Faye Ginsburg's Dysautonomia Support Group

Faye Ginsburg's Dysautonomia Support Group Please join me in celebrating my Presidency of the Dysautonomia Foundation and supporting care and research for those struggling with FD

Dear Friends:

Help me celebrate my birthday, and my first year as
President of the Dysautonomia Foundation, the non-profit that supports research and care for Familial Dysautonomia (FD). I had never heard of this life-threatening Jewish genetic disorder until my daughter Samantha was born with it 23 years ago. That was a tough time; we were in and out of hospitals, trying to get Sam launched into a life that at the time, had an expectancy of only ten years. Please join me in celebrating my birthday and my presidency with any help you can offer to support the work of this foundation With the money we raise, Sam and the many others with FD benefit from new studies and remarkable cutting-edge research leading to enhanced and innovative medical care that has vastly improved both the length and the quality of their lives. Here is a link to the Dysautonomia Foundation’s website where you can read about the exciting new research we are supporting, and how you can help us continue with this important work through your support. http://www.familialdysautonomia.org/donate/donate.php?eventID=25

I am deeply grateful for any help you can offer – including sharing this with others -- to continue the foundation's support of research, treatment, and services for the benefit of people with FD. With profound appreciation,
Faye
Dysautonomia Foundation - Donations
www.familialdysautonomia.org
DONATE TO THE DYSAUTONOMIA FOUNDATIONYour contribution can make a difference!Help us provide the best possible medical care and researchfor the benefit of people with FD
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Rayna Rapp and I are really thrilled to have Disability Worlds out in the world at last, and grateful to have this beaut...
04/07/2024

Rayna Rapp and I are really thrilled to have Disability Worlds out in the world at last, and grateful to have this beautiful photo of Sam on the cover. Wow!
The book chronicles and theorizes two decades of ethnographic research in New York City’s wide-ranging disability worlds that we traversed as parents, activists, anthropologists, and disability studies scholars. We tell the stories of advocates, families, experts, activists, and artists engaged in larger struggles for disability rights and justice. We show how disability consciousness emerges in everyday politics and practices, track the dilemmas of genetic testing and neuroscientific research, the reimagining of kinship and community, the challenges of “special education” and the perils of falling off the disability cliff...along with the vitality of neurodiversity activism, disability arts, and public culture that are opening pathways into disability futures.

[Duke University Press. Discount code: E24GNSBG]

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