04/16/2022
This is Lupus. 💜
A few months ago I was diagnosed with & which my neurologist discovered after a series of tests, ordered after an 8-day migraine that landed me in the ER on New Years Day.
For years I have been so confused by the extreme fatigue, brain fog, headaches & random body aches that would affect me at random times. To compensate, I would over-caffeinate and tell myself to “suck it up” but i always wondered why I seemed to experience these things so intensely when those around me wouldn’t.
Now I have some answers, but the battle is still uphill… I am extremely grateful to my family, friends & colleagues who have been so patient with me.
Dealing with an autoimmune disease is so frustrating for all involved, for me because the pain, fatigue & flairs can be SO intense, and for those around me because it’s so confusing, one day I’ll be fine and the next I can barely lift my head up….
Today is one of those “I can’t lift my head up” days, and it sucks.
I have been so hesitant in sharing my diagnosis, honestly, because I didn’t want to seem weak. But as the lupus flairs get more frequent & intense, I am deciding to no longer suffer in silence.
My relationship with social media is a love/hate one (as it is for many of us) - but im hopeful that in sharing my experience, I can find a community of fellow & feel less alone, especially on days like today.
Please do not let this news change your view of me. I will never let lupus, Lyme, migraines or anything else for that matter define me. Only I can define me. I’m still a badass b*tch and will not give up on living life to the absolute fullest.
Thanks for reading, here’s to ✌️💜