident (even through the depression from the meds) that I have a future

11/04/2019

Ok, last chemotherapy is tomorrow. Feeling great except when I overdo it and make my back sore. It’s been 5 months, maybe another month of radiation and I’m through!

04/04/2019

My new look, at my high school weight

27/03/2019

Well I don’t know about you but I’m having a pretty easy going week. No significant side effects from the chemo, back pain greatly reduced, giving me some hope there. Been able to do some chores and lighten the load on my wife I’m going to try to get out of the house and on some errands tomorrow so watch out DTLA for that white beemer bombing around the arts district!

Bob Scott’s Cancer Page 01

15/08/2019

14/08/2019

14/08/2019

14/06/2019

19/05/2019

17/05/2019

05/05/2019

11/04/2019

04/04/2019

27/03/2019

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