Cure for Emmery

01/11/2025

Hi everyone!

February 28 is Rare Disease Day, and for the month of February, KIF1A.ORG is hosting “Miles that Matter!” Register at the link below for $28 and run, walk, swim, crawl, use your wheelchair or walker to get 28 miles in in the month of February! Our sweet KIF1A loved ones never take their movement for granted, so let’s celebrate our abilities! All registration fees and donations go straight to KIF1A.org. If you complete the 28 miles, you can submit for your chance to win an Amazon gift card!

After you register please join “Team Emmery”! We already have 7 members, and we would love to have more Cure for Emmery supporters join us! I’m personally excited about the motivation to get some good exercise in after the new year! Thank you as always for your support in helping us find a cure for Emmery 🫶🏼

https://runsignup.com/milesthatmatterforkif1a

11/28/2024

Such a HUGE thank you to everyone who came to Bid for a Cure this year, donated, sponsored, and bid on items! We are surrounded by such a caring, loving, and generous community, and it is not lost on us how lucky we are! Thank you for always showing up and constantly being there for Emmery and our family! Happy Thanksgiving! The total raised this year at the Bid for a Cure Emmery Morris Silent Auction is $14,366.77!!!

11/28/2024

11/23/2024

Sweet Yandi lost her battle with KIF1A today at 5 years old. Sending so many prayers to her family.

We will always remember the KIF1A superheroes we have loved and lost. We honor their memories by continuing our relentless mission to find a cure for KIF1A Associated Neurological Disorder. Visit the pages below to learn more about the legacy and impact of each of these mighty superheroes.

09/25/2024

Emmery painted a picture that is now up for auction! Auction is put on by N-Lorem Foundation, the nonprofit that is making Emmery her very own A*O drug! ♥️

https://www.nlorem.org/auctions/?fbclid=IwZXh0bgNhZW0CMTEAAR3SMOWyuzTlYdFG3FtcyiZ7rO0Jvoa3rLSDWu-1tvkjd2EljC67HjwIUuc_aem_Bu1V17H9ovZPSv4waLCRCA

Auctions Please be aware: Upon placing an initial bid, your name will appear in the bid section. If you wish to remain anonymous within the public sphere, please name yourself "anonymous". Auction concludes October 30, 2024 @ 7:00pm ET. The winner of the auction will be contacted via email. If atten...

09/25/2024

What an incredible company! Thank you so much to our title sponsor Redstone Realty Solutions . They showed up BIG time by not only sponsoring, but by closing down their office and volunteering at the golf tournament! We are forever grateful KIF1A.ORG

09/21/2024

I spy my little munchkin’s BEAUTIFUL artwork up for auction! 👀🥰

09/20/2024

It’s a beautiful day for a Golf Tournament! 🏌️‍♀️🏌️‍♂️🏌🏿