Hope for Hadley

09/07/2025

Come join us today, or you can watch on Facebook live!

09/06/2025

Hadleys scanned showed what is likely tumor progression. The tumors were inflamed, but the growth shown today was much more than just inflammation. We are heartbroken. We are running out of options, and none of them will cure her. Thank you for your prayers over our family.

Here’s a silly picture from last night of her playing with her apples instead of eating them.

09/05/2025

Update!

Hadley is now asleep for scans! She has been vomiting the last two mornings, we think due to anxiety around procedures, but because of that, they decided to intubate her for scans. This broke my heart even though I already knew it was likely. Hopefully she will have an uneventful day of napping in the scanner, and we can get her results quickly this afternoon. Thank you all for praying for our girl today! We are believing in her miracle!

09/05/2025

Prayer request! 🚨🎗️

Hadleys scans are tomorrow morning at 9:30! Please be in prayer with us for the best possible outcome on these scans! They will determine her next steps in treatment and when we will come back to St. Jude. But no matter the results, we will be coming home Saturday! We are so ready to get to come home, but we have to make it through tomorrow, first!

Hadley has had a great week playing with friends, napping and saying “see ya laters” to all of her favorite girls in the school and therapy departments. We’ve found rocks and ducks, made tons of crafts, and ate our weight in chips and cheese dip! I’d say this was a pretty great last week here! Hopefully we can finish off strong with great scan results tomorrow afternoon!

09/02/2025

Hey yall! Don’t forget about the scents fundraiser going on for Hadley! They just released the new fall catalog with amazing scents! Check it out!

I’ll help you find your new favorite things as you explore the shoppable online catalog. With so many items I can’t live without, Scentsy is sure to fill your life with fragrance. Let me know if you have any questions!

09/01/2025

GO GOLD 🎗️

September is Childhood Cancer Awareness month. A month that I didn’t even know was celebrated four years ago, until Hadley was diagnosed with stage 4 brain cancer and our world was turned upside down. When we first found out she had a tumor, we had no idea what was to come. We knew it was “one of the bad ones,” but there was no way to prepare us for her diagnosis or the months and years to come. These pictures are from that first week. The day she had her seizure, before her surgery, and after. Some of them have never even been shared before. It feels like just yesterday when we were traveling behind her on our way to Jackson, scared to death of what was going on. I’m so thankful for how far she’s come, but she still has so far to go, too!

To kick off this month, I’m going to be sharing our fundraiser for the St. Jude marathon. Not only does St. Jude provide everything for their families from housing, travel expenses, meals, treatment and anything else you can think of, they also fund a lot of their own research. Research that is federally underfunded. It has been such a blessing for our family to get some of the best care possible here, and we try so hard to give back when we can!

08/30/2025

Hadleys procedure went pretty well on Thursday, but it wasn’t long before she was struggling with her headache and nausea. She felt pretty bad during the day, but finally was able to get some relief late that night. We did not have one of our usual nurses that night, so while she did finally start to feel a bit better, her entire med routine was screwed up because he “didn’t like how they were scheduled”. We are still trying to get the timing of all of her meds adjusted back to her regular times. Although we don’t expect another admission any time soon, I can guarantee he will not ever be one of her nurses again.

By Friday morning, Hadley was feeling pretty good! She was eating a decent amount, just not drinking enough. We eventually were discharged yesterday afternoon on fluids to help support her! She felt so good that we even made it outside to the playground last night after supper.

She requested donuts yesterday, but it was too late in the day, so this morning we made it happen! They enjoyed them so much! This afternoon, we spent some more time out at the play ground and Hadley was even able to have her fluids disconnected!

Thank you all for praying for Hadley and her treatments this month! We will take this week to recover and pack up, and Friday Hadley will have scans again. We will likely take another 1-2 weeks off to help her body recover and gain strength back, and then we will decide what kind of treatment we will start next.

Please pray for Hadleys scans! We were told to expect to see her tumors bigger than before, and we pray that it is due to inflammation and the tumors dying off. We will not be able to differentiate for sure whether the scans are showing inflammation vs. tumor growth. I pray this trial was the miracle we have been believing in for her, and that she is able to live a long, healthy, beautiful life!

08/28/2025

Hadley is admitted again for her fourth and final T cell infusion scheduled for tomorrow afternoon! She’s very tired this evening and so ready to go to sleep! Admission nights are late and a little hectic, but we should soon all be headed to bed! Please be in prayer for Hadleys infusion tomorrow! Pray that her anxiety is eased before and during the procedure, that the T cells are doing their job to kill every cancerous cell in her body, and that her side effects are minimal and managed quickly!

08/25/2025

Hadley was discharged yesterday afternoon! She wasn’t 100% by any means, but she had made a lot of progress from the day before. She spent yesterday hanging out on the couch until we went to play down stairs for a bit! She didn’t last long, but it was so good to see her up and about wanting to play with friends!

They started her on a couple new meds this week for nausea, a scopolamine patch and olanzapine. These have caused her to have some balance issues and made her very tired last night. She slept on and off from about 9pm until 11:30 this morning. And then it took her another hour before she was ready to get out of bed. She’s also started to have some short term recall issues, as well. We aren’t exactly sure if that is from the trial or the new medications, but likely the trial. We’re hopeful after the trial ends that she will have less issues with her memory recall.

They gave us eclipse balls of hydration fluids and one of her nausea medications. This helps supplement the fluids she’s drinking on her own since she still is not drinking enough to stay completely hydrated. This also helps her not to fight her oral medications, and it’s so easy to hook them up to Mr. Tubey.

Please pray that she continues to get better and build up her strength for this weeks infusion! This is the last infusion of the initial phase of the trial, and then she will have scans again on September 5th. Please pray that this month has been worth all of the pain she has endured and that this trial is working!

08/23/2025

Hadley was up until 4AM last night struggling with a headache, nausea and vomiting. She would doze off for a few minutes, and then wake up again hurting and miserable. She was finally able to get a few hours of rest before she woke up around 6:30 sick again. She has struggled all day long, even with adding multiple new medications. They did her Ommaya tap a couple hours early, but it didn’t relieve any of her symptoms. This afternoon, she began having mild hallucinations, but the team and the doctor over the trial all believe that she’s okay, for now. We gave her a dose of Ativan to calm her down a bit, and also try to help her stomach pain that she hasn’t been able to get rid of. She’s been resting semi-comfortably since then. The doctor over the trial continues to assure us that she is medically stable, but I just can’t believe him. As much as I hope he is correct, I’m going to keep pushing until I know for sure.

Banks and Murphy spent a lot of time in the inpatient playroom today with Dad. Hadley has been so sensitive to noise that it’s just easier to let them go play over there and enjoy themselves.

I am hopeful that she has a much better night tonight and is able to get the rest her body needs to recover! Originally, we were supposed to be discharged tomorrow back to housing, but I think we will be here a little longer. Please continue to pray for our sweet girl! That the T cells are doing their job to kill the cancer cells, that her side effects become much more manageable, and that she gets back to her sassy, silly self! She is so uncomfortable and I just want to take all of her pain away!

08/22/2025

Our sweet baby girl has had a tough afternoon. Her headaches and vomiting began about 30 minutes after the infusion, and took quite a while to get them under control. She was finally able to get a decent nap in after a dose of IV phenergan, and just woke up a few minutes ago. Her heart rate is elevated, likely because she is trying to run a fever. This is a known side effect we’ve been watching for, and are not worried about for now. But, it does make her feel pretty yucky. Based on how the afternoon has gone, we’re expecting a bumpy night. But, as always, we are hopeful she will recover soon and get the rest she needs!