Gideon, A Mighty Warrior's Journey

Gideon, A Mighty Warrior's Journey Gideon Montgomery Martin was born with a rare genetic disorder, CACNA1D. This is his story.

06/26/2025

Gideon is feeling better. We are still in the PICU since he continues to have drops in his blood sugar even though he has been tolerating his feeds. Please be praying we can get him stable so he can get off IV fluids and be able to come home.

"I will bless the Lord at all times; his praise shall continually be in my mouth. My soul makes its boast in the Lord; let the humble hear and be glad. Oh, magnify the Lord with me, and let us exalt his name together!" Psalms 34:1-3

Enjoy us having some fun with play doh!

It has been a long and exhausting 3 days but God is so good! Gideon is admitted to the PICU, he tested positive for rhin...
06/24/2025

It has been a long and exhausting 3 days but God is so good! Gideon is admitted to the PICU, he tested positive for rhinovirus and Human Metapneumovirus which is similar to RSV. Last night he had some issues with low blood sugars and we are working hard to find a balance with his fluids and feeds. He is finally off oxygen and doing very well on room air. He is becoming slightly fluid overloaded so he has be given some lasiks to help him get the excess fluid off. At this point there is no projected discharge date. Please be praying for strength and healing for Gideon as his body is fighting hard to kick this illness and balance all of his electrolytes.

"I have chosen you and not cast you off
fear not, for I am with you;" Isaiah 41:9-10

06/23/2025

Prayer Warriors Needed!💙🙏

We love celebrating our childrens accomplishments! With Gideon we find ourselves celebrating each inch-stone but GOD has...
06/19/2025

We love celebrating our childrens accomplishments! With Gideon we find ourselves celebrating each inch-stone but GOD has done great things!! Yesterday we celebrated a HUGE MILESTONE for Gideon! Gideon is officially 1 YEAR SEIZURE FREE!!!

I double checked with the neurologist last week after his episodes of dyskinesia and he confirmed the EEG showed no seizure activity and dyskinesia is different than seizures so he said absolutely continue the countdown!!

It has definitely been a wild year going from him having seizures every 4-6 weeks and being hospitalized to now going a full year without a single seizure! This feeling is indescribable and we are so thankful! We look forward to watching Gideon continue to grow and learn new things!

"The Lord has done great things for us; we are glad." Psalms 126:3

06/11/2025

Praise God from whom all blessings flow!
Thank you all so much for continued prayers for Gideon and our family! Gideon had an EEG last night and the results showed no abnormal brain activity. Praise God! The neurologist said at this point he doesn't believe what Gideon was experiencing these last two days were seizures. I was able to capture a video last night of his activity and when I showed it to neurologist and he said that confirms the theory that they're not seizures but in fact something called dyskinesia. It is not harmful harmful like seizures so no action needs to be taken other than to monitor him should it happen again. Gideon was discharged and we are now home! Thank you all again for the prayers, love and support!💗

06/11/2025

Prayer Warriors Needed!🙏💙

06/09/2025

Update:Gideon had 2 appointments today during his 2nd appt he began seizing and an ambulance came to take him to the ER.
He just had an appointment with Peds Neurology two weeks ago, they mentioned about how he's gained weight which is good but due to the weight increase he needed to increase 2 of his meds as well. Since he had breakthrough seizures the doctors think they just didn't increase it enough. So they went up a little bit more on his one seizure med. They did do a CT scan just to double check that there are no brain bleeds or anything and thankfully that came back clear. We were discharged and are now home!

Thank you all for the prayers!💗

Prayer Warriors Needed!💗
06/09/2025

Prayer Warriors Needed!💗

Gideon was discharged! We are finally HOME! We arrived home to many packages of love for Gideon! Thank you everyone who ...
04/22/2025

Gideon was discharged! We are finally HOME! We arrived home to many packages of love for Gideon! Thank you everyone who prayed for us, provided a meal for the family, reached out, stopped by to support me and those who purchased things for Gideon from his wishlist. He will really enjoy each one and they will be so beneficial for his PT and OT sessions! We appreciate all of the love and support!

"Greatness, power, glory, victory, and honor belong to you, because everything in heaven and on earth belongs to you!" 1 Chronicles 29:11

✝️He is Risen! ✝️Today may not have been perfect, but time spent with my favorite people is perfect for me! I love them ...
04/21/2025

✝️He is Risen! ✝️

Today may not have been perfect, but time spent with my favorite people is perfect for me! I love them all so much!

Update on Gideon: He is on full feeds and tolerating them, his electrolytes have stabilized and we moved from the PICU to the children's floor! Praise God! We are 1 step closer to getting home!


Happy Easter everyone!

I have had some reach out asking what they can do for Gideon and if there is anything that he needs. The biggest thing f...
04/17/2025

I have had some reach out asking what they can do for Gideon and if there is anything that he needs. The biggest thing first and foremost of coarse is prayers! For those who really feel called to giving I have created an amazon list of some things we have been looking to get for Gideon for PT and OT sessions. I will post the link below.

I love giving so I can sympathize with wanting to do things to cheer him up. This was very humbling to do but I don't want to withhold the joy of giving from someone who feels the desire to express love and support in that way.

Again we appreciate all of the love, support and prayers above all so do not feel obligated to do any more than that. I thoroughly enjoy reading each and every message. You all help encourage me so much!💓

Gideon& #39;s Recovery Gifts - Amazon Gift List - https://www.amazon.com/registries/gl/guest-view/3FYM6AXWLMNA8

Gideon is working so hard to get better but is definitely proving this is a marathon and not a sprint. He began throwing...
04/16/2025

Gideon is working so hard to get better but is definitely proving this is a marathon and not a sprint. He began throwing again through the night when his feed rate reached 65mls. We backed him down to 45mls and are increasing 5mls every 4 hours with the end goal of 76mls.

This momma is struggling hard today as this is such a special time of year and I was really praying to be home by now. Tomorrow I should be spending the day preparing a passover meal to reflect as a family on Jesus' last supper with his disciples. This is something special we do in preparation of Good Friday and Resurrection Sunday and honestly I look forward to it all year.

I would be lying if I said a small part of my heart isn't breaking at the thought of missing out on this special time with my family. I keep telling myself it will be ok we can do it another and while know that is true it still hurts a little.

I know God has a purpose and a plan for everything we go through and He will work this all out for His Glory. I just miss my husband and children, I don't like missing out on family traditions and I am exhausted from hospital stays. But I am oh so thankful for amazing healthcare team working with us, supporting us through this and advocating for us!

"The Lord will fulfill his purpose for me; your steadfast love, O Lord, endures forever. Do not forsake the work of your hands." Pslam 138:8

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Millmont, PA

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