Mighty Malachi’s Journey

Mighty Malachi’s Journey Follow us on Malachi’s medical journey with Spina Bifida and Chiari II Malformation.

We had a short stent in the hospital due to shunt failure…. Again…. 2 nights in the hospital (1 being in the ED) and a r...
05/02/2026

We had a short stent in the hospital due to shunt failure…. Again….
2 nights in the hospital (1 being in the ED) and a revised shunt later, we are home and happy!
We made it 1 year and 4 months this time. Here’s to extended that further again.

Just living my best life ❤️❤️
04/20/2026

Just living my best life ❤️❤️

We are 5 days out of a very big surgery. Malachi is going in for a de-tethering surgery. This means that they will be go...
01/29/2026

We are 5 days out of a very big surgery.
Malachi is going in for a de-tethering surgery. This means that they will be going behind his original incision to release the tailbone from muscle and tendon that has created a blockage for the csf to properly flow. He has several pockets of fluid that has collected in his spine that could possibly hindering his range of motion and mobility.
He needs this surgery to be successful. There are several issues we are trying to address with one surgery. Prayers, good thoughts, good vibes, whatever you believe in… we need it. This baby is doing amazing. Eating 3 meals a day and drinking out of a cup with a straw. Trying to roll on his own and get from place to place on his own.
Those of you that have continually prayed for him and our family, we see the prayers.. they are answered. We love you all so so much

12/06/2025

Bragging post!!!
3 ish months ago Malachi wouldn’t hardly eat anything by mouth. He would put some things in his mouth and let them dissolve, but to bite and chew anything, it wasn’t happening.
3 months later… this guy just finished dinner of a piece of pepperoni pizza. If we could get him to fully suck out of a straw, he’d never need to be hooked up to the feed machine again.
I’m so incredibly proud of him ❤️
A short video of him eating lunch the other day. He’s always willing to try something new too.

09/16/2025

Okay. Results are in. Huge shoutout to Dr. McQuade for calling right after the results got in.

Brain looks better when talking about ventricles.

He does have a Chiari II Malformation which could be causing all of the problems he has. Our neurologist is reaching out to our neurosurgeon. Meeting next Thursday with everyone about the results and next steps.

Our neurologist also believes that Malachi may also have Cerebral Palsy. We are going to continue to watch him grow and see how it goes.

Possible surgery to relieve the malformation soon if our neurosurgeon thinks it's appropriate.

Lots of giant things could be happening in the next couple of months. Keep us in your prayers please ❤️

09/16/2025

Malachi goes in tomorrow for a MRI of his brain. This will let us know how bad his Chiari is and other aspects of his brain. This is voluntary anesthesia which always comes with risks. If you all could say a prayer for little guy tonight and tomorrow morning, I’d really appreciate it.
Really hoping we get some answers 🤞🏼🤞🏼

Malachi has come such a long way. He has attitude, tons of personality, and loves fiercely. I have no idea what the worl...
09/08/2025

Malachi has come such a long way. He has attitude, tons of personality, and loves fiercely.
I have no idea what the world would do without his smile in it. ❤️

07/21/2025

I’m finally eating some foods given by other people again. One step at a time ❤️❤️❤️

The face of pure joy ❤️
06/19/2025

The face of pure joy ❤️

6 month ultrasound was today. Kidneys functioning normally. No wall thickening. No inflammation. Aorta looks normal too!...
06/18/2025

6 month ultrasound was today. Kidneys functioning normally. No wall thickening. No inflammation. Aorta looks normal too!!
Woot woot!!!

Im doing okay yall!! Im feisty and opinionated and love to be held. The men in my life are my absolute favorite. And I a...
06/16/2025

Im doing okay yall!! Im feisty and opinionated and love to be held. The men in my life are my absolute favorite. And I am as cute as I could ever be. Mommy promises that she will update more on here.

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Morgantown, WV

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