Aiden and AJs Fight for the Cure

Aiden and AJs Fight for the Cure On December 3rd 2014, these brothers were BOTH diagnosed with a rare terminal genetic disease called mucopolysacharidosis ll, or hunter syndrome.

Happy Halloween 🎃 Love always,Aiden and AJ 💜💜
11/01/2025

Happy Halloween 🎃

Love always,
Aiden and AJ 💜💜

10/17/2025

AIDENS MRIs ARE 💜STABLE💜 no change 🥳🥳🥳
Thank God 🙏🏻🙏🏻🙏🏻🙏🏻

Update on Aiden***It has been a rough couple days for Aiden, but he is finally on the mend! When they intubated Aiden th...
10/16/2025

Update on Aiden***

It has been a rough couple days for Aiden, but he is finally on the mend! When they intubated Aiden they scraped his entire airway from his nostril all the way down to his vocal cords. Poor boy was pretty upset, and so were we! His right nostril is 100% blocked. We have steroids on board to help with the inflammation and his pediatrician added a hefty dose of antibiotics to prevent any infection. Poor boys right upper eyelid is also pretty swollen either from the intubation and blockage, or the lubricant that they caked in his eyes while he was sedated for 4 hours. We do not have MRI results back yet but his carpal tunnel results are mild to moderate so another carpal tunnel release surgery is in Aiden’s near future. This will be Aiden’s second carpal tunnel release surgery. Last night he finally turned the corner and we are heading in the right direction towards recovery. Poor boy, all to get his yearly MRI imaging.. Any procedure big or small under sedation is never an easy task for both boys and always carry a great risk! I was going to keep Aiden home again today from school but when the bus pulled up he tried to run out the door with AJ so I let him go and told his teacher to call me if he gets upset at all while there. They are waiting for him with lots of gentle snuggles, love, and all his favorite toys! After all he is their “baby boss” 💜🙏🏻💜🙏🏻

Thank you all for praying for him and staying with us on this journey… now it’s time to get ready for Halloween 🎃 👻

Prayers for Aiden appreciated… he is currently fully intubated (nasally 👃, which is the not the most gentle kind of intu...
10/14/2025

Prayers for Aiden appreciated… he is currently fully intubated (nasally 👃, which is the not the most gentle kind of intubation) for 4 procedures and imaging!! So many prayers that there are no complications please

My Aiden 💜 My little lover, boss baby! The one who first gave me the greatest title of my life, Mommy… I can not even be...
09/07/2025

My Aiden 💜 My little lover, boss baby! The one who first gave me the greatest title of my life, Mommy… I can not even believe you are 14 today! Happy Happy Birthday my little “grump master flex”!!!!!! I love you with my entire heart and soul and I hope you have the best year yet filled with miracles and happiness and love!

Xoxo mommy

A beautiful night celebrating all special little warrior souls!!! Art from the Heart….. No child ever fights alone 💜💜xox...
08/24/2025

A beautiful night celebrating all special little warrior souls!!! Art from the Heart….. No child ever fights alone 💜💜

xoxo Aiden & AJ

Ok listen up!!!! Tomorrow my Aiden has his yearly cardiology appointment to make sure that there are no significant chan...
06/25/2025

Ok listen up!!!! Tomorrow my Aiden has his yearly cardiology appointment to make sure that there are no significant changes to his beautiful little ticker! He has some minor issues but nothing beyond normal heart function(according to last years scans). My squish is now 13 (almost 14) so this is very unknown territory now for us all including his doctors moving forward. I’m praying and manifesting that Aiden’s heart remains stable with NO SIGNIFICANT CHANGE OF ANY KIND!!! Gods got him, I know it 💜🫶🏼🙏🏻

Thank you all for your prayers for AJ! No significant changes to his heart and his overall heart function remains stable...
05/21/2025

Thank you all for your prayers for AJ! No significant changes to his heart and his overall heart function remains stable! Peace ✌🏼 out cardiology, see ya next year 💜💜💜

Prayers for our AJ please. Tomorrow is his yearly cardiology appointment and that’s always a scary appointment for us… p...
05/21/2025

Prayers for our AJ please. Tomorrow is his yearly cardiology appointment and that’s always a scary appointment for us… prayers that his heart remains stable and no change is detected since last year 🙏🏻💜🙏🏻

05/18/2025

Next up, Aiden with the line drive ⚾️🥳🥰

05/18/2025

Swing, Batta Batta!!!! Gooo AJ

PLAY BALL ⚾️!!!!! The boys first game of the season was a complete success. Although we had to split up the game between...
05/18/2025

PLAY BALL ⚾️!!!!! The boys first game of the season was a complete success. Although we had to split up the game between the boys because all that running and movement was a bit tiring for them after a few innings that didn’t stop us from have a blast! AJ was the opener and while he rested Aiden closed out the game 💜🥰🥳⚾️

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Oakhurst Manor, NJ

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