CiCoach

CiCoach This is a unique resource for professionals living with difficult health challenges - see my website

This page focuses on wide ranging issues facing people living with chronic disease, including unpredictable, debilitating, invisible. I live this life and coach those wanting to make significant changes http://ciCoach.com

We're hearing a lot about organizational support for their employees' mental health. But what happens when you live with...
03/02/2022

We're hearing a lot about organizational support for their employees' mental health. But what happens when you live with mental illness that won't get better with a spa treatment, affirmations or even a good therapist? If you read my blog posts, you know that living with chronic illness isn't a cakewalk. But think about this. Those living with mental illness face others who too often regards this as their fault, their failure. For these reasons, this post explores living and working with mental illness. https://cicoach.com/2022/03/01/are-you-talking-about-mental-illness/

Living with chronic illness is difficult enough but the burden is even heavier when you're living with chronic mental illness.

This could be a teaching moment.  What might healthy people learn from living in Pandemic?  "Chronic illness & Pandemic ...
02/18/2021

This could be a teaching moment. What might healthy people learn from living in Pandemic? "Chronic illness & Pandemic - Are you flying solo without a map or parachute?"
My latest post - tinyurl.com/lg4gbp25

One unexpected challenge of this Pandemic has been operating in a world where health safety guidelines have been scant, inaccurate and often contradictory. Welcome to our world -- life with unpredictable, chronically difficult health.

"Feeling Powerless in the Face of Dudes Who won't wear Masks?" my new post.   You don't have choice about endangering ot...
11/10/2020

"Feeling Powerless in the Face of Dudes Who won't wear Masks?" my new post.

You don't have choice about endangering others- - especially in workplace where we don’t usually have a choice about showing up or not. With Covid-19, age & or chronic illness can = lethal.
https://cicoach.com/2020/10/30/are-you-feeling-powerless-in-the-face-of-the-dudes-who-wont-wear-masks/

Note – “Dudes who won’t wear masks” is quoted from an Atlantic headline. It seems pretty simple, doesn’t it? Public health experts agree that wearing a mask prevents the spread of Covid-19. The CDC has issued guidelines on what the general public needs to know and it includes wearing masks...

The first time I heard the term,"the world as it should be"  it sounded light weight, too aspirational. I don't like 'sh...
06/10/2020

The first time I heard the term,"the world as it should be" it sounded light weight, too aspirational. I don't like 'shoulds'. Over time, I understood how Saul Alinsky based community organizing uses aspiration to grow our power. The power of numbers of individuals in relation to large systems. In the last few months, we've seen what happens when large systems fail to keep us safe and individuals suffer. The last few weeks, we've seen what the power of individuals can do in the streets of this country

Many of us in the chronic illness world live with limited resources that we must use to hold onto and grow our personal power. It takes grit, determination and a whole lot of patience. Where possible, you build your capacity to face the inequities of life and the unknown. There's no end point, just a journey made easier when we find guides to lead us.

That's why this post looks at points of intersection between living with chronic illness, the Black Lives Matter movement, and Covid-19.

To read this online and comment, https://cicoach.com/2020/06/09/5-thoughts-on-3-intersecting-spaces/.
As always, I love hearing your thoughts or just hearing from you.

I’ve wrestled with what to write here for the past few weeks. I have no expertise or personal experience with the two profound issues we face: living with a novel coronavirus, -19 and, living with the results of centuries of Racial Injustice, . No matter what you think about...

Living with unpredictable, debilitating chronic illness means you're not playing on a level playing field - -but it's mo...
05/05/2020

Living with unpredictable, debilitating chronic illness means you're not playing on a level playing field - -but it's more uneven for some than others. Same with Cobid-19?

https://cicoach.com/2020/05/05/are-you-playing-on-a-level-field/

This is week 9 for me in social distancing. So how’s it going? Actually I thought I knew until I went into a break out room on a zoom call . We were told to start with a few words on how we’re doing right now. My ‘roommate’ said she was physically fine but it […]

https://cicoach.com/2020/04/03/pandemic-like-chronic-illness-is-a-marathonot-a-sprint/Chronic Illness --like Pandemic - ...
04/09/2020

https://cicoach.com/2020/04/03/pandemic-like-chronic-illness-is-a-marathonot-a-sprint/

Chronic Illness --like Pandemic - is a Marathon, not a Sprint

The realization that we’re in a pandemic has felt like a relatively gradual process. You might say, in that way it’s similar to the gradual onset of a disease flare or a new disease process.

It started with this low, background buzzing noise just loud enough to let you know that something is different. But you’re not sure what it is. As the realization grows that something isn’t right, you wonder if it’s real or you’re imagining it. Then comes the tipping point when it declares itself in a way you can’t ignore.

And now you’re in a different relationship with this thing. You want information. What am I dealing with? What can I do to keep living my life, to prevent this from spreading or getting worse, to get myself better? Experts give you conflicting reasons as to why it happened and there’s even less known about what will happen or what you can do about it.

When I first self quarantined about a month ago, I thought smugly, this is no big deal. I know what to do because I’ve been living this life for decades. It means:

staying healthy is the top priority
living with the unknown and unpredictable
creating a daily schedule so you get things done AND keep your sanity
working flexibly because you can’t be sure what might come up to disrupt plans
getting dressed each day as if you were leaving your house for work even if you’re working from home
finding an exercise routine you can do within your limitations
developing tools that help to live with the fear of what you know could happen to your health

Did I miss anything?

But the days have become weeks and now months. I can’t count how many times I’ve said that nothing prepares us to live with debilitating and chronic illness. It’s clear none of us are prepared for a pandemic.

This morning I woke with a sense of dread and hopelessness. The thing is, I thrive on feeling I’m contributing and adding value. But that’s hard when there’s so little I can DO. When my daughter called -- something she does everyday on her way to work and continues while working from home - - I shared this with her. And as I talked, I noticed I’m afraid. I fear getting sick with this knowing how poorly my immune compromised body will respond. More than actually being sick, I fear the months of recuperating because it always takes me longer than expected. I fear being weak and ill, alone in a hospital bed. Most of all, I fear losing the modest level of inner balance I’ve worked so hard to achieve.

Sharing this aloud helped as I hoped it would. It unlocked the stuck feelings so I could see this for what it is—just a part of me. Loosening its grip, the feeling became more expansive. I was able to tap into the other parts, to find purpose and value in my small universe. Just like living with chronic illness, living in a time of pandemic is a marathon, not a sprint.

Because this is such a time of need and we can each benefit from sharing and noticing, I'm making this special offer. If you’re a client (current or former) and you want to connect and share, I’m offering a one hour call (preferably zoom) for $10. Given the nature of my coaching practice,, I can only offer this single call at this rate to those with whom I’ve worked and know. If you're interested, email me.

Do you have a job and live with a chronic illness or condition that leaves you unable to do certain activities? (aka living with disablities?) Do you believe that you are well aware of your rights given by the Americans with Disabilities Act? Are you shaking your head, YES? Most likely, you’re mis...

I've felt 'out of step' with my cohort for 40 years -- since my first diagnosis at 28. Chronic Illness keeping you out o...
03/12/2020

I've felt 'out of step' with my cohort for 40 years -- since my first diagnosis at 28. Chronic Illness keeping you out of the NORM?
We all have a story on this, what's yours?

My newest post: https://cicoach.com/2020/03/10/chronic-illness-keeping-you-outside-the-norm/

The Board Chair opened with a ‘warm-up’ exercise asking us to share a recent event in our lives. The first person to speak said that worsening arthritis had forced her to stop yoga and give up the daily long walks she loved. Another spoke of his recent and unhappy retirement due to increasingly ...

4 Articles/ 1 Theme: THRIVING while living with chronically difficult health (+one don't miss book!) - My latest blog po...
12/27/2019

4 Articles/ 1 Theme: THRIVING while living with chronically difficult health (+one don't miss book!) - My latest blog post

https://cicoach.com/2019/12/19/4-articles-on-1-theme-thriving-while-living-with-debilitating-chronically-difficult-health/

4 Articles on 1 Theme: Thriving while living with debilitating, chronically difficult health December 19, 2019 by Rosalind Joffe Leave a Comment As 2019 comes to a close, I thought I’d share some articles that I’ve found particularly valuable recently. I hope you do, too. I’ve included my own ...

12/13/2019

Employed & live with difficult health? is collecting data for her masters thesis on employees w/chronic illnesses. This information can lead to improve organizational policies and practices. Use this link: http://csusb.az1.qualtrics.com/jfe/form/SV_6XYBjp4HWvsZruJ

Qualtrics sophisticated online survey software solutions make creating online surveys easy. Learn more about Research Suite and get a free account today.

https://cicoach.com/2019/11/26/woop-when-wishing-isnt-enough/
12/02/2019

https://cicoach.com/2019/11/26/woop-when-wishing-isnt-enough/

WOOP When Wishing Isn’t Enough November 26, 2019 by Rosalind Joffe Leave a Comment I’m an NPR WBUR ju**ie. It’s my “go to” source of news and it’s typically keeping me company in my home office. Mostly it’s a passive experience. And then, every once in a while, a story grabs me to the ...

Living with chronic illness and searching for a new job or career? 9 Things to Consider. The Mighty interviewed me for t...
10/28/2019

Living with chronic illness and searching for a new job or career? 9 Things to Consider. The Mighty interviewed me for their published article on this -I'm sharing my own blog post that includes my additional thoughts on what Renee Fabian wrote.

My post: https://cicoach.com/2019/10/27/live-with-chronic-illness-and-returning-to-the-workforce/

Things to consider looking for a job or career when living with chronic illness or chronic pain

It's easy to fall into the trap of focusing solely on finding what will heal your chronically ill body.  But when we do,...
08/28/2019

It's easy to fall into the trap of focusing solely on finding what will heal your chronically ill body. But when we do, we miss where we can take charge. That's why this post is about identifying what medicine you can rely on to restore your balance, your hope and your resilience. (Sorry no podcast with this as yet
- I'm having tech problems!)
http://cicoach.com/2019/08/22/5589/

Chronically difficult bodies can't always be 'cured' but we can find the medicine that restores our emotional balance.

My new post:  "Are you working . . . for you?" Living with chronic illness, dreaming of self employment?  You might want...
07/15/2019

My new post: "Are you working . . . for you?"
Living with chronic illness, dreaming of self employment? You might want to stop and look before you leap.
http://cicoach.com/2019/07/12/are-you-working-for-you/

Self employment can seem like the solution to being able to work while living with chronic illness. But is that all there is to it?

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Newton, MA

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 6pm
Thursday 9am - 6pm
Friday 9am - 5pm

Telephone

+16179691930

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