Samuel’s Miracle in Action

08/10/2024

🗣️🗣️🗣️ Share! Share! Share! 🏀🏀🏀

Our family is thrilled to announce the Inaugural Samuel’s Miracle in Action “Hoopin’ for a Cure” 3x3 Basketball Tournament to benefit Cure SMA! This tournament will be held on Saturday, September 14th at W.E.B. DuBois Academy gymnasium. Doors open at 9:30am and first game will start at 10:00am!

We feel that this event will be a memorable way for us to honor and celebrate Samuel just two days after his 7th birthday! Plus, we are excited for the opportunity to raise money for the amazing organization that has supported us and many more SMA families on their journey!

If you are interested in creating a team to participate in this event, please see the flyer below. You can scan the QR code to register your team and pay your fee online! If your team would like to play on behalf of a local SMA Warrior, we have many families and friends who would love to be represented on the court!

We are also interested in reaching any donors who would like to be a sponsor at our event and/or donate items to the raffle drawings and silent auction. Please contact me directly for these valuable sponsorship opportunities!

05/29/2024

On Wednesday, May 22nd, sweet Samuel earned his wings. He brought immeasurable joy and love… Kristen DeLuca needs your support for Support for Samuel's Family

03/30/2024

Happy National “Doctor’s Day” to all of the awesome physicians in our corner! The ones who are near (and a few who are now far away) who have always done their absolute best by us! We are so blessed to have an amazing team! Pictured with us here the lovely and talented Dr. Arpi Ta (Chief Neurologist) and Dr. Kent Walker (Spine Surgeon).

08/26/2023

🧡💜Hey Friends and Family! It’s that time!!! 💜🧡

We want you to join Team Samuel’s Miracle in Action! Our 2023 Cure SMA Walk-N-Roll is on October 21st at Bellarmine University! Please click on the link below to join our team!

Cure SMA leads the way to a world without spinal muscular atrophy (SMA), the number one genetic cause of death for infants. We fund and direct comprehensive research that drives breakthroughs in treatment and care, and we provide individuals with SMA and their families the support they need for toda...

07/21/2023

This is truly outside of my comfort zone (asking for help), but sometimes you have to step out in faith! I’m polling all of our family, friends, loved ones, prayer partners and supporters of Samuel and his/our journey to conquer SMA:

If we were to do a barbecue/fish/chicken plus sides and dessert fundraiser to raise funds to build an all season patio pergola to cover Samuel’s swim spa before the weather turns bad this fall/winter would you be interested in participanting/purchasing/contributing? You all know Sam is a grill master!!!

We would really like for Samuel to be able to utilize his spa year round and, of course, it would be extremely beneficial for him! The only way we can do this without taking on a large amount of debt is by doing a fundraiser! Drop a message in the comments or inbox me if this is something you might be interested in participating in with us!

Sharing a video of Samuel in his spa for a smile and inspiration!

06/27/2023

While finishing up his PT session with Ms. Abby, Samuel chose (using his speech device) to “let’s play with music” and then selected “Cocomelon”. His reward for having such an amazing session was to swing and listen to some of his favorite Cocomelon songs! Today was a great day with Ms. Abby!

05/24/2023

Weight-bearing with the yoga ball. One of Samuel’s most favorite activities at PT with Ms. Abby!

05/22/2023

Headed home!!!!

05/22/2023

It’s a partial side eye and eye roll combo for today’s early morning clinic appointment!

03/08/2023

We are excited to share that today Samuel’s “Make-A-Wish” was granted! Samuel loves to swim….he loves the feeling of being able to move freely in water without the weight of the world and gravity pushing on his little body. Today, Samuel received a swim spa here at our home so he can swim whenever he wants and our family can enjoy this beloved activity together!

Thank you so much to Make-A-Wish® Ohio, Kentucky & Indiana for granting Samuel’s wish and also an enormous thank you to Genentech for selecting Samuel as their “Make-A-Wish” kid! This has truly been such a blessing for Samuel and for our entire family! We can’t wait to enjoy this spa for years and years to come!

12/24/2022

🦁💙🧡🦁💙🧡

10/12/2022