Caily's World

Caily's World 16
Living it up with Down Syndrome
My mom runs this page but I’m around too!
“I love my family,I love G-D, and I love myself “

Good luck Ellie Goldstein  I admire your success, tenacity and mostly your huge smile.Keep showing the world what we are...
09/26/2025

Good luck Ellie Goldstein I admire your success, tenacity and mostly your huge smile.

Keep showing the world what we are capable of. Most important enjoy every moment of the competition!

💃✨🪩🎉

I was in the market today in Tel Aviv - I gave a man charity and in return he gave us a blessing!
09/22/2025

I was in the market today in Tel Aviv - I gave a man charity and in return he gave us a blessing!

In the 1980s, Paul and Kris Scharaun met at a dance for people with disabilities. She wore a simple dress, but her smile...
09/19/2025

In the 1980s, Paul and Kris Scharaun met at a dance for people with disabilities. She wore a simple dress, but her smile lit up the room; he, shy at first, couldn’t stop looking her way.

Both had Down syndrome, but that night there were no labels—only two young people drawn to each other.

Their first dance was clumsy but full of laughter, and that evening a love story began that would defy time and prejudice.

For years they dated, taking trips, walking hand in hand, and spending evenings watching their favorite NASCAR races. Paul was steady and protective; Kris was outgoing and social, the heartbeat of their pair. In 1988, they decided to marry.

At the time, it was rare for two adults with Down syndrome to wed. Some even told Kris she “would never be a wife.” She just smiled and proved them wrong.

They exchanged vows in a small church in upstate New York, surrounded by friends and family. Their marriage became one of the longest-lasting among couples with Down syndrome, enduring for more than 25 years.

Together they built a life of quiet joy—working in inclusive jobs (Paul at a distribution center, Kris in a community assistance program), volunteering locally, and cherishing small rituals: mountain trips, homemade birthday cakes, and the Valentine’s card Kris always left for Paul on the kitchen table. These weren’t grand gestures, but steady, loving acts that stitched their life together.

Their bond was tested when Paul, in his early sixties, developed early-onset dementia. Roles reversed. Kris, battling diabetes herself, became his daily caretaker—managing his medicine, offering comfort, and remaining the one familiar face in his fading world.

Knowing their time was short, they chose to renew their vows. In a quiet chapel filled with tears and love, they repeated the same promise they’d made decades earlier. Paul passed away a year later.

Kris had once been told she would never marry, never know real happiness. Instead, she married the same man twice, lived a love both ordinary and extraordinary, and built a marriage that defied statistics and prejudice.

They were happy—for so, so long.

Their story reminds us that true love knows no limits—not of age, health, or condition. It is simply two hearts brave enough to promise each other forever, and to keep that promise every single day.

Follow us Historical Memories Knowledge

Yishai Ribou Concert …With my sister and a sister from another mister
09/18/2025

Yishai Ribou Concert …With my sister and a sister from another mister

Down syndrome is not a disability—it’s a different ability. 💙Every person deserves respect, love, and opportunities to s...
09/16/2025

Down syndrome is not a disability—it’s a different ability. 💙
Every person deserves respect, love, and opportunities to shine. Let’s raise awareness together! 🌍

Virgin Airlines Australia is winning 👏 The world is healing 🥹
09/15/2025

Virgin Airlines Australia is winning 👏 The world is healing 🥹

I would not be the person I am without my sister.When I wasn’t cute enough for my cousins anymore, or cool enough for my...
09/11/2025

I would not be the person I am without my sister.
When I wasn’t cute enough for my cousins anymore, or cool enough for my teen friends, or fast and smart enough to keep up with some activities, or noticed enough for people to include me - my sister was always there.

She never gave up on me. She always made me feel like I belong.
Thank you, Temira. I love you so much.

How I hope you talk to your typically developing kids about kids like mine (with disabilities) this school year:1. Disab...
09/04/2025

How I hope you talk to your typically developing kids about kids like mine (with disabilities) this school year:

1. Disability is a natural part of life and isn’t a bad thing! It’s part of what makes people who they are.

2. Disability may mean someone’s muscles or brain works differently than yours. This may mean it take a person with disabilities longer to learn how to do things or they may need assistive technology to help with certain things- and that’s okay!

3. Just because someone doesn’t speak the same way you do, doesn’t mean they do not understand what you are saying. Say, “hello!” “Do you want to play with us?”

4. Although people with disabilities may look, speak or move differently than you do- you also probably have a lot in common! Likes and dislikes, after school activities and more. Embrace your differences and similarities!

5. People with disabilities want what you want- they want to be accepted for who they are, they want to be included, they want friends. Be a friend!

Parents of typically developing kids- we need you to set the tone. Have this conversation for your child and for mine.

Caily's World

08/31/2025
 #A life lived in the trenches and in hope ✨The life of a mama of a child with special needs isn’t quiet.It’s a life of ...
08/28/2025

#
A life lived in the trenches and in hope ✨

The life of a mama of a child with special needs isn’t quiet.
It’s a life of advocating when you’re already exhausted.
Of fighting for services while praying for miracles.
Of explaining the same story again and again—to doctors, teachers, strangers in the grocery aisle—while believing, stubbornly, in a better tomorrow.

It’s sleepless nights and endless forms.
It’s tears in the car, laughter in the kitchen, and courage in places you didn’t know you had.
It’s knowing that love can be fierce, messy, holy, and relentless all at once.

And through it all—you keep showing up.
Because that’s what mamas like us do.
Jodi's Voice

Bye Rina Joy Lazar until next time!You have always been an important person in my life!When I lived in NY and we had sig...
08/28/2025

Bye Rina Joy Lazar until next time!
You have always been an important person in my life!

When I lived in NY and we had significant other day at school I had no grandparents or family. You were my “aunty” who showed up, siddur parties, end of year concerts and more

08/26/2025

For a typical teenager this may not be significant for Caila it is. My husband and Caila landed late yesterday. There was not really anything to eat after 2 months away. They were going to out to eat but my hubby was not feeling good. Caila went shopping, planned her menu and executed. A friend staying at us caught the last bit of action on camera!

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