UofL Cystic Fibrosis Care Center

10/07/2025

New Parents With CF Needed for Study

Join the Health Outcomes of Parents with Cystic Fibrosis (HOPeCF) study to help CF care teams better support people with CF during early parenthood. The study is recruiting people with CF who are new parents to help understand if, when, and how parenthood affects lung function, mental health, stress, and other CF-related health outcomes. Study participants will complete 12 online surveys over a 5-year period and receive $30 per completed survey. Researchers also will collect data from participants' medical records. Click the link below for more information!

https://redcap-std.hs.pitt.edu/redcap/surveys/?s=RFP7NEA3WDANDE7T

Send a message to learn more

09/15/2025

If you know a person living with CF aged 13-19 years old who is interested in photography and writing, here is a project opportunity to share! More information can be found by clicking this link: https://docs.google.com/forms/d/e/1FAIpQLSdQyo39IilMVubgwk3XdVpnRjSRBA1eD9Ege81gVtJDlMzz0w/viewform?pli=1

The Familiar Pinch – Cystic Fibrosis Chronicles is a free, remote, 6 month-long photography and writing program for adolescents and young adults (ages 13–19) living with Cystic Fibrosis. This is a space for creativity, community, and connection, open to anyone with CF who wants to explore photography and writing while building friendships with others who get it. If you are interested, please submit your form by October 1st, 2025.

About the program: Participants will join Zoom workshops every other week. In these sessions, you will learn how to use digital cameras, receive creative prompts to guide image-making and writing, and explore artwork by the project creator (me!) and others in the chronic illness community for inspiration.
Through photography and journaling, participants will reflect on daily life, identity, and what it means to live with CF as well as have the opportunity to share and discuss their work with peers in a supportive space. At the end of the program, everyone’s contributions will be compiled and curated into a professionally printed book that celebrates each participant’s unique story and perspective.

Send a message to learn more

08/30/2025

As a reminder, the adult and pediatric care centers will
be closed 1 September 2025 in observance of Labor Day.

08/19/2025

Just a reminder, people with cystic fibrosis age 2 years and over are to wear a mask in the common areas of the healthcare setting such as a lobby, hallway, or elevator. Masks are not needed in areas such as the patient exam room or PFT lab. If you do not have a mask upon entry to a healthcare setting, masks are available for use at check in or conceirge desks. If you have CF, please wear a mask to help reduce the risk of contracting an infectious disease. We care about your health and want to keep you "bug" free!

08/04/2025

Please join the CFF - KY/WV chapter at the CFF cares night for an evening of casual conversation and updates on the care of people with CF. Due to infection control concerns, this event is not for people with CF, rather their caregivers, family, and friends.

05/13/2025

Please join the Target The Cure Clay Shoot Fundraiser in September. See https://events.cff.org/target-the-cure for more information on the event, how to participate, and how to sponsor.

02/26/2025

The Cystic Fibrosis Foundation-funded Success with Therapies Research Consortium (STRC) is conducting a study to gather feedback from people with CF and their family members on what patient-provided data is important to collect to support clinical care and research.
Scan the QR code in the attached photo. The survey takes about 10-15 minutes to complete. Direct any questions you may have to STRC@childrens.harvard.edu.

02/25/2025

If you have questions about social security, here is an informative webinar hosted by the CF Social Security Project.

https://www.youtube.com/watch?v=NnHL45m2AHU
Patients and families can contact the CF Legal Information Hotline at CFLegal@sufianpassamano.com or by calling 1-800-622-0385.

Join us for an informative Webcast about Social Security Disability (SSDI) and SSI benefits.CF Legal Information Hotline attorneys explain the law and how it...

01/20/2025

In observance of Martin Luther King Jr Day, the pediatric care center is closed January 20, 2025.

01/05/2025

Please see below and note we will update you to changes for Monday’s operating hours.

Due to inclement weather, UofL Health – UofL Physicians and UofL Health – Urgent Care Plus locations will be CLOSED on Monday, Jan. 6.

All UofL Health emergency departments and hospitals remain OPEN 24/7.

View all closures/delays at UofL Health: https://uoflhealth.org/uofl-health-weather-closure-information/

01/05/2025

We will keep you posted on any changes for care center hours on Monday.

📍 FIND UPDATED INFORMATION HERE: https://www.facebook.com/share/p/1AnmFYeLjL/

WEATHER ALERT! 🚨 Due to the weather forecast and worsening weather conditions, Norton Immediate Care Centers will close Sunday, Jan. 5, at 2 p.m. All Norton Healthcare and Norton Children’s hospitals — including Norton Children’s Medical Center — remain and will remain open.

Virtual care resources are available 24/7 via Norton eCare for minor illnesses. Appointments from the comfort of home are available for patients aged 2 and older. You can book virtual care appointments through Norton MyChart. Please stay tuned for additional updates.

12/24/2024

Care Center Holiday Hours:

Adult Care Center-

12/24 please call the on call provider or email Beth Favier with needs
12/25 please call the on call provider as the office is closed
12/31 the office is open
1/1 please call the on call provider as the office is closed

Pediatric Care Center-

12/24 the office is open until noon, call the on call provider after 12:01pm
12/25 please call the on call provider as the office is closed
12/31 the office is open until noon, call the on call provider after 12:01pm
1/1 please call the on call provider as the office is closed

We wish you a safe and happy holiday season!