Caily's World

Caily's World 17
Living it up with Down Syndrome
My mom runs this page but I’m around too!
“I love my family,I love G-D, and I love myself “

Popped up in my memories Have you read the article West Sidebar wrote of me back in 2011? Read it here: THE AMAZING STOR...
12/01/2025

Popped up in my memories

Have you read the article West Sidebar wrote of me back in 2011?

Read it here:
THE AMAZING STORY OF AN UPPER WEST SIDE HERO AND THE LOCAL GIRL WHO WON $1,800 WRITING ABOUT HER

Earlier this month, Arianna Samet, a 13-year-old girl from the Upper West Side, won first place in the Kaplun Foundation’s annual writing contest, and was awarded $1,800. Samet, a seventh-grader at the Manhattan Day School, wrote an essay for the contest about her former next door neighbor on the Upper West Side. The essay topic was “Who is Your Hero?” Arianna’s piece won first prize, beating out more than 300 entries from all over the world.

Jodi Samuels, the subject of Arianna’s essay, is an immigrant from South Africa who has become a kind of one-woman welcoming committee for Jewish immigrants throughout the world. She has had thousands of new New Yorkers over to her home for Sabbath dinner — literally, dozens of strangers at a time, packed into a normal-size New York apartment — and has been a leader in helping immigrants acclimate.More than 60 people who met at parties she organized have since gotten married, said Arianna’s mother Anne Samet. Her newest mission is helping children with special needs get a Jewish education.

Please read Arianna’s essay below, reprinted with the permission of Kaplun Foundation president Aaron Seligson and Arianna. The full question was: “Who is your hero, Jewish or non-Jewish, living or dead, and what did he or she do that exemplifies a core Jewish value that is meaningful to you.”

By Arianna Samet

Jodi Samuels is my hero. Jodi is the mother of three young children and sets a great example for them all. She is a warm person, whose home is always open; even to strangers. This is someone, who was given a challenge in her life, but has chosen to embrace it rather than just deal with it. But, it doesn’t stop there. She continues to spread awareness and has provided opportunities for those with similar circumstances at first throughout her community, but now, throughout the world.

Jodi exemplifies Hachnasat Orchim by welcoming others into her home. She and her husband Gavin, moved to New York City in the year 2000. They both grew up in South Africa and came to New York after having spent a few years in Australia. They only knew a few people when they arrived and felt that there must be many other “Internationals” in New York, who like them, were lonely in a new country and were looking for a sense of community.

She co-founded JICNY (Jewish International Connection New York), to meet the needs of international Jews in New York City. Beginning with one Shabbat meal in her home, she and her husband Gavin have now hosted over ten-thousand guests from other countries for both Shabbat and holiday meals. The organization caters to Internationals in New York City hoping to give them a home away from home with opportunities such as Torah classes and classes on how to find your future spouse. Since its establishment, JICNY has led to countless relationships and at least sixty marriages! Jodi’s door is truly open to all. If someone needs a place to stay, Jodi will make room for them whether for one night or for months at a time!

Any Jew who has lived in New York City from another part of the world has been touched by Jodi and the JICNY. In fact, this past summer my mother and I were in a restaurant in Paris. The waiter asked where we were from and we were surprised to find out that he had lived in New York for a couple of year’s right across the street from our apartment. We were not surprised however, to find out that he knew Jodi. When we asked him about her, his face lit up. He said that he had eaten in her home a few times and that he had attended a number of the JICNY programs. While he didn’t think that Jodi would remember him, he would always remember her with appreciation for the community that she helped him to have while away from home.

A couple of years ago, Jodi gave birth to her third child. A beautiful little girl, Caily was born with Down’s syndrome. Many, if not most parents, would look at the birth of a special needs child as some sort of punishment. Not Jodi and her husband. Rather than saying, “Why me,” they said, “Of course us!” Their feeling was that who else should G-d choose other than ones who open their home to all and strive to make a difference for all. From the moment that she heard the diagnosis, Jodi has been hard at work making sure to give her precious Caily every opportunity that her other children have. She has also worked tirelessly to make sure that all Jewish children with Down’s have opportunities.

Jodi is not only opening her home to people and working on JICNY, she is also spearheading an effort to make sure that all children with Down’s who are high functioning, have the ability to be mainstreamed at a Jewish Day School.

Jodi was nominated as a National Jewish Community Hero and was a finalist. She sleeps only three hours each night; not because she is not tired but rather, because there is work to be done, work to change the lives of others, work to change the world for the better!
Jodi takes the core Jewish values of Hachnasat Orchim (having an open house to guests) and helping those in need to a new level. While she is only in her mid thirties, Jodi has done more good than hundreds could do in a lifetime. Jodi Samuels is amazing and she is my hero!

Except from Chutzpah Wisdom and Wine - the journey of an unstoppable woman. Available on Amazon

Today felt different.There was no school because of Chodesh Irgun. Everyone in my grade went to the big event. I used to...
12/01/2025

Today felt different.

There was no school because of Chodesh Irgun. Everyone in my grade went to the big event. I used to go too, but it became overwhelming. Too loud. Too much. So this year I stayed home.

I felt sad not being part of it. It is hard when everyone else is doing something together and you choose something different.

But my mom took me to the beach. Just us. Sand. Waves. Quiet. Space to breathe and be myself.

This is my journey. It does not always look like everyone else’s. But it is mine. And I am learning that choosing what feels right for me is not missing out. It is showing up for myself.

And that is something to be proud of. 💛

Caila started teaching me lessons the day she was born!  One of the most powerful examples of hosting through challenge ...
11/26/2025

Caila started teaching me lessons the day she was born!

One of the most powerful examples of hosting through challenge happened in 2008, when I was in my ninth month of pregnancy. I went for a routine check-up and the doctor immediately saw that my amniotic fluid was dangerously low. Because I had already had two C-sections, they insisted on delivering the baby right away. My first instinct was not medical fear. It was, “But I am hosting a Shabbat meal this week.” The doctor stared at me and said, “You are having a baby.”

Our daughter was born that Monday. Soon afterward we received her diagnosis of Down syndrome. We had no prior indication and the news was a shock. I was recovering from surgery, absorbing the diagnosis, and trying to understand how our lives were about to change.

Yet that week was Shabbat Across America, one of our biggest programs. We coordinated one hundred and fifty people across different homes for Shabbat meals and then gathered afterward for dessert and a speaker. It was our signature event and I was one of the hosts, with fifty guests expected at our table.

I arrived home from the hospital on Thursday, still sore and emotionally raw, but determined to host. Everyone thought I had lost my mind. I compromised by ordering catered food. Guests arrived with no idea what we were carrying inside. I welcomed them, led the evening, and afterward went to the group dessert with the baby in tow. Hosting grounded me that week. It reminded me of who I was, the community we had built, and the purpose that kept me strong.

I was the shy girl. The quiet one. The person who never raised her hand in a group. Even during my MBA, I was never the ...
11/25/2025

I was the shy girl. The quiet one. The person who never raised her hand in a group. Even during my MBA, I was never the one presenting.

I ran an organization for years with a partner who was the public face. He greeted the crowd. He led the events. I stayed behind the scenes organizing, building, doing. But I was never the speaker.

Then my daughter was born in 2008, and everything changed.

Very early on I understood that if I did not like the world as it was, I would have to be the one to change it for her. I did not fully grasp what that meant until she was denied entry to a 2 year old program at the very school her siblings attended. She was two years old. The entire purpose of the program was socialization and communication. We were not asking for her to enter first grade or high school or medical school. I just wanted my daughter with Down syndrome to have the same start as every other child.

I had given so much to that community. I could not believe that the same community said no to my child.

After months of trying to advocate, explain, reason and challenge the school to do not what was easy but what was right, the answer remained no. So I did the only thing I could. I raised awareness. I organized a major event. Hundreds of people came. The media showed up. I invited powerful speakers. And I had no intention of being one of them.

But at the end of the night, every journalist wanted to interview me.

I pushed my husband forward. He refused. He said, “You organized the event. You speak.”

That moment became my lights, camera, action moment. The moment I stepped into the spotlight not for ego but for purpose. The moment I understood that my voice mattered. The moment I decided to use it.

Today I speak all over the world on the Secrets to Success, based on my book Chutzpah, Wisdom and Wine. I run disability awareness programs and advocacy workshops. I am now the public face of my organization, leading from the front and using my voice to create change.

And here is the point of this post.

I changed. Completely. And so can you.

You do not need to be born bold. You can learn to be bold. You can decide to step up. You can choose to become the voice you once thought belonged to someone else.

Change is possible. I am proof.

Thanks Caily's World for the inspiration

I watched a speech this week that I cannot get out of my mind.Released hostage Avinatan Or stood on stage and described ...
11/21/2025

I watched a speech this week that I cannot get out of my mind.
Released hostage Avinatan Or stood on stage and described more than two years underground in tunnels. No daylight. No human faces. No certainty that he would survive. He told us about digging through darkness during an escape attempt until he finally saw stars. For a moment he tasted freedom. Then he was caught and punished.

It was almost impossible to breathe while listening.
But what shook me the most was what he said quietly.
He refused to be a hostage in his mind.

Even in the worst isolation, he created structure. He repeated words like patience. Let it be. This will pass. He protected a small flame of hope. He believed people were praying for him and fighting for him. He would not let darkness decide who he would become.

As I listened, something in me connected deeply.
Not because my pain is the same as his.
It is not.
But because I know what it feels like to face a moment that changes everything.

In 2008, after Caila was born, the doctor walked into the hospital room and asked the question that changed my life. Did you do genetic testing? Soon we learned that Caila has Down syndrome.

Shock.
Fear.
And a wave of questions that threatened to swallow me.
What would this mean for my career?
My passion for travel?
Hosting hundreds of guests?
What would it mean for my other children?
My marriage?
My dreams?

I looked in the mirror and asked myself a question that shaped my life.
What kind of mom and wife do I want to be?
What legacy do I want to leave?

I knew then that the challenges would not define my story or the story of our family. I would not let fear become my identity. I would rise. I would choose meaning. I would choose purpose.

That is why Avinatan’s words moved me so deeply.
We do not choose our pain.
We do not choose trauma or darkness or the moments that break our hearts.
But we do choose what happens next.

Avinatan walked out of captivity with a decision. Not to live as a victim. Not to let evil define him. He chose to turn pain into purpose and to speak for others who cannot speak yet.

His message is a reminder that freedom begins long before chains are removed. It begins inside us. It begins with the decision that our spirit is not up for negotiation. It begins when we turn the most broken part of our story into the part that helps others heal.

I cannot stop thinking about his words.
Even in the deepest darkness, we still have the power to choose who we become.

Shabbat shalom

The only person who needs to believe in you is you. Everyone else is optional.Ana Victoria Espino de Santiago has made h...
11/19/2025

The only person who needs to believe in you is you. Everyone else is optional.

Ana Victoria Espino de Santiago has made history as the first lawyer with Down syndrome, earning her degree at 25 in Zacatecas, Mexico. In doing so, she has reshaped the boundaries of what is considered possible.

Her success is more than an individual triumph. It is a rallying cry for inclusive education, systemic support, and a society that values diverse potential. Espino’s journey through an academic system not originally built for her is a testament to her perseverance and to the power of belief. The belief of her family, her community, and, most importantly, her own belief in herself.

Her groundbreaking accomplishment challenges us to move beyond admiration and into action. Espino’s story highlights the urgent need to reimagine our educational and professional systems with flexibility and equity at their core. True inclusion is not about assimilation. It is about adaptation, providing the tools and environments each individual needs to succeed.

As Ana Victoria sets her sights on advocating for others with disabilities, she is not simply opening doors. She is helping redesign the entire building. Her voice in legal and civic spaces is a powerful reminder that real change begins when everyone has a seat at the table.

Source: Coelho, R. (September 5). Redefining “possible”: Ana Victoria Espino’s triumph as the first lawyer with Down syndrome. The Big Smoke.

11/05/2025
Love and nurturing can change a child’s reality!
11/05/2025

Love and nurturing can change a child’s reality!

💙 Life with Caila: Beautiful and Difficult, All at Once 💙Because of my daughter with Down syndrome, I see life’s contras...
11/02/2025

💙 Life with Caila: Beautiful and Difficult, All at Once 💙

Because of my daughter with Down syndrome, I see life’s contrasts more clearly than ever, the heartbreak and the joy, the struggle and the triumph.

Some days, my heart feels heavy. I wonder what else I can do to help her, why it feels so hard. Then the next day, she surprises me with a smile, progress, or a small victory that feels enormous.

With Caila, life is intensified, higher highs, lower lows, deeper love. It’s everything, all at the same time.

Exhausting and magical.
Challenging and full of light.
Hard and beautiful. Always.

💛 Because when we love deeply, we feel it all deeply. And that’s the gift she’s given me.

“She’s Redefining Beauty One Step at a Time” — Meet Strictly’s Ellie Goldstein, the Trailblazing Model With Down Syndrom...
11/01/2025

“She’s Redefining Beauty One Step at a Time” — Meet Strictly’s Ellie Goldstein, the Trailblazing Model With Down Syndrome Who Made British Vogue History and Stole the Nation’s Heart
FULL: https://pulsenewsupdate.com/h45l
Goldstein was the first model with Down syndrome to appear on the cover of British Vogue in 2023... 👇👇

What do you think?  Jodi's Voice
10/27/2025

What do you think?
Jodi's Voice

October is World Down Syndrome Awareness Month! This month we celebrate the beauty of inclusion, the strength of diversi...
10/26/2025

October is World Down Syndrome Awareness Month!

This month we celebrate the beauty of inclusion, the strength of diversity, and the joy that individuals with Down syndrome bring into our communities.

At Caily’s World, we believe that everyone belongs and that together we can create a world where every person is seen, valued, and included. 🌍

Let’s use this month to spread awareness, love, and understanding, one story, one smile, one act of kindness at a time. 💕

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