Haley's Transplant Journey

02/14/2026

Forever grateful for our donor and their families💚💙
Please consider becoming an organ donor

02/14/2026

Today is National Donor Day, a moment to recognize the incredible impact of organ, eye, and tissue donors. When you register as a donor, you’re giving someone in need the chance for healing, hope, and a second chance at life.

One selfless choice can save lives, support families, and create a powerful legacy of love that continues to touch communities for generations.

02/08/2026

I just wanted to take a minute to thank God for everything he has done in Haley’s life. Thank You for everything. Thank You for the gift of life, for the breath in Haley’s lungs, and for the strength to face each day. Thank You for being our provider and comforter, and for Your constant presence in our lives.
We just got back from Houston. We had to make a few med changes and she needs to work on some strengthening. The stent is working great for her. It will need to be shortened a little when we go back due to it rubbing and has caused a little granulation tissue. Her pfts all increased significantly. She walked 100 meters farther than she did last month. She has gained a little bit of weight(every ounce counts!). Her xray and ct scan look better than the last ones. Her lungs are more open than they ever have been. Thank you all for your endless prayers for my sweet girl.

02/02/2026

We made it safely to Houston on Saturday evening. Please keep Haley in your thoughts as prayers as she goes to all of her appointments this week

01/07/2026

We received results from Haley’s bronchoscopy. Her cultures didn’t grow anything and her viral panel was positive for rhinovirus. Her biopsy was limited due to her bleeding during the procedure. They were able to get 1 sample. The sample didn’t show any inflammation or rejection. Thank GOD!! We will continue to monitor her with pulmonary function testing.

01/04/2026

We are getting close to home…2hrs 40mins to go😬

01/03/2026

987 miles…Please keep Haley and I in your thoughts and prayers as we head back to Tennessee🧡🧡

01/01/2026

My girl busted out…lets go to our home away from home. Please continue praying for Haley’s recovery🩷

01/01/2026

01/01/2026

Well today didn’t go as planned. Haley was admitted to the picu for observation(hopefully just overnight). Normally we dilate her airway every 3 months. Its normally 4-5mm and we dilate back to 14mm. On Monday she started having episodes where she felt like she couldn’t breathe. Her oxygen was normal unless she was up moving and then it would drop a little lower than her baseline. She went in for her procedure today and her airway scarred down to about 3mm after having it dilated 3 weeks ago. Its too dangerous for us to live so far away from our ENT with her airway getting so small. So after a long discussion they decided it was best to put in a stent. It is still a little more dangerous than having just a trach but we will take all necessary precautions for her to be safe. She will have to come back to Houston in 4 weeks to have the stent changed out and to revaluate her airway. After that we will come back to Houston every 3 months and ENT will change out her stent and dilate her airway if necessary.
Her pulmonologist was only able to get 1 sample from the biopsy due to her bleeding so much. She did say that her lungs looked good and they were soft and not stiff so that’s a plus. We will get another round of iv steroids while we are inpatient and take a 5 day course of oral steroids just in case there is any inflammation in the lungs. Please continue to pray for Haley’s recovery and pray for this stent to work good for her.

12/31/2025

Please say a quick prayer for Haley as she gets ready to go in for her bronchoscopy with biopsy and airway dilation. Please pray for things to go well during the procedure and also for good results. Thank you from the bottom of our hearts

12/28/2025

We finally made it to our home away from home. Time to rest up for a full day of appointments tomorrow