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Shine a Light NF Walk -Children's Tumor Foundation

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Shine a Light NF Walk -Children's Tumor Foundation

Shine a Light NF Walk is the signature fundraising event of the Children's Tumor Foundation. Over the last ten years it has raised more than $10 million.

The Children’s Tumor Foundation’s Walk Program was established in 2009 as an important national fundraising program to support NF research, raise awareness, and provide support for individuals with NF and their families. In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event, to bring NF out of the shadows and inspire the community to come together to raise crit

ical funds for NF research. If you have any questions, please visit shinealightwalk.org or contact us at shinealightwalk@ctf.org.

08/13/2025

☀️Meet Katie☀️

9-year-old NF hero and the heart of Team Talan Katie B at the Shine a Light Walk Utah! 🙌

Katie’s journey with NF1 began when her mom noticed an increase in café-au-lait spots when she was just 2. Her pediatrician suspected NF1 and referred her to a genetic specialist but the wait for answers stretched through the pandemic and delayed her appointment nearly 2 years. By the time she was officially diagnosed, Katie was almost 4.

Since then, she’s faced challenges with incredible strength. NF affects her learning and eating patterns, but Katie tries very hard not to let NF get in her way. The Shine a Light Walk is a special day for Katie and her crew, a chance to show her she’s never alone in this fight, to connect with others in the NF community, and enjoy the fun of the auction. Her family is behind her every step of the way!

As her mom says: “Our NF hero’s never walk alone, her fight is my fight. NF is just a thing that happens to Katie not what makes her who she is!” Katie is so much more than her diagnosis. We can’t wait to see Katie and her team soon! 💙💚

08/04/2025

🎉 We have a winner… CONGRATS, CHICAGOLAND!

You crushed it with 134 registrations! 🏆
⁠
A huge thank you to everyone who participated in the 2025 Shine a Light NF Walk registration contest.

Together, you helped us reach 500 registrations in just ONE week. 💪💙 💚

Let’s keep the momentum going as we continue shining a light on our mission to .

07/23/2025

☀️ Hey Walkers! ☀️

We want to feature YOUR story for 👏

The Shine a Light NF Walk community inspires us everyday so we want to hear from you!

Click the link in our bio to submit your story TODAY! 💚💙

07/18/2025

Time to rally your crew and represent your Walk for some friendly competition! 🏆

The Shine a Light NF Walk with the most registrations from 7/28–8/1 will win:

🏙️ City-personalized vinyl stickers
📰 Be featured in the CTF National Newsletter

Get ready to roll in the registrations starting Monday, July 28th! 💚💙

07/16/2025

Woohoo! It’s our first feature of the season ☀️

✨Meet Cody Weibe, proud member of Team Cody & NF Hero reppin’ the Shine a Light Walk Carolinas!✨

Diagnosed with NF1 as an infant, Cody has confronted the daily challenges of living with NF, facing obstacles like spinal surgeries for his scoliosis.

Now 24, Cody wishes to connect with others like him, build friendships, and raise awareness for NF. 💚💙

Cody says it’s always been his dream to be involved with NF community. 🌟

Want to share your story and be featured?! Click the link in our bio to fill out your submission form! 🔗

06/13/2025

HEY WALK FAM! 💙💚✨

is BACK — and we’re kicking off the 2025 season by showing off this year’s awesome fundraising incentives!

Now you can Shine a Light on NF every day and earn some seriously cool prizes while you’re at it:

$100 – 2025 Shine a Light NF Walk T-Shirt
$250 – Shine a Light NF Walk Beanie
$500 – Yeti Rambler 10 oz or Beach Towel
$1000 – Casely Power Pod
$2500 – Shine a Light NF Walk Crewneck
$5000 – Patagonia Terravia Tote Pack 24L
$10000 – Embroidered Patagonia Better Sweater Jacket

is our chance to spotlight the creative and dedicated ways you support your Walk and help us in the fight to .
We can’t wait to see the fun, unique, and inspiring ways you raise funds this season. 🙌

👉 Get started TODAY by registering for a Shine a Light NF Walk near you at shinealightwalk.org!

04/30/2025

We are so excited to welcome these new locations to our Shine a Light NF Walk community! 💙💚

Bay Area: 9/7

Boston: 9/27

Cleveland: 10/11

Registration is open! Visit shinealightwalk.org for more info.

04/28/2025

2025 Registration is Now Open!

is an annual event that brings communities together to honor and support individuals and families living with NF. Each Walk around the country is a chance for participants to meet other NF families and raise awareness of and .

Sign up today! Link in bio

Thank you to our presenting sponsors:
Alexion Pharmaceuticals US & SpringWorksTX

01/14/2025

Did you miss us?! 💙💚

Well if you’re looking for a fun way to stay engaged and support CTF before next season, we’ve got you covered.

Join us this February for Cupid’s Undie Run! The mile-ish (21+) fun run is the perfect way to celebrate all the work we did to raise over $1.4 million for our mission to end NF!

Grab your friends, throw on your cutest costumes, onesies, robes, or un**es and get your party on for our NF Heroes.

Book your babysitter and get registered with code - NFPARENTS for 30% OFF! Find a location near you at cupids.org/register.

We hope to see you there!

💙💚

12/04/2024

Today is the LAST day to fundraise for the Shine a Light Walk 2024 season!! 🏆

Your fundraising efforts have already made a huge impact and are helping us take NF out of the shadows. Thank you for pushing towards our mission to END NF!💙💚

Take another look at these awesome incentives, to see what you’ll get. How close are you to the next level?

12/03/2024

Today is GIVING TUESDAY! Every dollar you give TODAY at http://go.ctf.org/give will be doubled! That means twice the funding for critical research, twice the support for families, and twice the hope for a future without NF.

Pat Spencer, a loyal supporter for over 28 years, is matching donations up to $50,000 in honor of her son and grandson, who live with NF1.

Don’t wait! Make your gift now and join us in the mission to https://www.instagram.com/explore/tags/endnf/. Give today: http://go.ctf.org/give Let’s make every moment of this day count!

PLEASE NOTE - These donations that are matched will NOT be allocated toward Shine a Light Walk personal fundraising pages for incentives.

11/11/2024

A BIG thank you to Florida this weekend for wrapping up the 2024 Shine a Light Walk season! 💙💚

Whether you walked with us, joined in spirit, or supported one of our Walkers or Walk Teams with a donation, together we have made a difference in the lives of all those living with NF. And while the 2024 season may be over, our mission to END NF continues.

DON’T FORGET—you can still fundraise for FUN REWARDS until December 4th!🏆🎉

Address

New York, NY

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Telephone

+12123446633

Website

http://shinealightwalk.org/, https://docs.google.com/forms/d/e/1FAIpQLScozIMj9Pie36_EDFfvyy9rH7WXDoPYY77hZfFxSztkRKrfsA/

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Our Story

The Children’s Tumor Foundation’s Walk Program was established in 2009 as an important national fundraising program to support NF research, raise awareness, and provide support for individuals with NF and their families. Over the last ten years it has raised more than $10 million.

In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event to bring NF out of the shadows and inspire the community to come together to raise critical funds for NF research.

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