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Shine a Light NF Walk -Children's Tumor Foundation

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Shine a Light NF Walk -Children's Tumor Foundation

Shine a Light NF Walk is the signature fundraising event of the Children's Tumor Foundation. Over the last ten years it has raised more than $10 million.

The Children’s Tumor Foundation’s Walk Program was established in 2009 as an important national fundraising program to support NF research, raise awareness, and provide support for individuals with NF and their families. In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event, to bring NF out of the shadows and inspire the community to come together to raise critical funds for NF research. If you have any questions, please visit shinealightwalk.org or contact us at shinealightwalk@ctf.org.

09/10/2025

✨ Meet Claire Flanagan, this week’s star 💫

Diagnosed with NF1 last May, at only 3 years old, Claire has already shown incredible strength. Since her diagnosis, she has faced countless MRIs, doctors’ appointments, tumors, and medications. NF has brought many challenges for Claire and her family, but through it all, they remain committed to walking beside her every step of the way.

This year marks the very first Shine a Light Walk Cleveland for Claire’s family. To honor her, they formed Claire’s Crew. A team dedicated not only to supporting Claire, but also to spreading awareness and fundraising for the NF community.

For the Flanagans, the walk is more than just an event. It’s a chance to connect with others, raise awareness, and bring hope to families who share the same journey.

Candace shares:
⭐ “It is important to us to be there to help support everyone who is going through this and to help spread as much awareness and funding as we can. Since there is no cure, we try to do as much as we can to help support Claire and all the individuals going through this disease.”

Together, Claire’s Crew will shine a light for Claire and for all our NF Heroes. Thank you for sharing your story 💡💙

Join us and Claire’s Crew for the first Cleveland Shine a Light Walk this year!

09/03/2025

Welcome back to another ! Today we recognize 3-year-old Isabelle Mota, the heart of Team Izzy Bear for the Shine a Light Walk Southern California. ☀️🧸

Isabelle’s mother, Darlene first connected with Children’s Tumor Foundation through the website after Isabelle was diagnosed with NF1 at one year old.

Each year they look forward to meeting more people and showing our NF heroes they’re not alone in this fight.

Darlene shares, “It’s hard. I am just learning what her future holds. This walk is important because we need more visibility on this diagnosis.” Thank you for sharing your story 🫂

Join Team Izzy Bear, and countless others as we come together to 💚💙

08/27/2025

This we want to congratulate Utah, our first walk of the season, for an amazing event!

Over 100 people came out to Shine a Light on NF, raising over $19,000 and counting!

We celebrated 41 NF Heroes and had a blast!

Thank you to everyone who joined and supported the NF community this weekend 💙💚

08/20/2025

✨ Happy ! ✨ Can you believe the very first Shine a Light Walk of the season is only 3 days away?! 🎉

We’re so excited to kick things off in Utah this weekend, and we’re honored to introduce Cora Glackin from Team NF1 Mutation Nation! 💙💚

Cora was diagnosed with NF1 when she was less than a year old, part of a family of five known generations of NF Heroes. From the start, her parents, Wendy and her husband, have worked as a team to stay proactive. Setting aside funds for medical bills, paying attention to NF red flags, and making sure Cora receives the best care and educational support possible, even when it means sacrifices in other areas of life.

Wendy first discovered CTF and the Shine a Light Walk through her own search for support navigating a child’s diagnosis. Since then, the Walk has become an opportunity to connect with other parents and kids who understand, to raise awareness among family and friends, and to give Cora the chance to meet others who share her struggles and remind her she’s not alone.

Every year, their family looks forward to seeing the NF community gather in one place, walking side by side toward the same goal. As Wendy puts it:
✨ “It is a place and a time people from all backgrounds share one thing in common (NF) and the same goal—to End NF.”

Thank you, Wendy and Cora, for sharing your story with us. 💙 We can’t wait to walk with you and celebrate the start of another powerful season this weekend in Utah! 🌟

08/13/2025

☀️Meet Katie☀️

9-year-old NF hero and the heart of Team Talan Katie B at the Shine a Light Walk Utah! 🙌

Katie’s journey with NF1 began when her mom noticed an increase in café-au-lait spots when she was just 2. Her pediatrician suspected NF1 and referred her to a genetic specialist but the wait for answers stretched through the pandemic and delayed her appointment nearly 2 years. By the time she was officially diagnosed, Katie was almost 4.

Since then, she’s faced challenges with incredible strength. NF affects her learning and eating patterns, but Katie tries very hard not to let NF get in her way. The Shine a Light Walk is a special day for Katie and her crew, a chance to show her she’s never alone in this fight, to connect with others in the NF community, and enjoy the fun of the auction. Her family is behind her every step of the way!

As her mom says: “Our NF hero’s never walk alone, her fight is my fight. NF is just a thing that happens to Katie not what makes her who she is!” Katie is so much more than her diagnosis. We can’t wait to see Katie and her team soon! 💙💚

08/04/2025

🎉 We have a winner… CONGRATS, CHICAGOLAND!

You crushed it with 134 registrations! 🏆
⁠
A huge thank you to everyone who participated in the 2025 Shine a Light NF Walk registration contest.

Together, you helped us reach 500 registrations in just ONE week. 💪💙 💚

Let’s keep the momentum going as we continue shining a light on our mission to .

07/23/2025

☀️ Hey Walkers! ☀️

We want to feature YOUR story for 👏

The Shine a Light NF Walk community inspires us everyday so we want to hear from you!

Click the link in our bio to submit your story TODAY! 💚💙

07/18/2025

Time to rally your crew and represent your Walk for some friendly competition! 🏆

The Shine a Light NF Walk with the most registrations from 7/28–8/1 will win:

🏙️ City-personalized vinyl stickers
📰 Be featured in the CTF National Newsletter

Get ready to roll in the registrations starting Monday, July 28th! 💚💙

07/16/2025

Woohoo! It’s our first feature of the season ☀️

✨Meet Cody Weibe, proud member of Team Cody & NF Hero reppin’ the Shine a Light Walk Carolinas!✨

Diagnosed with NF1 as an infant, Cody has confronted the daily challenges of living with NF, facing obstacles like spinal surgeries for his scoliosis.

Now 24, Cody wishes to connect with others like him, build friendships, and raise awareness for NF. 💚💙

Cody says it’s always been his dream to be involved with NF community. 🌟

Want to share your story and be featured?! Click the link in our bio to fill out your submission form! 🔗

06/13/2025

HEY WALK FAM! 💙💚✨

is BACK — and we’re kicking off the 2025 season by showing off this year’s awesome fundraising incentives!

Now you can Shine a Light on NF every day and earn some seriously cool prizes while you’re at it:

$100 – 2025 Shine a Light NF Walk T-Shirt
$250 – Shine a Light NF Walk Beanie
$500 – Yeti Rambler 10 oz or Beach Towel
$1000 – Casely Power Pod
$2500 – Shine a Light NF Walk Crewneck
$5000 – Patagonia Terravia Tote Pack 24L
$10000 – Embroidered Patagonia Better Sweater Jacket

is our chance to spotlight the creative and dedicated ways you support your Walk and help us in the fight to .
We can’t wait to see the fun, unique, and inspiring ways you raise funds this season. 🙌

👉 Get started TODAY by registering for a Shine a Light NF Walk near you at shinealightwalk.org!

04/30/2025

We are so excited to welcome these new locations to our Shine a Light NF Walk community! 💙💚

Bay Area: 9/7

Boston: 9/27

Cleveland: 10/11

Registration is open! Visit shinealightwalk.org for more info.

04/28/2025

2025 Registration is Now Open!

is an annual event that brings communities together to honor and support individuals and families living with NF. Each Walk around the country is a chance for participants to meet other NF families and raise awareness of and .

Sign up today! Link in bio

Thank you to our presenting sponsors:
Alexion Pharmaceuticals US & SpringWorksTX

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Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
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http://shinealightwalk.org/, https://docs.google.com/forms/d/e/1FAIpQLScozIMj9Pie36_EDFfvyy9rH7WXDoPYY77hZfFxSztkRKrfsA/

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In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event to bring NF out of the shadows and inspire the community to come together to raise critical funds for NF research.