12/05/2025
✨ What 25+ Years of Living With MS Has Taught Me
A message of teaching, advocacy, and truth.
Hi, I’m Mara — and I’ve been living with Multiple Sclerosis for over 25 years. When I was diagnosed, I thought my story was ending. What I didn’t know was that my story was really just beginning.
MS has shaped every part of my life… medically, physically, emotionally, and even in my friendships. And after two decades, here’s what I’ve learned:
1️⃣ Medically — MS Is a Journey, Not a Moment
Treatments change. Symptoms change. YOU change.
I learned to advocate for myself in every doctor’s office, ask questions, and honor that my MS is unique to me. This is why I speak up today—for access, research, equity, and every person living with this unpredictable disease.
2️⃣ Physically — Strength Looks Different Than I Expected
My body has asked me to adapt again and again.
Some days are light. Some days are heavy.
But MS taught me to meet my body where it is, not where I think it “should” be.
That’s what led me to yoga—
movement that honors fatigue, strength, rest, breath, and healing.
Now I teach others, especially those with chronic illness and seniors, that movement doesn’t have to be perfect to be powerful.
3️⃣ Emotionally — Holding Grief and Gratitude Together
MS broke me open… and asked me to rise.
I’ve felt fear, frustration, hope, joy, and everything in between. Over time, I learned the beauty of choosing grace, pacing my energy, and allowing myself to be both vulnerable and strong.
4️⃣ Friendships — Finding My People
MS will show you who is truly meant to walk beside you.
Some friendships faded.
Some deepened.
And some new ones—especially within the MS community—became family.
Community is medicine. Connection is healing. Advocacy is purpose.
So What Has MS Meant to Me After 25+ Years?
It has meant transformation.
It has meant courage.
It has meant rewriting my life again and again—with compassion and resilience.
I don’t just live with MS.
I lead with it. I teach with it. I advocate with it.
And I use my voice so no one walking this path ever feels alone.
To anyone newly diagnosed or struggling:
You can have MS and still build a beautiful, meaningful, joyful life.
You can rewrite your story.
You can rise.
Mara-💛