Friends of the PBC Foundation

08/05/2025

The 2025 U.S. PBC Patient Conference
When: September 19-21, 2025
Where: Marriott Marquis Chicago

Join us for an exciting gathering of patients, caregivers, and healthcare professionals at The Marriott Marquis in Chicago, IL. Get ready to learn, connect, and empower yourself with the latest information on Primary Biliary Cholangitis (PBC).

Mark your calendars for this must-attend event dedicated to enhancing the lives of those affected by PBC. We can't wait to see you there!

https://www.eventbrite.com/e/2025-us-pbc-patient-conference-registration-1295249539239?aff=oddtdtcreator&fbclid=IwY2xjawKlHndleHRuA2FlbQIxMABicmlkETFSSTBEdXFCWE50VU9KMTg2AR6edqrQIjjN2c4h48yAp1CmqMdVd9wNcoOw70wt24zB2ahD3hYq4xV0Lemgcw_aem_GTfqyL3CInqw1Pdavw1xpQ

07/29/2025

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Treatment is effective!
📊 In 2024, 70.8% of adults (18 or older) living with a serious mental illness received mental health treatment—that's 10.3M people! More insights in the 2024 : samhsa.gov/data/data-we-collect/nsduh-national-survey-drug-use-and-health/national-releases/2024

07/29/2025

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07/29/2025

Nominate a rare disease patient advocate today!!

Please note that individuals and organizations may be a finalist nominee two years in a row, but may not be nominated again until two years have passed since the last nomination. In addition, a former awardee of a RareVoice Award will not be eligible for another nomination for three years.

07/29/2025

Primary biliary cholangitis (PBC) and the narrowing gap towards optimal disease control

Although infrequent, primary biliary cholangitis is not indolent and remains a burdensome chronic autoimmune biliary disease. Progressive biliary injury and cholestasis results in complications of biliary cirrhosis, with reduced quality and quantity of life. Treatment advances beyond ursodeoxycholic...

07/29/2025

The PBC Foundation is inviting ALL MEN living with Primary Biliary Cholangitis (PBC) to the first virtual meeting Wednesday, July 30, 2025 at 1pm CST (7p.m. UK time). Please spread the word!

These meetings are an opportunity to meet and chat with other men affected by PBC. 💪🏾

Although men are welcome at any of our meetings, we’ve responded to the need from the community to have a space just for men.

Login is required to keep this a safe space. If you are already registered with the Foundation, click the link below for information about how to join the meeting. If you are new to the Foundation, you can also use this link to register with us for free:
https://www.pbcfoundation.international/members/login-register/?redirect=16069

Please email Mo@pbcfoundation.international if you would like more information or have any questions about these sessions.

07/27/2025

The Friends of the PBC Foundation is seeking a Manager of Communications to lead our
communication strategy, website content, social media and public relations to advance our mission. Manager of Communications role is strategic and has a heavy emphasis on brand management. This role is responsible for managing all communications to patients, health care professionals, funders and industry partners.

Bachelor’s degree preferred in marketing (or related field)
2-5 years of management experience
Minimum, high school diploma
Background check
Resume
Cover Letter detailing your qualifications and previous relevant experience as well as your motivation for this role
3 professional references.
One of which must be from your most recent employer and none of which may be from friends or family.

Check out this job on LinkedIn here: https://www.linkedin.com/jobs/view/4270338127

07/27/2025

The Friends of the PBC Foundation, NFP is seeking an established Associate Director who has at least 2 years of management experience, ideally in a nonprofit entity, with previous job responsibilities in finance, donor relations, fundraising, and resource management/allocation. The ability to, coordinate between groups, seamlessly integrate information into digestible forms for finances, and complete assigned jobs in a timely manner.

Bachelor’s degree preferred
Background check
Resume
Cover Letter detailing your qualifications and previous relevant experience as well as your motivation for this role
3 professional references.
One of which must be from your most recent employer and none of which may be from friends or family.

A reference may be a professor from college/university if your graduation was less than 5 years ago (2020).

Check out this job at Friends of the PBC Foundation, NFP: https://www.linkedin.com/jobs/view/4270338127
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07/26/2025

We're hiring!! Check out this job at Friends of the PBC Foundation, NFP:

Posted 2:11:33 AM. Description:-Manager of Communications role is strategic and has a heavy emphasis on brand…See this and similar jobs on LinkedIn.