Endometriosisem

Endometriosisem the life of a 20 something living with chronic illness | endo, adeno, hEDS, MCAS, MTS |

01/16/2026

just incase you forgot, the normal amount of pain is ✨none✨

which is such a crazy concept for me to wrap my head around, and something I need to remind myself often

01/12/2026

just me, my mobility aids & bags on bags of pain relief against the world!!

getting out & about during my period used to be unheard of.. even getting out of my bed to the bathroom felt impossible for the most part

but I just had my first period of 2026 while on vacation, (a vacation I planned specifically so I wouldn't be on my period but let's be real... I never really know/ have control) and getting out of the house & ~actually~ enjoying my time wouldn't have been possible without my mobility aids, pain relief tools, medications (specifically LDN because i'm 2 months in and never thought a period could be so manageable), taking lots of breaks, making adjustments, and having lots of help from my sisters

but there was a time where i'd rather push through the pain, making it worse, and having to cut the day short, rather than using the tools, like my canes, to add comfort & ease to my days, which allow me to do more of what I love

because if something allows me to do more of what I love, and somebody takes it upon themselves to have a problem with that because they don't understand it? that's on them, not me😚

sooo, if this has been the most manageable day 1 of my period ever.. then all i'm learning is I must move here.. could i...
01/09/2026

sooo, if this has been the most manageable day 1 of my period ever.. then all i'm learning is I must move here..

could it be the LDN + all of my other meds + all my pain relief tools? most definitely! but i'm going with it being the san diego air. I don't make the rules🤷‍♀️

a special thanks to:
my sisterswellness






for making the day possible😚

an ongoing list of symptoms I experience living with endometriosis & adenomyosis, because they overlap & it can be hard ...
01/04/2026

an ongoing list of symptoms I experience living with endometriosis & adenomyosis, because they overlap & it can be hard to pinpoint what's causing my pain

comment "community" and i'll send you a link to the Endo Friendos Community, a space open to all- just please read the rules & agree to be accepted💌

I will say, after my endo excision surgery, I know my adenomyosis is far more pronounced than I thought-

my heavy uterus / feeling like my uterus is filled with bricks/ like acid is slowly burning through it, my heavy periods, and intense bloating that seems to linger 24/7? I point that back to adeno

the barbed wire pain, constipation, random stabbing pains throughout my body, chest pain, difficulty breathing, digestion pain, and more intense bloating? I point back to endo

then the leg pain? that's a mixed bag of endo, adeno & may thurners

honestly, most days it's a guessing game.. and I can do everything "right" and still flare up with intense pain- but paying attention to my symptoms has helped me to understand my body more & be a lot kinder to it

home for the holidays? here's some tips on ways I make modifications to show up for myself during the holiday hustle & b...
12/22/2025

home for the holidays? here's some tips on ways I make modifications to show up for myself during the holiday hustle & beyond☃️❄️

comment "HOLIDAY" and I'll send you a link to my travel must haves✨

a repost for my friends with an upcoming endo excision surgery❤️‍🩹
12/22/2025

a repost for my friends with an upcoming endo excision surgery❤️‍🩹

12/11/2025

a haul of my favorite heating pads as a girl who's always with some form of heat❤️‍🔥

in order:
King-Sized Thermorelief Moist Heating Pad
360 Diaper Heating Pad
Artemis 2.0 Heat & Vibration
Apollo 2.0 Heat, TENS & Red Light Therapy
Heated Shorts (and my portable charger)
It wasn't mentioned but should have been, single use heating patches (amazing to keep in my bag at all times for when duty calls)

Links to all of the things in my bio🔗

12/09/2025

my christmas list🎄❤️

• a cure for endo

• for our pain to be believed in the first place.. and for that to be the norm, not the exception

• for more people that don't live with endo to know what it is, that it affects at LEAST 1 in 10 people assigned at birth, that it's listed as one of the top 20 most painful conditions in the world, and that it isn't a women's disease.. endo has also been found in CIS men

• for people to understand that endo is not "just a period disease" and is actually a chronic inflammatory disease that has been found on every major organ in the body and for many, it affects them every minute of every day

• for everyone that's living with endo to know that their pain is valid & they're not just making it up

• for people to make an effort to use more inclusive language to include the wide spectrum of peoples experiences

• for bc to not be the first line of defense when an AFAB person has a health issue/ concern (don't get me wrong, bc helps a lot of people to manage pain, but does NOT get to the root of the problem)

•for every person that's ever belittled someones period pain to get hooked up to a period pain simulator that's turned up to max intensity for 5 minutes and understand that that is a small % of what so many people go through on the daily! I'd just be so curious to see how they feel about that statement after they get a little glimpse into the pain they've so easily dismissed (if they can even handle it that long)

xo, a girl with endo who's in pain & has had enough of the mistreatment that I see to people in the community on the daily

however your email finds me, I apologize in advance for the delay in response! i'm not ignoring you, just in a constant ...
12/05/2025

however your email finds me, I apologize in advance for the delay in response! i'm not ignoring you, just in a constant state of overwhelm and can't keep up💅

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Nashville, TN
37201-37250

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