Sebastian Strong

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Sebastian Strong TinySuperHero Sebastian is a 4 yr old boy from FL with handful of complex medical diagnoses, gtube dependent.

This is a place for our loved ones and supporters to cheer Bash as he fights many odds stacked against him.

It's been a while since we updated last. ❤️‍🩹We have been focused on putting weight on, and keeping nutrition down. He w...
28/02/2025

It's been a while since we updated last. ❤️‍🩹
We have been focused on putting weight on, and keeping nutrition down.
He weighted 32 lbs, up from 29 in September.
He's finally made a slight mark on the growth curve for his age. 🥰
Yesterday, we saw our favorite Gastrointestinal Specialist, Dr D. Mettah at Orlando Health Arnold Palmer Hospital for Children . He has been following Sebastian's journey for three years now and we are so grateful to have found him when we did.
He put in referrals for intensive inpatient feeding therapies, which will require multiple weekly visits.
We are also on the path to finally getting off a wait-list and into ABA therapies.
Sebastian had a really good day yesterday, he was smiley and happy the whole ride. He loves going for rides with just Mom and Dad.
After the appt, we took a well around the Florida Mall, Mom and Dad had lunch at the food court, while Bash did plenty of babbling and people watching.
We would do anything for this sweet boy.
So grateful he's ours. ❣️🙏🏾

❣️❣️❣️

We became friends with TinySuperheroes DJ a couple years ago when Mom was looking for other special needs Mom's in fb gr...
14/11/2024

We became friends with TinySuperheroes DJ a couple years ago when Mom was looking for other special needs Mom's in fb groups. He is such a courageous little Warrior and we have enjoyed following along his journey. He just celebrated his 7th birthday with his loving family by his side. He has stolen the hearts of so many across the world and we are so sad to share this next bit of news.

This morning, DJ gained his wings, and we ask all our friends and followers to say a little prayer/send some good vibes to his family/wish him well on his next soul journey.

Praying for DJ's family. Keeping him lifted in love and light as he transitions peacefully. 👼🏼❤️‍🩹🙏🏾

🙏🏾🙏🏾🙏🏾

❣️❣️❣️
04/06/2024

❣️❣️❣️

Pursue them with all of your heart ❤️

Bashy B is very much like Donny. 🫠🌴
28/05/2024

Bashy B is very much like Donny. 🫠🌴

Me: can you please just calm down for a minute

My child:

28/05/2024

What is “masking?”

“Masking is a strategy used by some autistic people, consciously or unconsciously, to appear non-autistic in order to blend in and be more accepted in society. Masking can happen in formal situations such as at school or work and in informal situations such as at home with family or socialising with friends.”
Definition credit: National Autistic Society



Meme credit: Method Creative, thank you.
Sharing for general awareness purposes only.

All credits are as mentioned.

28/05/2024
https://www.gofundme.com/f/join-sebastians-battle-against-unknown-illnessDear kind souls,My name is Erika, and I find my...
27/05/2024

https://www.gofundme.com/f/join-sebastians-battle-against-unknown-illness

Dear kind souls,

My name is Erika, and I find myself reaching out to you with a heart heavy yet hopeful, a tale woven with the threads of love and anguish. For within the fabric of our lives, there lies a precious soul, my beloved Sebastian, affectionately known as Bashy B.

Sebastian Edward Bernardini entered this world on a crisp January day in 2020, a beacon of joy illuminating our lives with his presence. His arrival brought forth a symphony of hope and dreams, a promise of a future brimming with possibilities. Little did we know, within the tender folds of his innocence, lay a journey fraught with trials and tribulations, a path laden with uncertainty and adversity.

As the world around us swirled with chaos, Sebastian's laughter filled our home, a melody of pure delight that danced amidst the shadows of uncertainty. With each passing day, our darling Bashy B grew, his spirit vibrant and his heart pure. Yet, beneath his radiant exterior, a silent storm brewed, threatening to engulf our world in its tempestuous embrace.

The days unfolded into months, and Sebastian's once hearty appetite waned, replaced by the cruel specter of illness that lurked within his fragile frame. Despite our fervent prayers and tireless efforts, his tiny form became a battleground, a battleground where hope waged war against despair, and love stood as our guiding light amidst the encroaching darkness.

In the midst of our trials, we embarked on a journey, a journey that led us to the sun-kissed shores of Florida, a land of newfound promise and fleeting respite. Yet, even amidst the tranquil beauty of our new home, Sebastian's affliction persisted, a relentless foe that refused to yield to our pleas for mercy.

Days turned into nights, and nights into weeks, as we stood vigil by Sebastian's side, our hearts heavy with worry and fear. The halls of hospitals became our second home, their sterile embrace offering little solace in the face of our son's suffering.

It was during one such hospital stay that we received news that shattered the fragile veneer of hope that had sustained us thus far. Sebastian's tiny body bore the burden of heavy metals, silent sentinels of toxicity that ravaged his delicate constitution. In the wake of this revelation, our world crumbled, as the weight of uncertainty bore down upon us with an unrelenting force.

Yet, even amidst the darkness that threatened to consume us, a flicker of hope remained, a beacon of light that illuminated our path forward. For in the depths of despair, we found solace in the unwavering support of our community, a community bound together by love and compassion.

With each passing day, Sebastian's journey continues, a testament to the resilience of the human spirit and the power of love to overcome even the greatest of adversities. And though the road ahead may be fraught with challenges, we walk it with heads held high, guided by the unwavering belief that love will always prevail.

As we stand on the precipice of uncertainty, we humbly reach out to you, dear friends, with a plea for help and support. For in your kindness lies the promise of a brighter tomorrow, where Sebastian's laughter will once again ring out amidst the gentle whispers of hope.

Thank you, from the depths of our hearts, for your love, your prayers, and your unwavering support. Together, we will stand strong, united in our resolve to see Sebastian through his darkest hour and into the light of a new dawn.

With heartfelt gratitude,

Erika and the Bernardini Family

Hi, My name is Erika and I am raising funds for my sweet, precious li… Erika Bernardini needs your support for Join Sebastian's Battle Against Unknown Illness

Feeling a lot better after spending some time in the pediatric intensive care unit. Had low fluid, and needed potassium ...
22/05/2024

Feeling a lot better after spending some time in the pediatric intensive care unit. Had low fluid, and needed potassium for his chronic hypokalemia.
We have some forward movement with resources and learning about services for complex kiddos like Bash.
Feeling extra grateful for the ups and downs, the highs the lows, the beautiful people we meet along our journey. Thank you to everyone who sent messages and well wishes! We appreciate it all!

❤️‍🩹

Address

601 E Rollins St

32803

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