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Shine a Light NF Walk -Children's Tumor Foundation

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Shine a Light NF Walk -Children's Tumor Foundation

Shine a Light NF Walk is the signature fundraising event of the Children's Tumor Foundation. Over the last ten years it has raised more than $10 million.

The Children’s Tumor Foundation’s Walk Program was established in 2009 as an important national fundraising program to support NF research, raise awareness, and provide support for individuals with NF and their families. In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event, to bring NF out of the shadows and inspire the community to come together to raise crit

ical funds for NF research. If you have any questions, please visit shinealightwalk.org or contact us at [email protected].

11/11/2024

A BIG thank you to Florida this weekend for wrapping up the 2024 Shine a Light Walk season! 💙💚

Whether you walked with us, joined in spirit, or supported one of our Walkers or Walk Teams with a donation, together we have made a difference in the lives of all those living with NF. And while the 2024 season may be over, our mission to END NF continues.

DON’T FORGET—you can still fundraise for FUN REWARDS until December 4th!🏆🎉

09/18/2024

Hope you missed us because it’s ! We are so excited for Utah’s walk this weekend so, today we are highlighting NF Hero Dylan from Team Neerings. Dylan is 5 years old and was diagnosed with NF1 at the age of 2 with genetic testing. Dylan’s mom Stephanie is a nurse practitioner in pediatric oncology. She attended a conference and met a patient education manager who told her about Shine a Light Walk. She tells us, “I chose to participate in the walk to make the big step to engage with the NF1 community after taking many years to process the diagnosis of my son as a pediatric solid tumor nurse practitioner. I am the biggest advocate for my son and ready to start engaging more with the NF community” They look forward to their first year and connecting with the local NF1 community. Utah isn’t the only walk this weekend, Kansas City is ready to rock the walk too! There’s still time to register and fundraise at shinealightwalk.org 💙💚

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08/14/2024

Welcome back to ! Iowa is kicking the season off this weekend so, let’s feature NF Hero Travis from Team Kahrig. Travis is 49 and was diagnosed with NF1 early on in his life because of his Cherry birth mark and Cafe-Au-Lait spots. Travis and his wife Karen participate in walk to help promote awareness. They love interacting with others and sharing stories on their journey. When asked how NF impacts their life Karen states, “It makes us stronger in our marriage that we can travel this journey together with faith, strength, hope and love. We are all fighters, fighting for the same outcome. “END NF” Travis is my hero and he is a fighter.” Thank you Team Kahrig for sharing! 💙💚

It’s not too late to register for a walk near you at http://www.shinealightwalk.org

08/09/2024

CONGRATS TO THE WINNERS: CHICAGOLAND WITH 95 REGISTRATIONS! 🥳

In just one week, you recruited 420 more people who will help us Shine a Light on NF 💙💚

If you haven’t registered yet, go to www.shinealightwalk.org!

08/07/2024

🎉REGISTRATION CONTEST UPDATE🎉

So far 277 people have registered for Shine a Light Walk! Currently Philly is in the lead with 68 registrations. Chicagoland is right behind them with 64! The contest ends at midnight tomorrow 8/8 (Thursday night) so there’s still time for your city to win! Make sure you and everyone you know gets registered so you can win an ENDNF Piñata for your Walk👏

07/31/2024

It’s time for Shine a Light Walk’s Nationwide Registration Contest!! The city that has the most participants sign up between 8/2 - 8/8 wins. The walk winner will receive a customized ENDNF piñata filled with goodies! Help your city win by registering and getting EVERYONE you know to register at http://shinealightwalk.org

07/25/2024

Kristin is rocking her walk gear all the way in Alaska! Show us how you by sending in pics of you repping your walk getup to [email protected]

07/17/2024

Happy ! Today we are highlighting Team Meagan, NF Hero: Meagan Ubal from Tennessee. She is now 23 and was diagnosed with NF1 at 2 months old when they found Café au lait spots. Meagan participates in walk because she thought it would be nice to raise money and share awareness throughout the world. She looks forward to meeting new people who understand what she’s going through. Meagan leaves us with this quote, “Every case of Neurofibromatosis is as unique as the person who has it. I will always keep going always!!!” We are so excited to see Meagan and everyone else at walk this year! Don’t forget to register at http://shinealightwalk.org

07/10/2024

Welcome back to ! Today’s shining light is on Angela Chun-Soyer and her son Theo from New York. Theo is 2.5 years old and was diagnosed with NF1 on June 8th, 2022. Angela states, “NF impacts my life because it has to reshape my priorities, teaching me to cherish every moment and celebrate even the smallest victories.” This will be the family’s first walk in October, Angela is excited to be part of the community and advocate for her son. When asked why walk is important she quotes, “The Walk is important to us because it’s not just a walk; it’s a symbol of hope, unity and resilience. It’s a testament to our commitment to raise awareness, support one another, and ultimately, strive for a brighter future free from the challenges of neurofibromatosis. Together, we walk to shine a light on NF and pave the way for a world where our loved ones can thrive without the burden of this disorder.” We are so happy Angela and her family are joining us this year! Don’t forget to register at a walk near you http://shinealightwalk.org 💙💚

06/21/2024

Welcome back to Fundraising Friday! NF Flocking Flamingos were out and about in Yankton, SD again this year! Team Westin Warriors in South Dakota gets creative by using flamingos to fundraise for the Shine a Light Walk. People can donate to the team and have Westin Warriors flock a friend’s yard for them. Everyone loves this annual fundraiser and it brought in $1,110 this year!

06/12/2024

Happy ! Today’s spotlight is shining on Oskar Nilsson and The Fighting Vikings team from Washington State. Oskar who is now 6 was preliminarily diagnosed at 2 weeks and confirmed by genetic testing at 2 months old. When asked why they participate in the walk his mom Elisabeth shares, “The walk gives me hope, support, and a community and allows me to provide the same to other families in the same position.” Every year they look forward to seeing how all their NF Hero’s have grown and it’s like a family reunion of support. Walk is important to Elisabeth and her family because it gives them a community that understands the fear and anxiety. Elisabeth states, “We WILL end NF but we can’t do it alone.” We can’t wait to see this energy at walk in the fall! Make sure you register at http://shinealightwalk.org

06/07/2024

Check it out, you can Shine a Light on NF every day with these awesome fundraising incentives! Don’t forget to register for a walk near you and start fundraising to earn super cool prizes 💙💚

Go to shinealightwalk.org to register TODAY

05/31/2024

Even though NF Awareness Month is ending today, our Shine a Light Walk Season is just getting started! You can still raise awareness for NF and help fundraise to find a cure. Register today at http://shinealightwalk.org

05/29/2024

Today for we highlight Davina from Dallas, TX. Davina and her father both live with NF1. Her mom Shyenne tells us, “I got involved because of my daughter and husband. We walk each year to meet people and learn more about NF since this is all new to me.” We are so excited to see Davina and her family at the Dallas walk this year, and we hope we will see you at a walk this fall! Register NOW at shinealightwalk.org

05/24/2024

We love seeing the unique ways that you fundraise and spread awareness! Nathan and the rest of the Student Government at Cox High School held a Bingo Night fundraiser in North Carolina, raising over $1,000! Nathan fundraises for his cousin Vivian who lives with NF1!

05/22/2024

This week for we are highlighting the Steps for Scaps team in honor of Alex Scapini! Alex was diagnosed with NF2 at birth. The team got involved with walk & CTF through research and family suggestion. When asked why they participate in walk they said, “A family member passed away and we walk to celebrate and remember his life and raise money/awareness.” Every year they look forward to meeting others and having a big support group together. We are so excited to see the Steps for Scaps this year! Register for a walk near you today at shinealightwalk.org

05/20/2024

We are so EXCITED for The Empire State Building to glow blue & green for NF Awareness TONIGHT!!

05/17/2024

TODAY IS MAY 17, WORLD NF AWARENESS DAY!

Like, share, comment, tag, and shout it from the rooftops: Today's the day we unite our voices around the country and around the world and !

NF is a group of genetic disorders that cause tumors to grow on nerves throughout the body. It affects millions of people worldwide, and today is about shining a spotlight on this important cause. By raising awareness about NF, we can support those affected and contribute to ongoing research efforts. Visit makenfvisible.org for more NF facts, Stories of NF, infographics & brochures, videos, and so much more!

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697 Third Avenue, Suite 418
New York, NY
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Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

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+12123446633

Website

http://shinealightwalk.org/, https://docs.google.com/forms/d/e/1FAIpQLScozIMj9Pie36_EDFfvyy9rH7WXDoPYY77hZfFxSztkRKrfsA/

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Shine a Light Walk

Get up, get movin', and let's make a difference! Run, walk, hop, skip or jump your way over to shinealightwalk.org and register for a Shine a Light NF Walk in your city! We’re stepping up to make NF visible and raise money for NF research! #endnf #makenfvisible 🏃‍♀️🏃‍♂️💫

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Our Story

The Children’s Tumor Foundation’s Walk Program was established in 2009 as an important national fundraising program to support NF research, raise awareness, and provide support for individuals with NF and their families. Over the last ten years it has raised more than $10 million.

In 2019, the campaign was branded Shine a Light NF Walk, CTF’s signature fundraising event to bring NF out of the shadows and inspire the community to come together to raise critical funds for NF research.