Purple Ribbon Advocates

Purple Ribbon Advocates This page is a safe place to socialize with other epilepsy warriors and caregivers. It’s a place where we share our stories, knowledge, fun relatable memes.

Also a great source for up and coming events that can benefit epilepsy warriors.

05/02/2026

Epilepsy can feel so isolating… especially when you’re the only one in your family who has it.

I remember nights like this… searching for someone—anyone—who understood.
Not sympathy… just understanding.

Then I found my people. 💜
And everything changed.

Now I’m not just surviving it…
I’m helping someone else feel less alone too.

If you’re in that lonely part right now…
stay. keep searching.

Your people are out there.
And when you find them?
It will change everything.

communitymatters storytelling tiktokstory

04/25/2026

Ppl say you don’t have a job… let em know.

Managing meds. Fighting symptoms. Making appointments. Pushing through pain. Still showing up.

Some of us work overtime in battles nobody can see.

Title: Professional Patient.Position: Survivor.Benefits: Still here. 💜

DisabilityAwareness StillStanding

04/24/2026

True story.

I wore sunglasses to class because I thought the room would be too bright. When I got there, the room was dark for the projector, and I thought I was finally safe.

Then a classmate’s phone flashed. I had a panic attack and felt embarrassed.

But I didn’t leave school. I stepped out, got some air, and came back. Another classmate majoring in nursing comforted me.

Some battles are invisible. Some victories are quiet.

KeepGoing AccessibilityMatters

04/24/2026

3.4 million Americans living with epilepsy… yet too many can still be met with cuffs before care.

This is for awareness. This is for change. This is for every person misunderstood during a medical emergency.

Epileptic Americans deserve care, not cuffs. 💜

ThisIsAmerica TikTokActivism

Stay informed on what’s happening in the epilepsy community. Subscribe to the free newsletter at epitomeofepilepsy.org
07/15/2025

Stay informed on what’s happening in the epilepsy community. Subscribe to the free newsletter at epitomeofepilepsy.org

The Trump Affect on the Americans with Disabilities Act
07/09/2025

The Trump Affect on the Americans with Disabilities Act

Are you apart of the 70% experiencing seizure freedom?
07/08/2025

Are you apart of the 70% experiencing seizure freedom?

A letter for the newly diagnosed.
07/08/2025

A letter for the newly diagnosed.

The Trump Affect on ADA.
07/04/2025

The Trump Affect on ADA.

Have you ever had the summer heat trigger a seizure?
07/03/2025

Have you ever had the summer heat trigger a seizure?

The Trump Affect On The Americans With Disabilities Act…I still don’t understand the reasoning behind this action.
07/02/2025

The Trump Affect On The Americans With Disabilities Act…I still don’t understand the reasoning behind this action.

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Moreno Valley, CA

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