Tarlov Cyst Society of America

09/14/2025

If you would like to volunteer please click the link below for more info!! Your help is needed!!

When I founded the Tarlov Cyst Society, it came from lived experience—years of pain, dismissal, and the realization that if patients like us didn’t speak up, nothing would change.

07/26/2025

https://www.fathersdaughter.net/post/my-medical-battle

“Mrs. Horner, are you depressed?” asked the doctor sitting across from me. This was one in a long series of Specialists that I had consulted with over the years, regarding my seemingly random medical conditions. “Well, I’m getting there because you people can’t figure out what’s wrong wi...

07/22/2025

07/10/2025

Exciting News Announcement! Please Join Dr. Forest Tennant for a one day seminar on AA-Adhesive Arachnoiditis (AA). All the information is listed below on the flyer along with the registration form. Hurry and reserve your spot today, because space is limited!!

06/02/2025

https://www.painnewsnetwork.org/stories/2025/5/19/the-two-most-common-causes-of-adhesive-arachnoiditis

By Dr. Forest Tennant Adhesive arachnoiditis (AA) doesn’t just happen out-of-the-blue or overnight. It is the tragic end result of sequential pathologic damage, over time, to multiple spinal tissues. AA may develop from a direct spinal injury or from an inflammatory, autoimmune disease that origin

05/29/2025

Everyone please take a few minutes and finish this survey on Tarlov Cyst Disease.
It will help immensely with research. Thanks in advance.

https://us9.list-manage.com/survey?u=96feefe979bbc621424deb088&id=4fea1eae0c&attribution=false&fbclid=IwY2xjawKlf5xleHRuA2FlbQIxMQABHpPRy1X4T-u07ChZ5meAj-rljAs9zO-E2qusk30DiE-wpzrkCOb0rD81xU09_aem_xJyX3SH4gZ_oMLRNmToGwA

04/19/2025

Please join our news letter to keep up with all the latest news on Tarlov Cyst Disease!

https://www.tarlovcystsociety.com/

04/13/2025

The Blood Brain Barrier and it's function!

https://www.facebook.com/share/1Bcp7uvAzo/

12/21/2024

"Legitimate pain is a symptom of an existing, verifiable disease that can be documented by an objective diagnostic test such as radiographic technique, blood essay, biopsy, or electrocurrent analysis. Pain is not a disorder, mental condition, syndrome, or disease. It is a symptom of a disease."

We need all persons with severe chronic pain to identify and know the disease that causes their pain. "
Dr. Forest Tennant.

Just when you thought the opioid crisis may have peaked, Dr. Andrew Kolodny, arguably the world’s foremost anti-opioid zealot, has found a shiny new way to inflate the numbers. In the HHS’s redefining of opioid use disorder (OUD) to include patients responsibly taking their prescribed meds, he.....

12/15/2024

https://www.painnewsnetwork.org/stories/2024/11/29/10-tips-for-surviving-the-holidays-with-chronic-pain

10/22/2024

The Tarlov Cyst Society is thrilled to announce the first newsletter on the new website! Sherri Jones has done an amazing job!

Go check out the website!!

There are no easy answers, and no simple solutions capable of changing how Tarlov Cyst Disease patients are treated, but with your help, change is possible! The Tarlov Cyst Society is searching for a collection of determined, and passionate members who are willing to help the Tarlov Cyst Society dev...