Nolan’s Fan Club

Nolan’s Fan Club For everyone who’s a fan of the Nolan and all his shenanigans, we invite you to follow along as we attempt to navigate his world.

Such a cool dude!
05/27/2026

Such a cool dude!

I don’t want to jinx it, but at the same time I want to scream it out for everyone to hear. Nolan’s neurologist was so p...
05/23/2026

I don’t want to jinx it, but at the same time I want to scream it out for everyone to hear. Nolan’s neurologist was so pleased with his progress today!
Sometimes it’s hard to see the progress when you’re so close to it. His doctor was pointing out so many improvements and it was so awesome to realize how far he’s come!

I am a total creep when it comes to taking pictures of this kid sleeping. He’s freaking adorable though!
05/15/2026

I am a total creep when it comes to taking pictures of this kid sleeping. He’s freaking adorable though!

It’s been too quiet lately so the chaos goblin decided to shake things up. His feeding tube balloon developed a lovely h...
05/09/2026

It’s been too quiet lately so the chaos goblin decided to shake things up. His feeding tube balloon developed a lovely hole in it, resulting in a mad scramble to IR this morning to replace it. While we waited, creative measures were employed to keep the tube in place. Shown here is the 2B KEEPER 3000. It did not work well. Especially when someone squirms, kicks, rolls, and generally tries to flop around as much as possible.

This man has been on a mission this week. He wants to eat, eat, eat! He has been doing awesome at eating things orally a...
05/02/2026

This man has been on a mission this week. He wants to eat, eat, eat! He has been doing awesome at eating things orally and been taking in nearly an ounce of puréed food each day. That may not sound like much, but for him that is insane!

04/20/2026

If you were in the Ankeny Costco this morning and heard banshee shrieking and feral child yelling…ummm. Hi. That was my kid. I’d say I’m sorry, but I’m not. He was having a great time. And you were probably in his way so, uh, move over.

Seven years ago the hospital trusted us enough to keep Nolan alive and permitted us to finally bring him home. Nolan was...
04/09/2026

Seven years ago the hospital trusted us enough to keep Nolan alive and permitted us to finally bring him home. Nolan was soon unimpressed with his lack of 24/7 care from a mostly female staff, intrigued by this brother person, and very confused about the hairy and loud creatures that he suddenly shared space with.

(Which might explain why we were back in the hospital after his two month trial of “home” 😂)

Saw this shirt. Bought this shirt. It’s waay too big for him but it was definitely made for him! 😂
04/09/2026

Saw this shirt. Bought this shirt. It’s waay too big for him but it was definitely made for him! 😂

My super sweet and cuddly little boy, sleeping (and drooling) on me. Nothing could ruin this precious moment…..except my...
04/04/2026

My super sweet and cuddly little boy, sleeping (and drooling) on me. Nothing could ruin this precious moment…..except my bladder. Oh boy, I need to p*e.

This was Nolan’s first day wearing clothes. A very ambitious nurse took one look at his St Paddy’s Day onesie and said “...
03/17/2026

This was Nolan’s first day wearing clothes. A very ambitious nurse took one look at his St Paddy’s Day onesie and said “We’re gonna put it on him. He has to wear it.” As you can tell, he was very impressed by the experience.

This week on What Fresh F**kery is This: the new designer illness come to visit, the return of the ER trips that confuse...
03/05/2026

This week on What Fresh F**kery is This: the new designer illness come to visit, the return of the ER trips that confuse everyone, a surprise drop in from a bloody feeding tube, and the old friend Cough Assist comes to stay.
Tune in to watch us struggle through!

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