Gideon, A Mighty Warrior's Journey

Gideon, A Mighty Warrior's Journey Gideon Montgomery Martin was born with a rare genetic disorder, CACNA1D. This is his story.

Gideon today is the day we celebrate you! You are the big 5, a whole hand-full! You have grown and overcome so much in t...
03/28/2026

Gideon today is the day we celebrate you! You are the big 5, a whole hand-full! You have grown and overcome so much in these long, yet short 5 years. I definitely am not the same person I was the day we met. You have changed me in ways I never imagined possible. You scare me more often than I would like but you also helped shape my overall outlook on life. We often take so much for granted but you help us to appreciate every small moment and look for the joy in everything. You are the grand finale our family needed and the one that brings everyone together! We are so proud of you and every challenge you overcome is a testament of God's glory and goodness! You are the bravest boy I know, my Mighty Warrior! Happy 5th birthday big guy! We love you so big!

"Behold, children are a heritage from the Lord, the fruit of the womb a reward." Psalm 127:3

Thank you to everyone who has been praying for Gideon this week! His levels have stabilized and we were able to get disc...
03/12/2026

Thank you to everyone who has been praying for Gideon this week! His levels have stabilized and we were able to get discharged today! We are so thankful for all of our amazing doctors and nurses who help care for us while inpatient. Gideon will have labs drawn again in a few days to keep a close eye on his levels to ensure he is maintaining everything appropriately.

Please continue to pray that he continues to remain stable so we can stay home with the family. Thank you again for all of the prayers, love and encouragement!πŸ’—

"Let the word of Christ dwell in you richly, teaching and admonishing one another in all wisdom, singing psalms and hymns and spiritual songs, with thankfulness in your hearts to God."

Colossians 3:16

February was a very trialsome month for Gideon. He spent a week in the hospital with the stomach bug and then he came do...
03/10/2026

February was a very trialsome month for Gideon. He spent a week in the hospital with the stomach bug and then he came down with the flu. He was doing so well with Tamiflu, Tylenol and Motrin, keeping his fever down enough to stay out of the hospital. Unfortunately, he has been battling with diarrhea as a side effect and his kidneys have been struggling to keep up. His labs today showed his levels were approaching a critcal high and he would need to be admitted to get fluids to help replenish what he is losing. So tonight we find ourselves once again in the ED being admitted to the children's hospital.

It can feel so defeating at times, spending countless days away from the family and stuck in the hospital but I know God has a plan for Gideon and everything he goes through is just one more page of his story that God will use for His Glory!

Tonight we are trusting God to carry us through. Please join us in praying for God's healing over Gideon and for strength and comfort for the family!

"He who dwells in the shelter of the Most High will abide in the shadow of the Almighty.I will say[a] to the Lord, β€œMy refuge and my fortress, my God, in whom I trust.” Psalms 91:1-2

Picture below of big brother Benjamin comforting Gideon while he battled the flu. πŸ₯ΉAnd tonight Gideon snuggling his Bluey and Moose-Caboose while in the ED. πŸ₯Ί

02/18/2026

Gideon is feeling much better and we are hopefully at the tail-end of this hospital admission. He was very excited to hear the plan for today from the doctors and is giddy with excitement at the thought of going home soon.

Thank you all for your continued prayers, love and support!

I can think of very few things more beautiful than the joyful laughter of my children. It is like a sweet song to my ears, a memory to cherish always in my heart!

"I will give thanks to the Lord with my whole heart; I will recount all of your wonderful deeds." Psalms 9:1

One thing we rely heavily on while inpatient is music. Filling our room with the sounds of the spirit and the word of Go...
02/15/2026

One thing we rely heavily on while inpatient is music. Filling our room with the sounds of the spirit and the word of God is so empowering when everything else is so out of our control.

Today I was just worshipping away while Gideon was sleeping and his song came on. His soul just came to life and he woke up and immediately started worshipping too! Hands in the air, giggling, and moving his body as much as he can, huge smile and all! Oh the joy of childlike faith! (He fell right back to sleep when the song was over and the next song came on!)

Thank you Brandon Lake for your song Miracle Child! There are time my emotions take over and I can't make it through the song without tears flowing down. I am so thankful for my miracle child and though I don't know the fullness of Gideon's testimony, I am confident God will use it for His Glory!

If you're unfamiliar with the song, I have listed some of the lyrics below along with the link. I hope it brings comfort to all who listen to it! πŸ’—

"I shouldn't be alive
My future was six-feet under
One foot in the grave
No hope to be saved, yeah
I shouldn't be alive
But I'm a miracle child
Defied every diagnosis
And as close as it came
I can stand here and say
I'm a miracle child"

"You're the living, breathing God of glory
I'm a living, breathing testimony"

https://youtu.be/3P9YyJ9zPdo?si=OcTFwNPxNpU_SCmu

A week or so ago I posted on my personal page reflecting on the vows "in sickness and in health," and how we have put th...
02/15/2026

A week or so ago I posted on my personal page reflecting on the vows "in sickness and in health," and how we have put that in to practice time after time in ways we have never imagined.

Today, on this Valentines Day, is another example of truly living out in sickness and in health.

Gideon is still admitted at the children's hospital. His sepsis came back clear no infection. However, since he has been throwing up so much he is loosing a lot of electrolytes and his body isn't replacing them fast enough, even on IV fluids. His kidneys just struggle so much. His sodium levels are still higher than they should be, putting him at high risk of more seizures, among other issues.

We made some changes today to add more free water in hopes of getting him more hydrated to balance out the electrolytes and lower the sodium. Some concerns were also raised about his calcium levels so additional testing is in process.

Originally, the plan was to discharge today after getting a negative sepsis rule out but Gideon is making it clear that he needs more time to recover. The doctors are expecting him to be in until at least Wednesday, possibly Thursday.

We spent our day worshiping our Savior, calling daddy and siblings, opening valentines from the nurses and playing with play doh, even making a rose.

It wasn't a perfect valentines day by any means but it just gives another perspective on what is really important in this life. We are both so ready to be home with the rest of the family!

"The Lord your God is in your midst, a mighty one who will save; he will rejoice over you with gladness; he will quiet you by his love; he will exult over you with loud singing" Zephaniah 3:17

We have had a stomach bug making it's way through the house. As much as I tried to shield Gideon from it, it hit him yes...
02/12/2026

We have had a stomach bug making it's way through the house. As much as I tried to shield Gideon from it, it hit him yesterday. He threw up several times throughout the day but we were able to keep his blood sugar regulated and he didn't have any fevers. Last night around midnight Gideon began seizing, thankfully I was still awake to take notice. We gave 2 rounds of rescue and couldn't get it under control. We were transported via ambulance to Geisinger and are still in the ED awaiting a bed on the children's floor.

Gideon is already in better spirits. Thank you all for your continued prayers, love and support!

"So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal." 2 Corinthians 4: 16-18

02/12/2026

Prayer Warriors Needed!!πŸ™πŸ™

I hope everyone is staying safe and warm during this snow storm.  Since Gideon can't go out and play in the snow, mommy ...
01/26/2026

I hope everyone is staying safe and warm during this snow storm.

Since Gideon can't go out and play in the snow, mommy brought some snow inside for him to explore. Please enjoy the many expressions of Gideon doing something new to him.

"Give thanks in all circumstances; for this is God’s will for you in Christ Jesus." 1 Thessalonians 5:18

Preparing our hearts to celebrate the birth of our Savior! We are thankful to be home as a family and for our healthiest...
12/23/2025

Preparing our hearts to celebrate the birth of our Savior! We are thankful to be home as a family and for our healthiest year yet! We are hopeful for big accomplishments in this upcoming new year! Thank you all for your continued love and support! Wishing you all a very Merry Christmas!

"For to us a child is born, to us a son is given;
and the government shall be upon[a] his shoulder,
and his name shall be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace." Isaiah 9:6

Another amazing update about Gideon!πŸŽ‰ As soon as I opened the app tonight Gideon selected "WANT, BLANKET,  TUCK IN." I s...
12/08/2025

Another amazing update about Gideon!πŸŽ‰

As soon as I opened the app tonight Gideon selected "WANT, BLANKET, TUCK IN." I said ok let me get you a blanket. For reference he almost always has a blanket especially during the colder months because he struggles to regulate his body temperature. When he doesn't have one on it makes sense that he asks for one, whether to keep warm or if it just for comfort I am still uncertain. One thing is for sure, Gideon loves his blankets!

I scrolled to a different page of words so he could explore more and while looking around I noticed him rubbing his nose. Then I heard the machine speak, "MY NOSE!" I asked, "Gideon does your nose itch?" And immediately he responded, "A LOT!"

Again, I started crying! Troy and the kids are all here and they start laughing and cheering him on, we all heard him this time! Then the machine spoke, "WHAT?" and Gideon turned to look at me as if to ask what is going on? So I explain we are all just so happy for him to be able to communicate with us and we are so proud of him! He squealed and started kicking his feet like he does when he is really excited!

We are so so thankful!πŸ₯°

God you're so good, you're so good to me!

"The Lord is good to all, and his mercy is over all that he has made." Psalms 145:9

Gideon, my sweet sweet boy, you truly are a miracle and a beautiful gift from God. A new and exciting opportunity that w...
12/07/2025

Gideon, my sweet sweet boy, you truly are a miracle and a beautiful gift from God. A new and exciting opportunity that we are so thankful to experience. Gideon's speech therapist has put us in touch with a company that provides eye gaze devices to help people communicate. We are currently on a 2 week trial and when I tell you I am AMAZED by this boy, it doesn't even scratch the surface of just how truly remarkable he is!

To give a little rundown of how the device works, there is a setting that calibrates to his eyes as he looks around the screen. Once it syncs up it follows his eyes as he moves around the screen. He has different apps that he can open by focusing and the eye gaze will open the app. There are words he can 'click' on with his gaze and the machine will speak them. There are also games with animals, musical instruments and animated color pages.

Yesterday we set it up while at speech therapy. Gideon wasn't interested at first but we needed him to wake up in order to sync it up to his eyes. I took his blanket off of him and got him out of his chair to dance around to get him ready to play. Once he was feeling active I put him in his chair and we were able to get the eye gaze calibrated we watched as Gideon explored the app and the different words. He seemed to catch on very quickly as his eyes kept 'clicking' on words and we could hear the machine speaking. He kept going back and forth between "want" and "what?" So I asked him, "Gideon, do you want something? What do you want?" We could see his eyes traveling across the screen as he seemed to be examining the words. He finally came across the word "blanket" and when machine spoke it Gideon's demeanor changed and immediately the eye gaze went back and forth speaking, "Want, Blanket, Want Blanket, Want Blanket." I was enjoying watching him explore and then it clicked HE WAS SPEAKING!! He was requesting HIS blanket, the one I took off of him to help wake him up! I picked up his blanket and asked, "Gideon, are you telling me you want your blanket?" Again the machine "Want, Blanket." I said I am sorry buddy here is your blanket back and placed the blanket on his lap and tucked it at his sides. He squealed with delight and started kicking his legs in excitement!

I looked at his speech therapist and said "I am not crazy, right? That wasn't a coincidence right? He just successfully communicated a want for essentially for the first time right!?!" Still in disbelief I broke down bawling! I can't even begin to describe what I was feeling!

His speech therapist had tears running down her face and said, "Gideon, I am so proud of you for finding your voice! Thank you for telling us you wanted your blanket!"

I was a mess, a happy stunned mess, completely in awe for the next several minutes as Gideon continued to "speak" to us through his eyes gaze. The words that followed were, night-light, tuck in, lights off, goodnight, repeatedly!🀣 He was apparently ready to continue napping!

I am extremely thankful for technology that allows Gideon to have a voice! I am so proud of how hard he works to adapt to the world around him! I am looking forward to continuing to trial this device and hopefully be able to get him one to use permanently!

"On the glorious splendor of your majesty, and on your wondrous works, I will meditate.They shall speak of the might of your awesome deeds, and I will declare your greatness,They shall pour forth the fame of your abundant goodness and shall sing aloud of your righteousness." Psalms 145 5-7

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Millmont, PA

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