01/21/2026
Deputy Dallas has been such a stinker lately! One minute he is laughing and happy and full of smiles. The next he is sobbing in severe pain! Some days we have had beautiful vitals, the next he is giving me a heart attack by smiling while his oxygen is sitting at 78-79%. Then there is the sleep! Or lack thereof. Every other night he thinks he should just party till 12am! Even on a work night! NEW YEARS IS OVER BUDDY!
We had an appointment with his Palliative doctor yesterday and are going to try some new ways of keeping him comfortable without completely knocking him out on his bad days. Over the last month, I feel like things are kindof going in the wrong direction for him. More pain/discomfort, tone, clonus, sleep pattern changes, sporadic fevers that are gone by bed time. And some days we are seeing a decrease in his urine output, even though his input is the same. We follow up with Palliative again in 2 weeks to see if the changes we made have helped.
I don't think he is sick with an acute illness. Things don't add up and aren't consistent. I am thinking this is all just related to his Canavan Disease.
We have seen him go through bad weeks (even bad months) then rebound and get back to himself over time. But every time we see regression like this it makes me nervous. What if he doesn't rebound? Is this our new normal?
In my heart, I believe we will get this sorted out. He has been very happy today and that always gives me hope. But we could use some extra prayers.
Here is another photo dump of the sweetest and bravest little Deputy there ever was!
Deputy Dallas 💙
