A Cure for Violet

A Cure for Violet Our baby girl diagnosed with GM1 Gangliosidosis, a progressive neurologic disease

We Love you, Violet. Now and Forever
10/14/2025

We Love you, Violet. Now and Forever

By CureGm1

10/14/2025

By CureGm1

We Love You, Violet. Now and Forever.
10/14/2025

We Love You, Violet. Now and Forever.

By CureGm1

Had a great opportunity to meet up with the amazing  Bret Mackenzie of  at  . My brother and I spent many days of our ha...
10/10/2025

Had a great opportunity to meet up with the amazing Bret Mackenzie of at . My brother and I spent many days of our hazy youth laughing and bobbing our heads to Bret’s amazing tunes, and we were fortunate to be able to share a few words with him and wish him and the band well on their tour. Thanks for show and the conversation, Bret! We won’t soon forget it!

Derek getting the Halloween season started early…
10/06/2025

Derek getting the Halloween season started early…

My SLR photos from Derek’s bday. Felt good to pick up the rig again and snap off these few shots in between running arou...
09/24/2025

My SLR photos from Derek’s bday. Felt good to pick up the rig again and snap off these few shots in between running around and keeping the party intact. Thank you again everyone who came to celebrate. We love you!

A 24 hour whirlwind watching our Golden Bears play a game of football in SD (ugh), crushing up the coast with my best fr...
09/22/2025

A 24 hour whirlwind watching our Golden Bears play a game of football in SD (ugh), crushing up the coast with my best friend, reconnecting with our Pilam brothers, and celebrating Derek’s 2nd bday with our beautiful friends and family. Thank you to for an amazing show (thanks for the rec, !! ). Derek loved it!

Happy birthday to the Original ‘Tiger Dad,  !! We love you Grandpa!
09/10/2025

Happy birthday to the Original ‘Tiger Dad, !! We love you Grandpa!

Our San Diego families:)
09/07/2025

Our San Diego families:)

Congratulations  and Elvira! Rico was one of our younger fraternity brothers, and about 8 years ago he joined me on my l...
08/24/2025

Congratulations and Elvira! Rico was one of our younger fraternity brothers, and about 8 years ago he joined me on my little filmmaking journey and starred in and co-produced our short films along with and and . We were so happy to reunite again this weekend and celebrate his wedding to lovely Elvira. And such a great chance to hang out with .323 , and the rest of the crew. Love you guys! We wish you nothing but the best!

Thank you to the  CureGM1 Foundation for an inspiring, emotional, and beautiful conference. 2 years since the last in-pe...
08/09/2025

Thank you to the CureGM1 Foundation for an inspiring, emotional, and beautiful conference. 2 years since the last in-person conference and almost that amount of time since losing Violet, I returned yesterday to help moderate and talk about our advocacy efforts. Seeing the beautiful faces of our beloved rare disease community reminded me of the amazing bonds we’ve made over the years, and the Purpose that keeps driving us forwards. Thank you to for organizing and leading us through all this, and thank you to my fellow board members at the CureGm1 Foundation for your continued love, support, and dedication. There’s still more work to do! Learn about our enzyme-replacement project and other endeavors at www.CureGm1.org

A beautiful summer with so many beautiful visitors…July came with it an influx of amazing events, from the amazing nupti...
08/05/2025

A beautiful summer with so many beautiful visitors…
July came with it an influx of amazing events, from the amazing nuptials of Amin and Mileva, 2 Vegas medical conferences (tough having 2 docs in the household!), an epic Disneyland trip with and , and a number of great meetings with friends and family passing through LA for the summer. Days like these are a blessing, and we loved spending this time with all of you, under the sun. Thanks for coming to play:)

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6200 Hollywood Blvd
Los Angeles, CA
90028-7307

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