Vascular Anomalies Alliance

Vascular Anomalies Alliance Connecting & supporting the birthmark community.

We strive to REACH our community by financially supporting advancement in Research, Education, and Advocacy, while creating a safe space and sense of Community where everyone feels like they are Home.

02/25/2026

๐ŸบUnder a month into last call for 4th Annual G-ALES-Burg Beer Fest event shirt by Elite Ink benefiting Vascular Anomalies Alliance! We will have a few more of each size for sale, but extra sizes will be guaranteed. Pick up the day before or the day of. Get those pre-orders in! ๐Ÿ‘š
Link in the comments ๐Ÿ‘‡

Get your running shoes on! ๐Ÿ‘Ÿ
02/25/2026

Get your running shoes on! ๐Ÿ‘Ÿ

Itโ€™s time to lace up your shoes and get ready for the next MFVA challenge! ๐Ÿ˜Ž๐Ÿƒโ€โ™‚๏ธ๐Ÿšถโ€โ™€๏ธ๐Ÿ’จ
Run or walk 3 miles between March 14 and 21st to support individuals who have PHACE syndrome during PHACE Syndrome awareness week!
Click on the link below to join the challenge on Strava! ๏ฟผ

https://strava.app.link/CbVBmKj810b

02/23/2026
02/22/2026

โ˜€๏ธA new 4th Annual G-ALES-Burg Beer Fest sponsor that will be featured on our glassware this year! ๐Ÿป Thank you Sol Systems LLC BlackBerry Solar for your generosity towards our festival and the Vascular Anomalies Alliance ๐Ÿค
๐ŸŽŸ๏ธ ticket link in the comments!

02/19/2026

Did you know Miles For Vascular Anomalies has its own Strava club!? Click the link below to join our Strava club to participate in various challenges and activities.

https://strava.app.link/Oer4jzqFT0b

02/19/2026

๐Ÿฅž Judyโ€™s Family Cafe will be in attendance for the 4th Annual G-ALES-Burg Beer Fest benefiting Vascular Anomalies Alliance pouring her 2 beers we craft specifically for her Judyโ€™s Kitchen location in downtown Galesburg! ๐Ÿป
Grab a pour from her and purchase some Judyโ€™s merch too!๐Ÿ‘š
๐ŸŽŸ๏ธ Ticket link in the comments!

02/17/2026

๐Ÿ˜ŠWe would like to thank Howard & Howard Attorneys PLLC for their 3rd year of supporting the 4th Annual G-ALES-Burg Beer Fest at the platinum level! Your support means so much to us and Vascular Anomalies Alliance๐Ÿค
๐ŸŽŸ๏ธ ticket link in the comments below! ๐Ÿ‘‡

Go, Ava!
02/13/2026

Go, Ava!

02/10/2026

Show your support and run or walk 3 miles this Valentineโ€™s Day, Saturday, February 14th! This will be the Miles For Vascular Anomalies' first run/walk challenge. This challenge will be virtual, so you can participate anywhere. Post a picture and share it with us.
Join our Strava club to participate in this challenge.๐Ÿƒโ€โ™€๏ธ๐Ÿ’จ

02/10/2026

๐ŸปWhether itโ€™s your 1st or 50th beer fest, the 4th Annual G-ALES-Burg Beer Fest brings a whole different atmosphere of fun for a good cause thatโ€™s near and dear to us, Vascular Anomalies Alliance ๐Ÿค
๐Ÿบ Samples of beer, wine, cider & mead, food included, BIG raffle items (we canโ€™t wait to share), jumbo beer pong game with PRIZES, and more!
๐ŸŽŸ๏ธ VIP is gone, but some EA and GA tickets with and without food remain. Ticket link in the event page or the comments!

02/06/2026

๐Ÿค 4 years of support for the 4th Annual G-ALES-Burg Beer Fest & Vascular Anomalies Alliance from our friends at CBI Bank & Trust! We thank you for another platinum level sponsorship. Cheers! ๐Ÿป

Some amazing hosts and honorees being recognized for their dedication to this community ๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป
02/03/2026

Some amazing hosts and honorees being recognized for their dedication to this community ๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป๐Ÿ‘๐Ÿป

Celebrate Impact. Honor Leadership. Plant Seeds of Hope. ๐ŸŒฑ

The Reunion of Champions (ROC) is backโ€”our yearly fundraising kick-off event supporting Sturge-Weber syndrome research, education, awareness, and patient/caregiver support.

This year, we're thrilled to celebrate Dr. Paul M. Friedman as our ROC Honoree and honor Dr. Brian Biesman, MD, FACS as our Legacy Leader. These are the visionaries, the warriors, the passionate champions inspiring hope for generations to come.

Join us for an unforgettable evening with Master of Ceremonies Dr. Roy Geronemus, MD.

๐Ÿ“ Downtown Aquarium, Denver, CO
Friday, March 27, 2026

Ready to be part of the impact? Register, purchase your ticket, or become a sponsor:
https://app.theauxilia.com/registrationEvent/04ec8b07-5737-41ae-b7f8-bed6faac871d

Address

131 Continental Drive Suite 305
Newark, DE
19713

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