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Gideon, A Mighty Warrior's Journey, Millmont, PA (2026)

02/18/2026

Gideon is feeling much better and we are hopefully at the tail-end of this hospital admission. He was very excited to hear the plan for today from the doctors and is giddy with excitement at the thought of going home soon.

Thank you all for your continued prayers, love and support!

I can think of very few things more beautiful than the joyful laughter of my children. It is like a sweet song to my ears, a memory to cherish always in my heart!

"I will give thanks to the Lord with my whole heart; I will recount all of your wonderful deeds." Psalms 9:1

02/15/2026

One thing we rely heavily on while inpatient is music. Filling our room with the sounds of the spirit and the word of God is so empowering when everything else is so out of our control.

Today I was just worshipping away while Gideon was sleeping and his song came on. His soul just came to life and he woke up and immediately started worshipping too! Hands in the air, giggling, and moving his body as much as he can, huge smile and all! Oh the joy of childlike faith! (He fell right back to sleep when the song was over and the next song came on!)

Thank you Brandon Lake for your song Miracle Child! There are time my emotions take over and I can't make it through the song without tears flowing down. I am so thankful for my miracle child and though I don't know the fullness of Gideon's testimony, I am confident God will use it for His Glory!

If you're unfamiliar with the song, I have listed some of the lyrics below along with the link. I hope it brings comfort to all who listen to it! 💗

"I shouldn't be alive
My future was six-feet under
One foot in the grave
No hope to be saved, yeah
I shouldn't be alive
But I'm a miracle child
Defied every diagnosis
And as close as it came
I can stand here and say
I'm a miracle child"

"You're the living, breathing God of glory
I'm a living, breathing testimony"

https://youtu.be/3P9YyJ9zPdo?si=OcTFwNPxNpU_SCmu

02/15/2026

A week or so ago I posted on my personal page reflecting on the vows "in sickness and in health," and how we have put that in to practice time after time in ways we have never imagined.

Today, on this Valentines Day, is another example of truly living out in sickness and in health.

Gideon is still admitted at the children's hospital. His sepsis came back clear no infection. However, since he has been throwing up so much he is loosing a lot of electrolytes and his body isn't replacing them fast enough, even on IV fluids. His kidneys just struggle so much. His sodium levels are still higher than they should be, putting him at high risk of more seizures, among other issues.

We made some changes today to add more free water in hopes of getting him more hydrated to balance out the electrolytes and lower the sodium. Some concerns were also raised about his calcium levels so additional testing is in process.

Originally, the plan was to discharge today after getting a negative sepsis rule out but Gideon is making it clear that he needs more time to recover. The doctors are expecting him to be in until at least Wednesday, possibly Thursday.

We spent our day worshiping our Savior, calling daddy and siblings, opening valentines from the nurses and playing with play doh, even making a rose.

It wasn't a perfect valentines day by any means but it just gives another perspective on what is really important in this life. We are both so ready to be home with the rest of the family!

"The Lord your God is in your midst, a mighty one who will save; he will rejoice over you with gladness; he will quiet you by his love; he will exult over you with loud singing" Zephaniah 3:17

02/12/2026

We have had a stomach bug making it's way through the house. As much as I tried to shield Gideon from it, it hit him yesterday. He threw up several times throughout the day but we were able to keep his blood sugar regulated and he didn't have any fevers. Last night around midnight Gideon began seizing, thankfully I was still awake to take notice. We gave 2 rounds of rescue and couldn't get it under control. We were transported via ambulance to Geisinger and are still in the ED awaiting a bed on the children's floor.

Gideon is already in better spirits. Thank you all for your continued prayers, love and support!

"So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal." 2 Corinthians 4: 16-18

02/12/2026

Prayer Warriors Needed!!🙏🙏

01/26/2026

I hope everyone is staying safe and warm during this snow storm.

Since Gideon can't go out and play in the snow, mommy brought some snow inside for him to explore. Please enjoy the many expressions of Gideon doing something new to him.

"Give thanks in all circumstances; for this is God’s will for you in Christ Jesus." 1 Thessalonians 5:18

12/23/2025

Preparing our hearts to celebrate the birth of our Savior! We are thankful to be home as a family and for our healthiest year yet! We are hopeful for big accomplishments in this upcoming new year! Thank you all for your continued love and support! Wishing you all a very Merry Christmas!

"For to us a child is born, to us a son is given;
and the government shall be upon[a] his shoulder,
and his name shall be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace." Isaiah 9:6

12/08/2025

Another amazing update about Gideon!🎉

As soon as I opened the app tonight Gideon selected "WANT, BLANKET, TUCK IN." I said ok let me get you a blanket. For reference he almost always has a blanket especially during the colder months because he struggles to regulate his body temperature. When he doesn't have one on it makes sense that he asks for one, whether to keep warm or if it just for comfort I am still uncertain. One thing is for sure, Gideon loves his blankets!

I scrolled to a different page of words so he could explore more and while looking around I noticed him rubbing his nose. Then I heard the machine speak, "MY NOSE!" I asked, "Gideon does your nose itch?" And immediately he responded, "A LOT!"

Again, I started crying! Troy and the kids are all here and they start laughing and cheering him on, we all heard him this time! Then the machine spoke, "WHAT?" and Gideon turned to look at me as if to ask what is going on? So I explain we are all just so happy for him to be able to communicate with us and we are so proud of him! He squealed and started kicking his feet like he does when he is really excited!

We are so so thankful!🥰

God you're so good, you're so good to me!

"The Lord is good to all, and his mercy is over all that he has made." Psalms 145:9

12/07/2025

Gideon, my sweet sweet boy, you truly are a miracle and a beautiful gift from God. A new and exciting opportunity that we are so thankful to experience. Gideon's speech therapist has put us in touch with a company that provides eye gaze devices to help people communicate. We are currently on a 2 week trial and when I tell you I am AMAZED by this boy, it doesn't even scratch the surface of just how truly remarkable he is!

To give a little rundown of how the device works, there is a setting that calibrates to his eyes as he looks around the screen. Once it syncs up it follows his eyes as he moves around the screen. He has different apps that he can open by focusing and the eye gaze will open the app. There are words he can 'click' on with his gaze and the machine will speak them. There are also games with animals, musical instruments and animated color pages.

Yesterday we set it up while at speech therapy. Gideon wasn't interested at first but we needed him to wake up in order to sync it up to his eyes. I took his blanket off of him and got him out of his chair to dance around to get him ready to play. Once he was feeling active I put him in his chair and we were able to get the eye gaze calibrated we watched as Gideon explored the app and the different words. He seemed to catch on very quickly as his eyes kept 'clicking' on words and we could hear the machine speaking. He kept going back and forth between "want" and "what?" So I asked him, "Gideon, do you want something? What do you want?" We could see his eyes traveling across the screen as he seemed to be examining the words. He finally came across the word "blanket" and when machine spoke it Gideon's demeanor changed and immediately the eye gaze went back and forth speaking, "Want, Blanket, Want Blanket, Want Blanket." I was enjoying watching him explore and then it clicked HE WAS SPEAKING!! He was requesting HIS blanket, the one I took off of him to help wake him up! I picked up his blanket and asked, "Gideon, are you telling me you want your blanket?" Again the machine "Want, Blanket." I said I am sorry buddy here is your blanket back and placed the blanket on his lap and tucked it at his sides. He squealed with delight and started kicking his legs in excitement!

I looked at his speech therapist and said "I am not crazy, right? That wasn't a coincidence right? He just successfully communicated a want for essentially for the first time right!?!" Still in disbelief I broke down bawling! I can't even begin to describe what I was feeling!

His speech therapist had tears running down her face and said, "Gideon, I am so proud of you for finding your voice! Thank you for telling us you wanted your blanket!"

I was a mess, a happy stunned mess, completely in awe for the next several minutes as Gideon continued to "speak" to us through his eyes gaze. The words that followed were, night-light, tuck in, lights off, goodnight, repeatedly!🤣 He was apparently ready to continue napping!

I am extremely thankful for technology that allows Gideon to have a voice! I am so proud of how hard he works to adapt to the world around him! I am looking forward to continuing to trial this device and hopefully be able to get him one to use permanently!

"On the glorious splendor of your majesty, and on your wondrous works, I will meditate.They shall speak of the might of your awesome deeds, and I will declare your greatness,They shall pour forth the fame of your abundant goodness and shall sing aloud of your righteousness." Psalms 145 5-7

11/09/2025

Thank you all for you love, prayers and support! Gideon was discharged yesterday and we are home. He was struggling a lot today with dykinesia, which he hasn't experienced for a while. I am beginning to think it is stress induced. It is almost like he is having anxiety or panic attacks after hospital stays. I will continue to monitor him and keep track of any patterns. Other than that slight issue things are going well and we are so happy to be home!

"I will bless the Lord at all times; his praise shall continually be in my mouth." Psalms 34:1

11/07/2025

After what started out looking like a very successful morning, the day quickly turned into a very frustrating and extremely long waiting game. I don't like to complain on here for various reasons, mainly because I want this to be a positive and uplifting environment. But there comes a time where I need to be honest and be able to vent/decompress.

I know the medical field is extremely complex and many of the people we are blessed to have part of Gideon's care team are AMAZING, and I truly mean that! There are soooo many doctors and nurses that we truly couldn't get through without. (Shout out to children's 2 for always being the best, not just for Gideon but myself included 💗)

With that said it is extremely frustrating when you plan ahead, speak to multiple people to ensure all of Gideon's plan of care is ready and available prior to coming to a different location only to be met with opposition from doctors who have never seen Gideon but claim to know what will work best for him! Gideon has MANY specialized care plans that are specifically geared towards helping to regulate his very complex bodily needs. He is NOT a 'by the book kid.' I get so tired of constantly arguing for his basics needs when they are literally in black and white in the system, complete with details as to why these are needed.

As tiring as it is, as his mother this is my greatest calling! I am his advocate, his voice and his protector and I will ALWAYS make sure he receives what he needs, I will never stop fighting for him!

Here's to night 2, but looking forward to tomorrow with great anticipation.

Thank you for your prayers, support and for the grace to be real and vulnerable about the reality of advocating for medically complex children. If you know someone walking this journey, tell them they are doing a good job and you are proud of them, because I can assure you they are their own biggest critic.

"Great is the Lord, and greatly to be praised, and his greatness is unsearchable." Psalms 145:3

11/06/2025

Please say a prayer for our Mighty Warrior Gideon! We are admitted at CHOP. He is scheduled for a sedated CT tomorrow to monitor him for kidney stones. He will be receiving IV fluids tonight while fasting so please pray that his electrolytes and blood sugar stays regulated so we can be discharged tomorrow afternoon.

I am struggling a little since the last time he was admitted at CHOP for a 1 day procedure he ran into a lot of complications that kept us admitted for 7 weeks! I am trying to give it to God and trust that He has got this but I would be lying if I said I am not stressing a little over it.

"When I am afraid, I put my trust in you."
Psalms 56:3

Gideon, A Mighty Warrior's Journey

02/18/2026

02/15/2026

02/15/2026

02/12/2026

02/12/2026

01/26/2026

12/23/2025

12/08/2025

12/07/2025

11/09/2025

11/07/2025

11/06/2025

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