Friends of the PBC Foundation

01/21/2026

Autoimmune disease doesn’t only affect the patient, but also their relationships. Millions of Americans navigate life while battling a disease, and many do so with the help of loved ones. Your PBC journey ripples outward. This isn't about burden—it's about the web of interconnected wellbeing that deserves collective support. Find below a link to resources available for caregivers.

https://liverfoundation.org/resource-center/caregiver-resources/

Please share with your network.

We all need a village!

Who in your support web do you want to recognize today?

Caregivers are responsible for the physical care and emotional support of someone who can no longer care for them self due to illness, injury or disability.

01/20/2026

One great way to advocate for yourself is to be prepared for your doctor appointments. A comprehensive collaborative medical folder (CCMF) is a tool to help guide you through your PBC Patient Journey! It's never too late to start!

What would you include in your CCMF?

01/19/2026

In this time of uncertainty, we look to our ancestors who have guided us through some of our darkest moments. Today, we pay reverence to a true American Hero and remember his words and the sacrifice he gave to lead us into a brighter future. Thank you, Dr. Martin Luther King Jr.
May your dream one day be fully realized!

01/16/2026

UPDATE: The correct answer is BILIRUBIN. 🙂
It's Friday! That means that it is PBC Quiz Time. Let's test your skills, and if you need a hint, we can test your PBC knowledge too! This word refers to a yellow-orange pigment that accumulates in the blood when the liver is struggling, resulting in the classic sign of jaundice. Without using ChatGPT or Google, what is the mystery word???

01/15/2026

What's new with Friends of the PBC Foundation, NFP?

Stay up abreast of updates, events, and programs by subscribing to our monthly newsletter. You won't want to miss what we have planned for 2026! Be prepared for more opportunities to engage with the PBC community and a few surprises! Sign up today using the link below 👇🏽

https://docs.google.com/forms/d/e/1FAIpQLSd1YQL-D9MduTntDKt9B0MxYAyhf3CxMTkO2QI700BsD5bjCg/viewform?usp=header

01/14/2026

While awareness is growing, diagnostic delay remains significant. The average time from symptom onset to PBC diagnosis is greater than three years. This delay period represents countless medical visits, tests, and the psychological toll of uncertainty.

What advice do you recommend to reduce stress during the wait?

01/13/2026

Good news for PBC patients who suffer from pruritus, the oral IBAT inhibitor Linerixibat, is showing positive results as it moves through the testing phase! This could bring a future of relief for so many! We will keep you posted on any updates!

https://www.medscape.com/viewarticle/linerixibat-reduces-itching-pbc-2025a1000qwe

The largest phase 3 trial aimed at relieving cholestatic pruritus in PBC shows significantly reduced itching and improved sleep, offering new hope for patients whose symptoms persist.

01/12/2026

Today's challenge: redefining "productivity." With PBC, productivity might mean resting when needed, preparing a nourishing meal, or calmly advocating for yourself during a medical appointment. Your worth isn't measured in output, but in the quality of attention you give to your well-being.

What non-traditional "productive" act will you celebrate today?

01/09/2026

UPDATE: The correct response is "A."

Let's dive into PBC's historical journey!

Which decade saw the first description of what we now call Primary Biliary Cholangitis?

Comment your historical guess below! The answer reveals how recent our understanding truly is. It will be posted later today.⏳

01/08/2026

We want to hear what type of content you want to see: inspirational, educational, community-based, etc. This is your opportunity to let us know what is important to you! Let us know in the comments below. Your thoughts are important to us!

01/07/2026

The conclusion of the report emphasizes the urgent need for increased awareness of Primary Biliary Cholangitis (PBC) and highlights the importance of better access to specialists. It is crucial that PBC patients receive the necessary treatment, regardless of whether they live in urban centers or rural areas. Everyone deserves access to healthcare and information about their health. Join us in raising awareness about PBC. It only takes one voice to make a difference!

01/07/2026

Rare Disease Day 2026 is next month, and we are showing our support by creating a collaborative video featuring rare disease patients from around the world! If you would like to participate, please comment below to express your interest. Let's unite and show the world our support for this important international day of recognition!