Chiari & Syringomyelia Foundation- CSF CSRA Walk

09/13/2021

Hey guys sorry i have been very MIA lately! I know this is late minute but my wonderful daughter surprised me with setting up a walk at her school! Please join us if you’re able! If not donate to my personal walk page Chiari Warriors if you able! Hope to see you guys there!
Next year we hope to be back on the ball!

Join me in supporting the 2019 Bobby Jones CSF unite@night to unlock answers for families living with Chiari malformation, syringomyelia, Ehlers-Danlos syndrome and related disorders!

10/31/2020

08/16/2020

Check out our friends Props and Heroes! We love these guys they are the sweetest and always come out to our Chiari Walks for support! So sad we’re doing virtual walk and not in person walk this year!

01/02/2020

Happy New Year from our family to yours!

12/25/2019

Merry Christmas Chiari family from our family to yours!

10/01/2019

Since Chiari life happens and my head wouldn’t allow me to function yesterday! Here’s the last day of Chiari awareness Month day info a day late!

09/29/2019

09/27/2019

Niagara Falls goes purple for Chiari TONIGHT!

Tonight from 10:00pm to 10:15pm eastern time Niagara Falls will light up purple! This is the link to watch the falls tonight:

https://www.niagarafallslive.com/


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