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Brogan's Battle

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Brogan's Battle

Brogan is a 2025 Graduate of Nicholls State University, living and thriving with Duchenne Muscular Dystrophy!

Duchenne is a form of Muscular Dystrophy, an illness that affects all the muscles in the body. Progressive muscle weakness leads to serious medical problems, particularly issues relating to the heart and lungs. It used to be said that those diagnosed with Duchenne would likely not live passed their twenties. But, with better research and standards of care, boys and girls with Duchenne are living l

onger and very fulfilling lives. The aim of this page is to share Brogan’s story and all of the triumphs and tribulations of living a life with Duchenne, to show that a diagnosis, does not have to define a person, and that living a full and meaningful life is possible no matter your circumstances. We also hope to raise awareness for Duchenne and the disability community.

05/04/2026

📣 The cast is OFF! 📣
He has to wear the brace for another two weeks, but can take it off for hand washing and showers.
He'll also start PT next week.

04/20/2026

Cast #2
Getting this one off in 2 weeks 🤞

04/13/2026

Brogan's follow-up with Ortho was today. They took another set of x-rays and their has been no displacement. Good News!
He got his hard cast today, and he'll have this one for one week.
He has another follow up appointment next Monday. They'll remove the cast, get a final set of xrays, and re-cast. Then he'll have that final cast for 3 more weeks.
The cast is pretty short and his fingers are completely out. So, he's happy with that.

04/03/2026

Brogan had a fall on Tuesday, and hurt his right wrist.
I brought him to the ER for xrays and he did have a distal radius fracture. They splinted his arm in the ER and told us Ortho would call to make an appointment.
The Ortho appointment was yesterday afternoon. After reviewing the xrays again, they re-splinted the arm. They want to allow for swelling for another week or so and to make sure the fracture does not become displaced.
He'll go back on the 13th for more xrays and they will then make a decision about a cast.
He WILL be getting a cast, just not till the next appointment.
He cannot lift, push, pull, or bear any weight with the lower right arm right now. Nothing heavier than a coffee mug.
Brogan relies heavily on his arms, especially his right one, as he is right handed. This injury is limiting him even more so. He's needing help with getting out of bed, meal prep, toileting, showering; he's basically got one arm right now.
I'm not sure why I've delayed making this; I guess I've just been trying to come to terms with it and what it means for us right now.
But in true Brogan fashion, he hasn't complained at all, and is determined to still do what he can for himself, even if it's harder. I have to remind him that I'm here and I can help.
He says his splint and wrapping looks like a boxing glove.
Gotta love to optimism.
I guess that's it for now.
I'll update again after his next appointment.
And I'll keep trying to take my lead from Brogan, and take this road bump in stride.

03/17/2026

I know it's been a bit quiet on our end lately.
Just wanted to give a quick update.
Brogan has an article in the Spring Edition of the St. Bernard Magazine. So, if you're St Bernard local, make sure to get a copy and check it out. If you're not local, I've included a couple photos and the link to the magazine's website where you have look through the current issue.
Also, Brogan is still on the hunt for permanent employment. And to that end, he is shadowing for the day at Fox8 in New Orleans today.
Send him all the good vibes!

Home - St. Bernard Magazine https://share.google/Z53nZtRok7OEhEVj4

01/29/2026

Life is looking quite a bit different lately. So to get out of the house and do something put of the norm, we went to Trivia Night at one of our local bars.
We didn't win (wound up in 4th place) because we bombed on the last round.
There were drinks, oysters, and too many unanswered questions (at the end).
But we got out, did something fun, and made a new memory.
Only picture from the night . . .
Pirogues Whiskey Bayou

?

01/18/2026

We finally got to celebrate Brogan's graduation with family and friends yesterday.
Thank you to everyone who came, especially everyone who brought food.
And a huge Special thanks to Brogan's Nanny and Uncle for hosting!
We love you all!

01/11/2026

We've been home for about an hour now. Had to stop for some take-out for dinner.
Thanks for following this trip.
I'll try to get that medical update posted tomorrow.
Goodnight yall.

01/10/2026

Another
We are in Athens, AL again, staying the night here on our way back home.
Brogan had his opthalmology appointment this morning and we started our drive down right after that.
On our way down to Athens, we stopped in Louisville to see the Louisville Slugger Museum and Factory ⚾️ Pics below.
We were supposed to make this stop last summer, but Brogan had that fall and broke his leg, and he was hurting too much to make the extra stop then. So glad we got to do it this time.
We'll sleep in tomorrow and head home after a late breakfast in morning.
The last pic is from dinner tonight.
We're currently flipping between ice skating and Indiana / Oregon game on TV.
We'll check in again at some point tomorrow.
GN 😴 🥱 💤

01/09/2026

We had a long day at the hospital. We saw and spoke to Dr's from 6 specialities today; neurology 🧠🧬, cardiology🫀🩺, pulmonary🫁, endocrinology 🦴🧪, rehab 🦽, and palliative ⏳️❤️‍🩹.
Some test results and nexts steps were discussed.
All the results of Brogan's bloodwoork is never immediately available before we head back home, so additional info may becoming in the next few days.
Although, I'm not prepared to give a full update, I will say that for all intents and purposes, Brogan continues to be STABLE in all the most important areas.
He still has one more appointment tomorrow morning with ophthalmology 👓. And results of that appointment could add to an update.
So, I will do my best to type up a full update, once we have all info, after we return home.
After his appointments at the hospital today, we hit three iconic Cincinnati area establishments, Jungle Jim's, Skyline Chili, and Graeters Ice Cream (see pics).
We're back at the hotel now; I'm in the room packing up, and Brogan is down at the hotel bar, having a drink and watching the Miami/Ole Miss game, hoping for a Miami win.
Tomorrow will be a busy day. We're hoping to hit the Louisville Slugger Museam on the way back down to Alabama.
I'll try to update yall when we get back on the road after the opthalmology appointment tomorrow.

01/08/2026

It was a busy day.
We got up dark and early to head to the hospital for bloodwork, breakfast, lung function testing, ekg, spine xray, physical therapy, nutrition visit, and wrapped up with a cardiac MRI and had lunch before we left.
Then we headed to the movies to see Marty Supreme then we played trivia and won our dinner.
Now it's off to bed. 🥱

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Louisville, KY
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