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Alex's Wish To Walk

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Alex's Wish To Walk

Watching Alex's wish to walk come true after raising just over €80,000 to fund an operation called selective dorsal rhizotomy (SDR)

Thank you Everyone

Thank you to everyone that helped Alex reach the next chapter of his Journey. This page was originally set-up to fundrais to get Alex to st.louis ,USA to have an operation called SDR (Selective Dorsal Rhizotomy)
We have reached our fundraising target and are no longer actively fundraising. The page will now be used to share with you all The next chapters of Alex's SDR story and raise awareness of this life changing operations. Of all the surgical and medical procedures currently performed on patients with cerebral palsy (CP), selective dorsal rhizotomy (SDR) has undergone more thorough scientific scrutiny than any other (including orthopedic surgery). Accumulated evidence and our own experience indicate that SDR is an excellent option for selected patients with spastic cerebral palsy. We believe parents and patients should inquire about SDR as a part of the management of CP before the patient undergoes orthopedic surgery. The Selective Dorsal Rhizotomy Procedure involves sectioning (cutting) of some of the sensory nerve fibers that come from the muscles and enter the spinal cord. This means alexs pain will be taken away and he will be able to walk. please ask us if you would like to know more or you can look up all information about the operation through the link below

http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr

Alex will be travelling to the USA in July to Have his SDR operation thanks to the kindness and compassion of so many people. People gave there precious time and money to Alex to make this little boys wish come true.

01/18/2026

Every January without fail he goes down like a dead dog 🤧🥵

We hate seeing him suffer with colds as to us we can fight it off but for alex a cold can significantly worsen symptoms for someone who has cerebral palsy, it increases stiffness, fatigue, and making breathing harder due to increased mucus, weaker coughs, and potential aspiration, turning a mild illness into a serious respiratory issue like pneumonia, requiring vigilance for subtle signs like confusion or lethargy, especially with swallowing difficulties. He just has to stay on hia couch or bed and 100% relax. All physical therapies and school will be cancelled for the week and we will see how he goes 💙🙏🤧🥵

12/31/2025

Happy New Year from this happy fella who's enjoying the day Pin trading in Disney 💙

12/22/2025

A dream come true for this little guy today as he is going to

12/15/2025

Delighted to let you all know Alex and his School mates will be in Rte RTÉ Today on Thursday sometime after 3.30pm so be sure to tune in 💙

12/09/2025

Fierce Excitement here this morning for this young man hes off to RTÉ studios in Cork to record a slot for the RTÉ Today.

Here's a throwback to when Alex met Sinead, Daithi & Maura a few years back.

We will let ye know when the segment will be aired.

Huge thanks to Alex's amazing school the School of the divine for all the hard work in getting them here today no doubt they will all be amazing 💙

Good luck to all & enjoy your moment on the big screen 💙

12/08/2025

We are very sorry to hear of the passing of Kathleen Hughes from Fermoy. We had the pleasure of meeting and spending time with Kathleen, Ca and Ger in Lourdes back in 2017 and what a lady she was. Rest in Heavenly peace Kathleen we hope you have the softest bed in heaven. With Love always Laurane & Alex 💙

Alex & Kathleen are pictured here with Bishop of Cloyne William Crean 🙏

11/19/2025

You know its I'm a celebrity time because hes in the sitting room everyday 🤦‍♀️ the show is on too late at night so he watches it the next day

11/17/2025

Our 2 preemies Alex & Jacob were born at 32 weeks 🩵🩵

Today is World Prematurity Day. Sending love to the little heroes born too soon and their families too.

11/03/2025

Just so proud of this kid 💙
Don't ever change Alex

10/31/2025

Growing up 💙
Stretching is the most important exercise in Alexs life. He needs to do it multiple times everyday, its hard on a teenager to do this. Most of us LOVE to see our kids growing tall but for Alex it takes such a tole on him and causes real damage to his hamstrings etc. Alex still faces more surgeries in the future but for now we continue to stretch and do all the weekly therapies he does on order to keep him strong 💪

Happy Halloween everyone 🧡🖤🎃 Alex is looking forward to Trick or Treating later on so this is just a reminder that even though he is 15 years old trick or treating is a big thing for him so be kind to all ages and heights it means alot to them 💙

10/29/2025

Alex started Occupational therapy today at Barefoot Physio its a great service now being provided in the cork clinic 💙

09/02/2025

Alex got a very special delivery yesterday of a custom trophy ro acknowledge him coming 1st when we went go karting in Devon Raceworld Karting huge thanks ro Hayley Llewellynpatt for sending such a thoughtful gift and making a little boy so very happy 💙

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1001 Epic Blvd
Orlando, FL
32819

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